Raising Special Kids

Rating: 4.9 stars   31 reviews

Issues: Disabilities, Human Services

Location: 5025 E. Washington St. #204 Phoenix AZ 85034 USA

Mission: As a comprehensive Parent Center, Raising Special Kids provides information to families of children with disabilities or special health needs. We offer free workshops and individual consultations for families as well as training for professionals in family service fields such as health care, education and social services. Parent to Parent support and guidance is offered by experienced, trained, volunteers for families facing a new situation. A skilled, caring staff of parents is available to answer questions regarding special education, health care, accessing state services and finding appropriate resources for children and families. Services for families are offered free of charge in English and Spanish.
Target demographics: Families of children with disabilities and special health care needs in Arizona--and the professionals who serve them.
Direct beneficiaries per year: 7,701 families
Geographic areas served: Arizona
Programs: Parent to parent support, parent training, and information on services and resources.
2010 Top-Rated Nonprofit
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EIN 86-0517082
800-237-3007
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Community Reviews

Rating: 5 stars  

Helping parents through Raising Special Kids for approximately 12 years has been very rewarding. Each time I meet a new parent I can identify with what they are going through and I try to give them information from my own experiences and developmental disability certification training. However, Raising Special Kids is the catalyst in supporting, educating, and just being there for parents with children of special needs.
Keep up the good work RSK and congratulations to an agency that follows through with their mission statement.

If I had to make changes to this organization, I would...

Have more than one office location and probably acknowledge the volunteers more often.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

Raising Special Kids puts a personal face on families that have children with disabilities. I often host medical residents in my home and share the story of how we received Josie's diagnosis. It allows me the opportunity to educate new doctors on Cerebral Palsy and the effect that diagnosis has on us as a family. On a very personal level I hope that new docotrs undertand that their choice of words echo foreaver in our mind. That information empowers us as parents and that Raising Special Kids as an organization is family friendly and provides accurate, up to date information on disabilities and a network that guides us through the maze of this new challenge.

I've personally experienced the results of this organization in...

Raising Special Kids has assisted me in obtaining accurate and up to date information on Cerebral Palsy. I have also sought them out in matters concerning my daughters IEP.

If I had to make changes to this organization, I would...

Expand the Resident Hosting Program to include dentists and teachers. I would like to see the newsletter Connecting by Raising Special Kids available in doctors offices and hospital waiting rooms.

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Rating: 5 stars  

It is an absolute pleasure to host resident doctors in my home, share our story about our disabled daughter, and further educate them on the necessity of organizations such as Raising Special Kids. It is a relief to these residents to know that there is a capable organization with an abundance of resources to where they can refer their patients and families.

I've personally experienced the results of this organization in...

feedback from doctors

If I had to make changes to this organization, I would...

train/educate more OB's and specialty doctors and professionals

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Rating: 5 stars  

Raising Special Kids has been an encouragement to my family through some really difficult times. They were available for direction and helped us network with other families. Their events have been very well planned and well received. I especially enjoyed the Resilient Relationships workshop. They are a great resource for families who "Raising Special Kids."

I've personally experienced the results of this organization in...

I have seen the lives of many people influenced and improved by the services and assistance offered.

If I had to make changes to this organization, I would...

The only change I would make is to advertise the organization more widely.

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Rating: 5 stars  

Raising Special Kids was there for me from the earliest months when we had yet to get the (eventual) diagnosis of autism for our daughter. We have participated in the residency training program for several years. What a great feeling of giving back it is to help our medical providers have a more realistic ... hopefully more empathetic and knowledgable ... view of what it's like to be a family living with a child who has a disability. Sharing, one on one, some of the very personal challenges (many uncomfortable, emotional, and not easily shared) can be a powerful experience for both parties. A wonderful organization!

I've personally experienced the results of this organization in...

I was, as a young mother, matched with another mom who was also experiencing coming to terms with having a child with a significant disability. That early networking ... the beginning of the discovery that I did not have to travel this difficult journey completely alone ... meant everything to me. My family is intact in no small measure due to the support I have found in other families and Raising Special Kids was the starting point for me.

If I had to make changes to this organization, I would...

No change.

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Rating: 5 stars  

Raising Special Kids has helped so many Doctors in Training better understand how to dialog with our special needs families. This resident training gives a wider base of knowledge for our doctors and thus better service for our special needs patients.

I've personally experienced the results of this organization in...

obtaining help for my special needs son.

If I had to make changes to this organization, I would...

no changes

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Rating: 5 stars  

Raising Special Kids has been a tremendous help, comfort and encouragement to countless individuals and families who wrestle with some of the toughest issues people have to face. I have volunteered on several occasions and have seen their work up close and first hand. Integrity and honesty are at the forefront of this great agency and those who work with them know it. It is a great personal benefit to share in the work they do in the Valley of the Sun. They facilitate amazing results with the staffing they have and volunteers they recruit. A lot of us have had our lives changed for the better by this group of caring people.

I've personally experienced the results of this organization in...

I have visited with families who have used this organization and go on to join as volunteers. I have helped teach at a few meetings and have shared our family's story.

If I had to make changes to this organization, I would...

Advertise their work more.

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Rating: 5 stars  

This organization has helped so many families to move past the hard times in life and learn valueable life lessons about the true meaning of family.

I've personally experienced the results of this organization in...

Yes - I have witnessed numerous families over the years benefiting.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-1-01

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Rating: 5 stars  

Since my almost 19 daughter was 4 months old Raising Special Kids has touched my life. In the early years it was through guidance, support and the knowledge other volunteers had to guide me through the craziness of raising a medically fragile child. What rights did I have, what was best for her and how to neogotiate the very scary school system where at times you feel very out numbered. As my daughter grew older and more stable, it was time to give back and I decided to volunteer to hopefully help other parents fight the maze that I felt I had somewhat successfully managed through Raising Special Kids support. I became a Parent to Parent Volunteer and helped other families, they referred me to apply for the Special Education Advisory Panel to the State Board and am now serving on my 3rd term and over the past 3+ years have become a parent forum speaker, helping bring the reality of a family with a special needs child to those who may be unfamiliar or just beginning their adventure into this world. I have always gained more from the partnership than I've given, the relationships, the knowledge and support have been priceless.

I've personally experienced the results of this organization in...

By becoming more knowledgeable about services and disability rights that has helped my daughter become more independent

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-9-01

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