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October 13, 2011

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1 previous review
October 12, 2010

I was introduced to The Renal Support Network about two years ago by a fellow kidney patient. I was immediately impressed by the scope of services they offered and their dedication, not to mention Lor... more

October 13, 2011

This is an organization that helps kidney patients with information, support, and a connection with others sharing similar issues and challenges.
As a patient myself, I can tell you that I wish RSN existed when I first learned that I had renal failure.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Unsure

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2011

October 12, 2010

I was introduced to The Renal Support Network about two years ago by a fellow kidney patient. I was immediately impressed by the scope of services they offered and their dedication, not to mention Lori Hartwell and her staff. They are the foremost organization in the renal field when it comes to patient support and education. And this is not just talk; I've seen the Renal Support Network in action. From the Teen Prom, "Who Lives",the highly regarded and eye opening play they produced, to the vast array of educational programs they offer, the Renal Support Network is without peer.

The Great!

I've personally experienced the results of this organization in...

When i walked into that Renal Teen Prom and saw the vast number of young patients all feeling that they were part of something all inclusive and wonderful despite their physical challenges, I was moved.

Ways to make it better...

If I had to make changes to this organization, I would...

I would just like to see their visibility grow so that more people would become aware of them.

October 31, 2010

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Review from Guidestar
October 31, 2010

As a kidney transplant patient of over 30 years, this organization has given me the ability to go out into the community and educate people on what is kidney disease really. Not just other people, like myself, but professionals and patients alike. RSN takes my hard won experience and puts it to good use. I have spoken to dialysis nurses at Loma LInda University as well as Renal Advantage, INC. I have also educated lay people, such as Rotary groups, on how to combat kidney disease for themselves and how to help people with kidney disease already. One of the best things is the HOPEline where patients can talk to other patients and get specific help on how to navigate through all the red tape that can be encountered to just letting them know we've been there too. Family members can call also, if they have questions and/or concerns.

The Great!

I've personally experienced the results of this organization in...

my own life. I learned about button holes, other types of medication and most important, personal support when I needed someone and was considering terminating my dialysis.

Ways to make it better...

If I had to make changes to this organization, I would...

have a prom in the middle of the country. Like Denver, Omaha, or Kansas City.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Gave me a hands on practical on how to give an effective speech using my own story and personal experience so I could go out into the community and educate people on kidney disease. Also, how to lobby congress, keep abreast of new legislation, and impact legislation to help kidney patients everywhere.

How did this volunteer experience make you feel?

I always feel great after attending one of the get togethers. Meeting other people like myself and letting them know that we have all been there and done that. Educating other patients so they don't have the same problems that I have encountered. Changing legislation so that other patients can benefit from my years of experience has been life changing for me. Knowing I can make a difference in congressional hearings on kidney disease, just by using my story. Its been great!

When was your last experience with this nonprofit?

2010

October 19, 2010

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Review from Guidestar
October 19, 2010

Having been a kidney patient for at least the last 5 years, this is the first and only patient oriented group that I have found for educating, supporting, and advocating for kidney patients, at all levels. The educational resources available for any stage of renal failure (pre-, dialysis, transplant) has been much more than I ever expected, and still amazes me as I continue to access more of its resources available on the website. The President and founder is a ball of energy, very inspiring, an excellent leader, a great advocate, and a fountain of excellent information on just about all matters dealing with chronic kidney failure, its treatments, and its impact on patients. They have excellent programs for educating patients, helping patients, and supporting patients.

The Great!

I've personally experienced the results of this organization in...

Simply the educational part has really helped me, learning not only information applicable to my stage, but also so much about the cost and treatment aspects related to CKD that does and will continue to impact all of us.

Ways to make it better...

If I had to make changes to this organization, I would...

None.

October 18, 2010

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Review from Guidestar
October 18, 2010

The Renal Support Network (RSN) was founded by my wife, Lori. She considered her own experiences with kidney disease and created programs that help people the way that she was helped and the way she needed to be helped. Her personal imprint united the group and encourages people with kidney disease to join. I watch them as I hold small roles from time to time at events that RSN puts on.

The Great!

I've personally experienced the results of this organization in...

seeing those with kidney disease helped, especially in that they see that they can lead a normal life.

Ways to make it better...

If I had to make changes to this organization, I would...

Find someone who can back up Lori as the orchestrator of this organization.

October 8, 2010

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October 8, 2010

RSN has been such a positive influence on so many people with chronic kidney disease, Its founder Lori Hartwell a kidney patient herself and her staff have been the drive providing support, hope and happiness along with wonderful programs like the annual Renal Teen Prom, the HOPE line (a support phone line in English and Spanish) Patient Life Style meetings, monthly support groups, Kidney Talks, and a very informative web site. I have received so much information and became more knowledgeable about dialysis (a dialysis pt. and volunteer myself) and self care over the years. With further assistance this patients helping patients organization can flourish, and reach out to many more needy people - benefiting from this tremendously.

The Great!

I've personally experienced the results of this organization in...

Over the years I've received much positive support by all the members and the programs presented not did I enjoy them but so much information given by very knowledgeable health care workers. I've seen the smiles on people that this organization has offered through its many outreach events.

Ways to make it better...

If I had to make changes to this organization, I would...

I've known Lori since before the inception of this organization she has worked so very diligently and with much dedication in helping support patients. Its doing a great job and I wouldn't change a thing.

