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June 27, 2011

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June 27, 2011

In the nearly 3 years since my diagnosis of prostate cancer, I have visited the prostate cancer infolink.ning site almost daily. It was a great source of information after my initial dagnosis; a great source of support during my recuperation from surgery; a great source to "compare notes" with other survivors; and a great place where I can help to provide support for others, both newly diagnosed and long-term survivors. It is wonderful to have a place to speak openly and frankly with others who are walking the same path due to PCa.

The Great!

I've personally experienced the results of this organization in...

The information I received, the answers to my questions, and the opportunity to provide support to others.

Ways to make it better...

If I had to make changes to this organization, I would...

Find ways to make it better known to the general public.

June 27, 2011
1 person found this review helpful

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June 27, 2011
1 person found this review helpful

I am a prostate cancer survivor. I have had surgery in the past year. This site is a good source of timely information on what to expect from the first diagnosis of elevated PSA to a diagnosis of cancer. It gives the patient that information the doctor may be uncomfortable in discussing.

The Great!

I've personally experienced the results of this organization in...

as much as I have had surgery, and here I have found information that helps me to cope with being a survivor of prostate surgery.

Ways to make it better...

If I had to make changes to this organization, I would...

I would make no changes

June 27, 2011

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June 27, 2011

The Prostate Cancer InfoLink is where I get current information on prostate cancer treatment. It is also where I get links to cutting edge research and treatment. As a recently diagnosed cancer patient, I appreciate this site very much.

The Great!

I've personally experienced the results of this organization in...

I have receive excellent information to support choices for the treatment of my disease.

Ways to make it better...

If I had to make changes to this organization, I would...

I would include even more information on the current cliical trials; and research and publish the reasoning that drives that line of research.

June 27, 2011

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June 27, 2011

Top research. Strong, educated responses to questions. Medically sound. Daily updates. A bookmark in my browser used daily. This site/organization has a face and a human scale interaction. Fully worthwhile and a must for anyone interested in fact based information about prostate cancer.

The Great!

I've personally experienced the results of this organization in...

Receiving information about disease. Research results and investigational drugs and treatments.

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 27, 2011
1 person found this review helpful

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June 27, 2011
1 person found this review helpful

As a prostate cancer survivor I have had numerous opportunities to share my story with other men who have been diagnosed with pCa. PCI was there for me when I needed information about the disease, treatment options, and encouragement in dealing with the emotional side. Now I frequently direct other guys to the PCI website to get the same help. They have always told me how helpful the PCI site was and how much they appreciated the site being there for them. The information is personal, accurate, and non-biased.

The Great!

I've personally experienced the results of this organization in...

dealing with the issues associated with prostate cancer and choosing a treatment option.

Ways to make it better...

If I had to make changes to this organization, I would...

provide a tutorial for website navigation for computer dummies like me.

June 27, 2011

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June 27, 2011

There is excellent information available on the website. The support groups offer strategies for coping with prostate cancer, whether you are the patient or the family member. Survivors and caregivers share their personal anecdotes pre and post surgery.

The Great!

I've personally experienced the results of this organization in...

the availability of information it has provided.

Ways to make it better...

If I had to make changes to this organization, I would...

not do anything..It is perfect!

June 27, 2011

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June 27, 2011

Fantastic source of un biased up to the minute news on treatments and general stories surrounding the disease.

As a sufferer it gives me hope to read about new treatment and research.

Great job well done.

The Great!

I've personally experienced the results of this organization in...

every day this is the first thing I open up on my computer.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing

June 27, 2011

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June 27, 2011

I was lucky to find the webside of "Prostate Cancer International" right after been diagnosed. At the time I knew nothing about the desease and did not learn much from the doctors treating me. So I read a lot and had a discussion with E.Michael ("Mike") Scott. His ideas about my treatment and his prompt answers to my questions (about the wight time to restart my ADT,for example) helped me a lot. Contacts with the other PC servivals ware also very useful.
Thank you "PC International"!

The Great!

I've personally experienced the results of this organization in...

I learned a lot and could understand my health problem

Ways to make it better...

If I had to make changes to this organization, I would...

I do not know

June 27, 2011

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June 27, 2011

Prostate Cancer International has been, for me, a great help to cope with my disease. Found their website very helpful and thrustworthy. Highly recommend this organization for man who have been diagnosed with PC and their family.
Regard Rinze.

The Great!

I've personally experienced the results of this organization in...

See above

Ways to make it better...

If I had to make changes to this organization, I would...

None.

June 26, 2011

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June 26, 2011

The site they run has provided invaluable information in the difficult time after my prostate cancer diagnosis. By providing a central location where fellow cancer patients can share information, and where doctors and others in the field can comment, it opens the door to many options that were not clear before visiting the site.

The Great!

I've personally experienced the results of this organization in...

Seeing people helped in their quest for more information to deal with their disease.

Ways to make it better...

If I had to make changes to this organization, I would...

As an online organization, they are poised to take advantage of the changes in the field. I don't think changes are needed except as an ongoing review of content and offerings.

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