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114 Reviews
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May 8, 2013

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2 previous reviews - show all
July 12, 2012

As a person who has advanced prostate cancer, Prostate Cancer International (PCI) has provided me with invaluable unbiased, intellectually honest, and accurate information, comment, interaction, insi... more

May 8, 2013

If you have prostate cancer or think you might have prostate cancer, and you want to learn about the latest developments in the diagnosis and treatment of prostate cancer, then this is the internet site you must visit. What's unique about the site is the analysis and comments of "Sitemaster", who is a professional medical communications specialist extremely knowledgeable about prostate cancer. You can also ask Sitemaster questions about your personal situation and he will promptly respond with an unbiased, informative answer. For those interested, the site also offers social networking opportunities, and links to other sites related to prostate cancer research, clinical trials, and nationally adopted diagnosis and treatment standards.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 12, 2012

As a person who has advanced prostate cancer, Prostate Cancer International (PCI) has provided me with invaluable unbiased, intellectually honest, and accurate information, comment, interaction, insight, and knowledge about the diagnosis and treatment of the disease. Complicated medical studies, abstracts, opinions, surveys, and articles are reveiwed by PCI and are translated into into easily understandable lay terms. PCI also sponsors an interactive social network where patients, caregivers, experts and the sitemaster can exchange information and obtain answers to difficult questions.

The Great!

I've personally experienced the results of this organization in...

using the information to make better informed decisions on treatment and diagnosis of prostate cancer

Ways to make it better...

If I had to make changes to this organization, I would...

None

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

web surfing

June 27, 2011
1 person found this review helpful

The New Prostate Cancer Infolink communicates the most current medical information on prostate cancer, including abstracts, conferences, research papers, FDA announcements, clinical trials, and general information. In addition, the "Sitemaster" provides excellent analysis of and insight into the information communicated. For example, when Provenge was approved by the FDA, Sitemaster discussed the relative cost of Provenge compared to the possible benefits, the available alternative treatments, the phase III clinical trial results, and the future of the treatment. I would not have fully understood the issues relating to Provenge if the Sitemaster had not posted the discussion. Sitemaster's discussion is unbiased and honest.

The Great!

I've personally experienced the results of this organization in...

evaluating treatment options for advanced prostate cancer

Ways to make it better...

If I had to make changes to this organization, I would...

do nothing

October 17, 2012
1 person found this review helpful

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October 17, 2012
1 person found this review helpful

I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of
cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.

The Great!

I've personally experienced the results of this organization in...

helping me decide what was right for me.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

internet

October 11, 2012
2 people found this review helpful

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October 11, 2012
2 people found this review helpful

I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 26, 2012
1 person found this review helpful

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September 26, 2012
1 person found this review helpful

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 26, 2012
1 person found this review helpful

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September 26, 2012
1 person found this review helpful

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 25, 2012
2 people found this review helpful

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September 25, 2012
2 people found this review helpful

I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

Through a fellow participant in a clinical trial.

September 25, 2012
1 person found this review helpful

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September 25, 2012
1 person found this review helpful

I was first diagnosed with prostate cancer five years ago but only became aware of the PCI website in the last year. It is excellent and the best website I have found. In the U.S the only other website I have used is Malecare, whcih is good but is v ery US centric, while PCI has a good internatioal side to it. I have found nothing of value outside of these two websites. I wish it every success.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 25, 2012
1 person found this review helpful

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September 25, 2012
1 person found this review helpful

I found the advice given to me on this web sight invaluable. It answered all my questions and helped me come to terms with the advice given and that was to have radical surgery. I have since had the operation (two months ago) and have recovered very well. I followed all advice given especially in choosing a doctor who is very experienced with this kind of surgery. I have my first PSA blood test done next week and am fully confident that all the cancer has been removed. Best Wishes. Ray Stubbings.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 24, 2012
1 person found this review helpful

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September 24, 2012
1 person found this review helpful

Most important was their immediate response to any question that I had. They are extremely knowledgable, professional and caring.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

September 24, 2012
1 person found this review helpful

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September 24, 2012
1 person found this review helpful

Provides great information! Up to date science and research which would be unavailable elsewhere.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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