CURE JM FOUNDATION

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836 Lynwood Dr
Encinitas
California 92024
USA
Website

TOP-RATED 2011

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Target demographics: Juvenile Myositis (JM), including Juvenile Dermatomyositis (JDM), Amyopathic Dermatomyositis (AMD) and Juvenile Polymyositis (JPM), is an autoimmune disease affecting approximately 5,000 children in the United States. Weak muscles and skin rash are the primary symptoms of JDM, while muscle weakness without a rash is the primary symptom of JPM. Children afflicted with AMD, on the other hand, experience the skin rash without the weakened muscles. Even within these three designations, JM affects every child differently. Some children experience a mild form of the disease, while others follow a more severe and potentially more debilitating course. Some of the more onerous secondary symptoms are calcinosis, vasculitic ulcers and contractures.

Board Members and Affiliation: Chairman ▪ Rhonda McKeever

Chief Financial Officer ▪ Jacque DenUyl

Secretary ▪ Patti Lawler

Director ▪ Shari Hume

Director ▪ Tom Hume

Mission:

As its name implies, the Cure JM Foundation, a 501c(3) non-profit organization, was created specifically to find such a cure, while also providing support and information for families suffering from JM.

Results:

It is believed that a third of the children will suffer from JM most of their life, while another third will experience temporary remissions and the other third will experience a permanent remission (no medications, no symptoms).

23 Reviews
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Jill M.

06/28/11

I have been involved with Cure JM for approximately 10 years. My youngest daughter was diagnosed with juvenile dermatomyositis and Cure JM was my lifeline. During my involvement with Cure JM I was a board member and am currently a Family Support Representative. This is an all volunteer ... more »

Ebward1997

06/23/11

A friend of mine was diagnosed with JDM last year. Being able to raise awareness of her disease through this organization has been an amazing opportunity! Cure JM has provided people all across the country chances to fight back. It is most definitely what I consider a cause worthy of recognition... more »

Jennifer S.

06/20/11

My 10 year old daughter was diagnosed Nov. 2010 with Juvenile Dermatomyositis. I don't know what we do without the Cure JM Foundation and all of it's wonderful support for those of us dealing with this rare (horrible) disease... more »

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