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Reviewed by: breathin-easy
on 06/28/10:
Mission
Lymphangioleiomyomatosis, better known as LAM, is a progressive lung disease that affects women almost exclusively, usually during their childbearing years. LAM often goes misdiagnosed as asthma, emphysema, or chronic bronchitis. Scientists estimate that there could be as many as 250,000 LAM patients worldwide.The Foundation began in 1995 as a grass roots effort and has evolved into an organization that is described by the National Heart, Lung, and Blood Institute (NHLBI) as “a model for voluntary health agencies.” Headquartered in Cincinnati, Ohio, the Foundation is the only LAM organization which embodies all of the elements required to move LAM research from the laboratory to the clinic. The Foundation embraces women with LAM and their families, provides support and education, engages scientists and doctors, and raises funds for the study of LAM. With research as its central mission, the Foundation has elevated LAM from the ranks of rare and forgotten diseases to the forefront of pulmonary medicine. The LAM Foundation funded the first LAM research that resulted in the fundamental understanding of the genetic cause of LAM and the dawn of previously unthinkable hope: the first-ever LAM treatment trial!