October 7, 2010

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Review from Guidestar
October 7, 2010

It's hard to believe but it has been one year this month that I met Lori Hartwell and the crew at the Renal Support Network. I was referred to Lori by a Nurse at my clinic and that has turned out to be some of the best advice I have ever received. I first went to a RSN support meeting seeking to see firsthand how others were dealing with the same illness that I had. My life was changed at that meeting. Lori has taught me to lift the spirits of other patients by telling my own story while listening to theirs. I have made a few fortunes over the years but none have equaled the values of life that Lori has shared with me. Lori Hartwell and the Renal Support Network have taught me how to help people smile and cope and in turn that puts a big smile on me! I haven't missed a support group meeting since that very first one last year. In fact, I now attend TWO RSN surpport groups every month as well as volunteer for anything and everything I can to help others. Thank you Lor Hartwell

The Great!

I've personally experienced the results of this organization in...

Saving the life of a very depressed patient. I have continually watched as people enter a RSN support group meeting in tears and walk out just a couple of short hours later with a smile. These moments are priceless.

Ways to make it better...

If I had to make changes to this organization, I would...

Fund RSN so that may reach more and more patients every day. One thing I wouldn't change is letting me volunteer when ever and where ever I can.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

That it has allowed me to realized the value of helping others.

The kinds of staff and volunteers that I met were...

Sincere, honest, upbeat, and giving.

If this organization had 10 million bucks, it could...

Hold more of their Patient Lifestyle Meetings around the country.

Ways to make it better...

I had started earlier in life.

In my opinion, the biggest challenges facing this organization are...

Funds

One thing I'd also say is that...

A am grateful to the Renal Support Network for helping me live a happy and productive life.

When was your last experience with this nonprofit?

2010

October 6, 2010

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Review from Guidestar
October 6, 2010

My first contact with Renal Support Network (RSN) was by happenstance. A friend of mine wanted to attend a support group meeting held by RSN and I just went along for the ride with no intention of actually attending the meeting. As GOOD luck would have it, I did attend the meeting and found a wonderful group of compassionte, understanding, and supportive people at RSN who selflessly gave of themselves to help the attendees. I was hooked and could not wait until the next meeting a month later. Fast forward to the present and now I volunteer at any possible opportunity. I see how Lori Hartwell and her staff and programs affect people in such a positive way. I personally have seen attendees to the support group meeting walk in with a heavy heart and leave hopeful for the future, just as I did over a year ago.

The Great!

I've personally experienced the results of this organization in...

giving me direction in my life as I was recovering from six years of dialysis and adjusting to a kidney transplant.

More feedback...

When was your last experience with this nonprofit?

2010

October 6, 2010

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Review from Guidestar
October 6, 2010

My name is Rebecca. I met Lori Hartwell through a friend of mine. I didn't know Lori's history or her work with RSN. I just knew that she liked to make jewelry and so did I. It was fun to be together tapping into our creative side and producing beautiful pieces that our friends and family enjoyed as much as we did. I introduced Lori to the world of buttons and how to make them into bracelets. It was a couple of months after I met Lori that I learned about her kidney disease, RSN and the people that worked with her. I was amazed to learn that her staff at RSN were also kidney transplant recipients or patients in some way. Her whole staff is like one big family. The more time I spend with them, the more I get to know them personally and about the world of kidneys. Yesterday, I volunteered for the first time labeling postcards for 'The Celebrity Poker Tournament' Fund raiser for RSN. At the tournament, Lori and I will be selling our button bracelets and a portion of the proceeds will go to RSN. I'm excited to help and to be a part of this event.

The Great!

I've personally experienced the results of this organization in...

a wonderful way.

More feedback...

When was your last experience with this nonprofit?

2010

October 6, 2010

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Review from Guidestar
October 6, 2010

My name is Robert Ziegler, I had my kidney transplant on Oct. 24th. 2007 at UCLA and it was there where i picked up a a Renal Support Network Brochure and the rest is history. I have been a patient volunteer thier since March 2008. Lori Hartwell gave me the opportunity to prove to myself that my life wasn't over that it was the begining and she was right The Renal Support Network is a wonderful organization that offers so much support to so many people affected with Kidney Diease

The Great!

I've personally experienced the results of this organization in...

attendind the Renal Teen Prom and seeing the smiles on all the teenagers faces they were all so happy and felt so wonderful. It seemed that they all forgot they were sick for that one special evening...It was such a good feeling to be a part of it...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Helping others & talking to other patients

The kinds of staff and volunteers that I met were...

They are all just regular people with big HEARTS

If this organization had 10 million bucks, it could...

Do some much more wonderful things for all the renal patients and thier families all over the USA

When was your last experience with this nonprofit?

2010

October 6, 2010

more

Review from Guidestar
October 6, 2010

My daughter Jenna was diagnosed with kidney failure at 15 years old. We heard about the Renal Support Network from others who knew its founder, Lori Hartwell, was a child/teen kidney patient. We attended RSN's patient education meetings and learned a lot about what Jenna was facing. The group is comprised of patients helping patients and it makes a huge difference to get support from someone who has walked in your shoes. Over the past 9 years RSN has been a great resource for support and hope for our family.

The Great!

I've personally experienced the results of this organization in...

Patients need to know they are not alone, especially teenagers. RSN brings patients together for education, fun and support.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand their programs internationally to reach more kidney patients throughout the world.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

there is hope for teens and young adults with kidney failure. You can still follow your dreams.

The kinds of staff and volunteers that I met were...

dedicated, informed and supportive patients who help each other through dialysis and transplant issues.

If this organization had 10 million bucks, it could...

expand the education programs (which are free to patients, and include a meal too.) They could do the Teen Kidney Prom in more locations to reach teens with kidney disease. RSN could expand their advocacy program and take more patients to Washington DC.

Ways to make it better...

RSN had more funds to help more patients.

In my opinion, the biggest challenges facing this organization are...

keeping the programs going through the recession.

One thing I'd also say is that...

There's nothing like RSN - it stands alone in it's field. No other group actually employs patients to mentor and help those who are newly diagnosed or are too sick to make their way through the system.

When was your last experience with this nonprofit?

2010

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