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October 31, 2010
1 person found this review helpful

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October 31, 2010
1 person found this review helpful

My husband received a double lung transplant 4 years ago at Barnes-Jewish Hospital in St. Louis. We (I am his caregiver so it is WE) started the process with many trips from our home in Central Illinois to "qualify" for the transplant list. The attention from Second Wind members made the pre-transplant time much easier and when the actual "gift" came we all celebrated together. The Second Wind meetings help all realize that there is emotional, finacial and physical help if needed. My husband has chronic rejection and returns frequently for Photopheresis treatments. We meet with local members and anyone who is in town for medical updates for dinner and a long, warm social time. I always feel like we have been with family. Being a caregiver can be a very lonely time. Second Wind closes that gap.

The Great!

I've personally experienced the results of this organization in...

because of the privacy clause I do not know personally who has received support but I do know that $3,000 to $4,000 is needed almost every month for families to help pay for meds, or help with rent, just to name a couple of concerned needs.

Ways to make it better...

If I had to make changes to this organization, I would...

make fundraising more "fruitful." With the current economic situation everyone, from the financial donor to the recipient, is feeling the pinch. And when one needs lifesaving meds or housing there aren't alot of places to turn to.

October 29, 2010

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October 29, 2010

I received a double lung transplant in July of 2006. I joined Second Wind of St. Louis right before surgery and have been a member since. Not working due to my illness, I had to relocate to St. Louis to wait for the transplant. This took a heavy toll on my family's budget draining most all of our savings. I'm four years down the road from my surgery and I'm currently in chronic rejection of my lungs. After surgery, everyone is on some very expensive medications to stay alive. I also receive a treatment each month that helps reduce my rejection. Second Wind of St. Louis helps me with gas money to travel to this treatment which is over 100 miles from my home. They have been there for me since day one. This one kind jesture by Second Wind has helped my family tremendously with our budget in these trying financial times. Without them, I would not be able to take this important treatment. I have a lot of great friends in the St. Louis chapter of Second Wind. They have become part of my family, so to speak. Their support, whatever that may be, is always there.

The Great!

I've personally experienced the results of this organization in...

Financial benefits and many friendship developed.

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything currently

October 29, 2010

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October 29, 2010

Second Wind the name says a lot. But what some do not know is the way they go out of their way to ensure that each person has a safe and comfortable stay when they have dr appts which include overnight stays, sedations that come along with ct's and PET scans, not to mention starting new meds that require one to be close to the hospital. Some people do not understand that the cost itself to stay overnight in a hotel can become expensive, but for transplant families as well as for families with any illness that are in hospitals 3, 4, 5 or more times monthly. Second Wind helps to take the burdens off these families and gives them someone they can ask for help when the time arises. Thank You Second Wind!!

The Great!

I've personally experienced the results of this organization in...

i have personally seen second wind go out of their way to help people

Ways to make it better...

If I had to make changes to this organization, I would...

wish that i knew this organization was out there sooner than 3 years ago. great organization

October 29, 2010

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October 29, 2010

Secnd Wind Transplant is one of my favorite charities. It provides absolutely necessary material support for persons waiting for lung transplants. The waiting period can be long and it is often necessary for transplant candidates to pick up stakes and move near the transplant center so as to be available when and if the call comes. I know of people living in Winnebagos on the parking lot of the transplant center here.. Not surprisingly, these hopeful yet very ill people need support that is simply not available to them through conventional public support systems. Second Wind receives applications for help, discerns and discusses work-around solutions and if necessary, provides cash. It has no overhead. All of its work is done by volunteers. Every dollar I give Second Wind I know goes to people who are really in need and whose urgent needs would not otherwise be met.

The Great!

I've personally experienced the results of this organization in...

Second Wind Walk

Ways to make it better...

If I had to make changes to this organization, I would...

There is a need to publicize the need for organ donations and to facilitate organ donation registration via the internet at church and other organizational gatherings.

October 28, 2010

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October 28, 2010

Second Wind Lung Transplant Association helps pre and post-transplant patients who need financial assistance during the long transplant journey. Last year Second Wind awarded $60,000. in assistance for pharmaceuticals, medical co-pays, lodging and transportation needs. This is an all volunteer organization. Operational expenses are kept to the bare minimum in order to maximize the organization's goal to help as many patients as possible.

The Great!

I've personally experienced the results of this organization in...

I was treasurer for five years, and in that role I saw first hand how Second Wind Lung Transplant helped patients who were in financial crisis.

Ways to make it better...

If I had to make changes to this organization, I would...

I don't think any changes need to be made.

October 27, 2010

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Review from Guidestar
October 27, 2010

I was referred to Second Wind by a social worker at my hospital when I was having a difficult time paying for a piece of medical equipment after my second, double lung transplant. After providing a bit of information to the board of directors, I was given the assistance to pay for the piece of medical equipment was essential to a healthy recovery. Ever since that day, I’ve been dedicated to Second Wind and its mission to help those dealing with lung transplants. Second Wind also provides open support meetings for those needing personal support, which I have utilized on several occasions. This organization has become so important to me, that I have recently become one the board members. I’m so thankful for finding Second Wind and looking forward to a long future with the organization.

The Great!

I've personally experienced the results of this organization in...

Many, many ways!

Ways to make it better...

If I had to make changes to this organization, I would...

Provide an additional location to have support group meetings, once a month just doesn't seem like it is enough to many people.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Social worker

When was your last experience with this nonprofit?

2010

October 27, 2010

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October 27, 2010

St. Louis (STL) Second Wind is an entirely volunteer staffed organization. Every dollar raised or donated goes directly to the support lung transplant patients. The Second Wind Assistance Fund provides financial support to meet emergency needs for patientswho are pre and/or post transplant. Unlike many other organ transplants, those waiting for lungs must relocated to be near their transplant center - often for many months until a donor match is found. Even after transplant, the patient must remain near the center to be monitored and for phyical rehabilitation. All of this and maintaining their permanant homes often results in expenses that are beyond what can be met with their disabilty or family income. That's where STL Second Wind comes in - help with utilities, medication costs, travel expenses - there is a myriad of ways the The Assisatance Fund can provide relief to qualified lung transplant patients with unexpected or emergency costs. While most of the Board and membership is comprised of transplant patients and their families, there a a large number of people, myself included, that have become involved with STL Second Wind just because of the great work this organization does. And by being involved with STL Second Wind, I've been witness to miracle after miracle of new life through organ transplant.

The Great!

I've personally experienced the results of this organization in...

I've seen countless lung transplant patients and their families benefit from the work that STL Second Wind does in the lung transplant community. Along with the Assistance Fund, STL Second Wind provides organ donation awareness and education, support to patients and families, and an advocacy role in the transplant community.

Ways to make it better...

If I had to make changes to this organization, I would...

Have more funding to assist lung transplant patients. Right now, assistance must be limited in order to serve more people.

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