My son was 14 when he was diagnosed with sepsis. It was the worst moments of our life and i was lucky to have this site for support and knowledge. Sepsis.org has been a place for me to browse though other stories and not feel so alone in this.
I am 4 years post sepsis shock. Without the sepsis alliance I would have had NO understanding of what had happened to me or how to fight for my care post sepsis. Four years ago when I left the hospital I was told to rest for a couple of weeks and I would be fine. I was not fine in two weeks. I went through 1 1/2 years not knowing what to think. Then I found Sepsis Alliance and quickly found, by reading the tales of other survivors, that I was not alone. The Sepsis Alliance has continued to educate me as new information, such as Post Sepsis Syndrome, came to light. It has provided documents I can use to educate my Drs and others. It has provided simple facts I can use to raise awareness on FB. Sepsis Alliance not only raises awareness, but equips others to raise awareness.
I am a septic shock survivor and my story has been published on the Sepsis Alliance website. The website has provided me with a lot of information and resources as I begin my recovery from Sepsis.
I found Sepsis Alliance to be user friendly, helpful and courteous. It's important for those who are chronically ill due to Sepsis to find answers in order to understand why & how their lives have been changed. I don't think the public is aware of these issues unless they or a member of their family are afflicted. Kudos to those who volunteer for Sepsis Alliance in order to help those who are looking.
I wish I could have found this organization a lot earlier than I did. It could have saved my niece's life. They spread awareness of a disease most people don't know exists. Not only that, but they educate the symptoms. They save lives!!! I'm glad that I have found this organization, because it has helped our family cope by reading other people's stories who have been stricken with Sepsis. They also let us share our little girl's story, so hopefully someone who reads it will be able to save another child's life! I am so grateful for the wonderful leaders at Sesis Alliance. They do an amazing job!
Almost a year later, I thought sepsis was just another word for infection. Then I found this website after I read about how Patty Duke died: Sepsis Alliance. I guess I never fully realized how much trouble I was really in. Then I started reading stories about similar experiences and symptoms...many much worse. I am disabled but thankful to be alive. This sepsis condition needs to be in the forefront of the things all hospitals and emergency look for when someone just continues to decline for no apparent reason. I am so glad I found this website and I continue to visit it and get emails from it.
I lost my mother to Sepsis and was able to find comfort reading other families accounts of their loss and survival of Sepsis. The information on the website was helpful for me in understanding the progression and cause of the disease. I also wrote a tribute memorial for my mother and it has already been featured on social media and the website. Thank you to the Sepsis Alliance for bringing this important medical issue out in the open and hosting honest discussions about the fatalities and loss as well as the survivors of Sepsis.
I told my sepsis story on the sepsis alliance website and it was truly an inspiration for me to read just a couple of the personal stories from others who have survived sepsis. Their website brings me hope and relief. I felt anxious because I have been sick with sepsis 3 times and twice went into shock. The memories sometimes come up in my mind as pictures and I was struggling with fear about getting sepsis again but not being strong enough to fight for my life. I googled sepsis and when I found this website my mind was put to ease and gaining more understanding about sepsis from the site was calming. I am thankful to those running the site.
Without sepsis alliance I would not have the information I needed to help my recovery from septic shock. There is little or no support for victims and their families in the UK. If you have cancer or any other critical illness there is support for you throughout your recovery but for sepsis survivors there is nothing. Thank you sepsis alliance for being there.
This organisation helped me to share my story of sepsis and raise awareness to others. It has helped me in so many ways.
Thank you! Thank you! Xx