Share Self-Help for Women with Breast or Ovarian Cancer, Inc.

Rating: 4.95 stars   116 reviews

Issues: Mental Health, Health, Breast Cancer

Location: 1501 Broadway, Ste 704A New York NY 10036 USA

Mission: SHARE helps people through the cancer journey, from diagnosis through treatment and post-treatment, offering the unique support of survivors who've been there.
Results: We're helping more people every day locally and nationally with supportive services, continually increasing the number of support groups we offer. We're reaching more states through our helpline and increasing services in underserved communities.
Target demographics: Everyone touched by breast or ovarian cancer, from diagnosis through survivorship, as well as caregivers and loved ones, and everyone seeking information about these diseases.
Geographic areas served: In-person support and educational programs in metropolitan NY area and helplines available nation-wide.
Programs: All of SHARE's programs are free of charge, including toll-free helplines staffed by survivors, support groups, educational programs, and public health initiatives. SHARE provides bilingual patient navigators at two hospitals serving low-income populations, and we send breast and ovarian cancer survivors to speak to corporate employees through our Pink & Teal Seminars program. Our services are provided in English and in Spanish, and our helplines are available in 10 other languages as well.
2014 Top-Rated Nonprofit
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EIN 13-3131914
1-212-719-0364,
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Community Reviews

Rating: 4 stars  

7 people found this review helpful

Like most of us I was in quite a fog after being diagnosed with DCIS. My manager told me about SHARE and since I commuted to Manhattan every day and they had a location in Times Square I decided to attend. I only attended 3 meetings before my surgery but they helped me so much. The leaders were all survivors themselves, it was just women helping women so it was very comfortable. Listening helped me to ask the right questions at my doctors appointments and make decisions about next steps. This organization has made a major commitment to reach out and help - women helping women.

I've personally experienced the results of this organization in...

attending counseling session in Times Square office

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2009-1-01

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Rating: 5 stars  

8 people found this review helpful

I called SHARE when I was diagnosed with Breast Cancer. My mother had had cancer, and now it was my turn. I used the Hotline, then joined a support group. I went to a meditation group. They held my hand and got me through. I then became a volunteer, ran support groups, and finally joined the Board. I have nothing but good things to say. SHARE is there for people.

I've personally experienced the results of this organization in...

I have used the support services, attendede educational meetings and used the Hotline. I have only good things to say

What I've enjoyed the most about my experience with this nonprofit is...

They are there when it counts

The kinds of staff and volunteers that I met were...

all dedicated to the organizations goals and open to help

If this organization had 10 million bucks, it could...

serve more people, provide real support to underserved,increase hotline services, provide more educational services

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

6 people found this review helpful

This organization has been a sustaining force and friend for our cancer patients and survivors for several decades. Beyond their essential contribution as the largest breast cancer patient advocacy group in New York, SHARE is enhancing the knowledge of health care providers throughout NYC and helping hospitals like ours to make our service delivery more effective for ethnically diverse women. We anticipate that this collaboration will enable us to become better advocates on behalf of our diverse patients and survivors. We have grown a lot through our interactions with SHARE - they are an essential conduit for us to stay in touch with national and state level perspectives as well.

I've personally experienced the results of this organization in...

I've personally grown in terms of my awareness of state and national issues - this organization has especially benefitted our Clinic in terms of patient advocacy and support; and literacy and language appropriate resources.

What I've enjoyed the most about my experience with this nonprofit is...

our partnership for enhanced language-specific materials for diverse immigrant women in NYC

The kinds of staff and volunteers that I met were...

professional, focused, motivated.

If this organization had 10 million bucks, it could...

expand resources and personnel to other language specific groups and communities in NYC & provide enhanced support for women's health more generally (as well as cancer specific health needs).

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

6 people found this review helpful

I was diagnosed in 1996 and found Share through friends. It was a lifesaver in so many ways. Telephone volunteers gave me support and information about how to proceed, and allowed me to feel I was not alone. I participated in an ongoing support group after my surgery and then returned for groups on reconstruction and lectures on new treatments offerred by nationally known figures in the field. It is truly a wonderful organization doing a tremendous public service for its clients on a shoestring budget.

I've personally experienced the results of this organization in...

my participation in breast cancer support groups and reconstruction, as well as telephone support.

If I had to make changes to this organization, I would...

Expand its services to other forms of gynecological and general cancers.

What I've enjoyed the most about my experience with this nonprofit is...

its availability and accuracy of information.

The kinds of staff and volunteers that I met were...

Wonderful, giving people

If this organization had 10 million bucks, it could...

Expand to offer services for all types of cancer.

Ways to make it better...

it could be expanded to all types of cancer.

In my opinion, the biggest challenges facing this organization are...

financial.

One thing I'd also say is that...

it's great.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009-9-01

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Rating: 5 stars  

8 people found this review helpful

I am one of the women who founded SHARE in 1976 - the charter vice-President. SHARE began at time when there was little information for survivors or breast cancer and one did not easily come out with the fact that you had the disease. I had a mastectomy, without reconstruction, in 1975. SHARE helped me to talk about my cancer, to get in touch with my fears about it (my sister had died of breast cancer 5 years earlier) and helped me resolve to help others like me. SHARE still does all these things and does them well. In addition SHARE is a leader in spreading the word about the need for more research, more search for a cure and more support for survivors.

I've personally experienced the results of this organization in...

1976 -2010 SHARE was of great support in my early post surgery years and in years after. It is now responsive to all women I have referred for its services.

