International Rett Syndrome Foundation
Mission:
The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Results:
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bpaintman
02/21/12
IRSF has been helping families who have a child with Rett Syndrome for many years. It is an excellent source for information, ideas, therapies, advice and hope for Rett families. I'm a busy working mom and my daughter with Rett is 28 years old. I turn to this organization to keep me updated in ...
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donnacwright
12/16/11
I did not choose this path.....Rett syndrome chose me because my granddaughter, Naomi, has Rett syndrome! I am a grandparent representative and I'm also on IRSF's Family Advisory Board. I know first hand the effect Rett syndrome has on its victims and their families. I also know that IRSF has made a...
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Erica23
11/17/11
IRSF has been instrumental in my families ability to cope with the diagnosis of our daughter with rett syndrome. Right from the start their knowledgable and supportive staff was there for us to ask questions and lean and get involved in fundraising. IRSF has a crucial role in raising money for ...
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