What I've enjoyed the most about my experience with this nonprofit is...

The friendliness of staff and volunteers - the quickness of response to my needs.

The kinds of staff and volunteers that I met were...

Pleasant and helpful

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009-10-01

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Rating: 5 stars  

6 people found this review helpful

I was diagnosed with stage-four breast cancer three years ago. Somehow in all my frenzy I was recommended to Share and to Roberta Hufnagel who ran a group for women with stage-four breast cancer. I went to the in person group she ran once because it is hard for me to get into New York City by train and then Share started a call in phone group specifically for women in my categorary. Since then I have called in every Monday at 4:00 pm almost all the time. I have missed very few sessions. During this time we speak about our own experiences, discuss medications we are on and how we are feeling emotionally. It is really a wonderful outlet for our feelings. The leader, Roberta Hufnagel, is very knowledgeable as well as very supportive. I look forward every week to my group but of course find it very hard when one of the members gets sicker or dies. In my case I have been doing well but now my markers are on the rise and the group has been there to support me. I hope that I can continue to be healthy and that I will have the services of this group to help me through the rough spots and that I will be able to help someone else too. Share is a wonderful organization helping people the best they can.

I've personally experienced the results of this organization in...

the group phone calls that I take part in every week.

If I had to make changes to this organization, I would...

give them enough money to accomplish every goal they set out to without making them have to worry about money.

What I've enjoyed the most about my experience with this nonprofit is...

being in touch with other women who have the same problem that I do.

The kinds of staff and volunteers that I met were...

kind, knowledgeable and understanding.

If this organization had 10 million bucks, it could...

Reach out and help more women suffering with cancer.

Ways to make it better...

they had a more convenient chapter in Brooklyn, NY.

In my opinion, the biggest challenges facing this organization are...

the lack of funding and the lack of advertising so that women know where to go for help.

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

6 people found this review helpful

I came to SHARE as a volunteer in 1995. In 1998 I began working part time coordinating programs in Queens, New York. In 2002 I became the Director of SHARE's Ovarian Cancer programs until Spring 2009. SHARE had been there for me and I wanted to give back. At the time of my original breast cancer diagnosis there were other organizations out there. SHARE was the only one that empowered me while supporting me. The opportunities at SHARE are endless. You can come to SHARE when you are in need and leave, but why would you when you learn giving back can be a way to support you too. I now find myself living with two cancers and SHARE is there for me once more but I am there for SHARE. I can't wait until I have the energy to give back once more.

I've personally experienced the results of this organization in...

support groups, through the hotlines, advocacy work, and programs.

If I had to make changes to this organization, I would...

Find more funding to support all of the work SHARE does.

Ways to make it better...

The office facilities were larger.

In my opinion, the biggest challenges facing this organization are...

Money. SHARE has lots of ideas and programs that could be implemented if funding were available.

One thing I'd also say is that...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

7 people found this review helpful

I became an ovarian cancer survivor during the summer of 2004. I was a wreck emotionally and my doctor recommended that I call SHARE. It was the first time I spoke with another ovca survivor and I was filled with so much hope. I joined a support group at SHARE and learned so much from other survivors: what to expect, how to handle side effects, how to communicate better with my medical team, where to get more information about novel treatment options. I learned about opportunities to attend conferences and learn more about the disease and how to become involved in awareness and advocacy. Then I volunteered on SHARE's hotline and then became a peer facilitator for the support group. I learned to become an advocate, for myself when needing to choose between treatment options, and also on the national level--raising my voice on behalf of everyone who has ever had to deal with an ovarian cancer diagnosis. Three remissions later, I am thankful for all that I have learned at SHARE and the opportunties I have had to pass along hope to other ovca survivors.

I've personally experienced the results of this organization in...

My personal growth from feeling so lost and alone when newly diagnosed to an empowered survivor/advocate with access to a caring support network and all the information and tools to aid in decision-making in the recurrent setting.

The kinds of staff and volunteers that I met were...

Helpful, kind, knowledgeable and accessable.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

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Role: Professional with expertise in this field
Rating: 5 stars  

6 people found this review helpful

I learned about SHARE several years ago when I became involved with educating fellow lawyers and others in the legal community about breast cancer. I have known many people who were directly helped by SHARE, in a very meaningful way (I am also a nurse and so I have heard many accounts over the years.)I have learned a great deal from the SHARE programs and its website. For cutting edge information, they are an invaluable resource, and I have relied on them in identifying important issues for conferences that I have helped plan. They use their resources wisely, and they appreciate every gift. If I had vast resources to offer, they would be at the top of my list.

I've personally experienced the results of this organization in...

and have seen many people benefit from the knowledge and support provided by SHARE -- that others have been down the anxiety-ridden path following a cancer diagnosis and yes, there is hope and a way to live well.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-4-01

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Rating: 5 stars  

6 people found this review helpful

After my diagnosis of breast cancer a friend recommended Share. Going to Share helped me retain my sanity through all the fear and confusion. I felt so alone as no one I knew was going through the nightmare. I was put in a newly diagnosed group with a leader. At first it was akward and uncomfortable but after 3 months the group had so bonded we remained friends for over 8 yrs. Now some have passed and others have moved on with their lives. I'm can't imagine going through those first few years without the support of Share and the group. I think their support and love is why I am still a survivor.

I've personally experienced the results of this organization in...

Their dedication, informative news letters e-mails, support groups, medical forums.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2004-10-01

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