Login with Facebook
Latest Review
Reviewed by: survivorguy
on 02/24/10:
In August, 2004 I was diagnosed with a glioblastoma multiforme and was told that I had six months to live. Luckily, I was able to survive. Natalya contacted me and asked me to share my story with a new website that she was creating. Through BT Buddies, I have been able to share my experi... more
Mission
TO OFFER INFORMATION, INSPIRATION AND HOPE TO ANYONE AFFECTED BY A HIGH GRADE BRAIN TUMOUR IN THE UK.
Key Facts
Key Staff
Natalya Jagger - Founder and Trustee
Andrew McGill - Webmaster and Trustee
Rina Caffarella - Assistant webmaster
Tony Murphy - Trustee
Sarah Mawdsley - Trustee
David Grant - Trustee and 5 year Glioblastoma Survivor
Description
On Monday 10th May 2010, BT Buddies become a national charity. Founded by Natalya Jagger and Andrew McGill in March 2009 the organisation has grown rapidly and currently helps around 2,500 people per month through the website, email support service, face to face and online support groups. The BT Buddies trustees signed a governing document in September 2009 which states the following: BT Buddies Objectives: 1. To provide information, support and assistance directly or indirectly to people affected by a primary or secondary Brain Tumour. 2. To advance the education of the public, inparticular but not exclusively, patients, their families, carers and medical professionals about all areas relating to primary and secondary brain tumours. 3. Any other charitable purpose for the benefit of children with brain tumours, childhood Cancer and similar conditions as the trustees see fit.MISSION STATEMENT: TO OFFER INFORMATION, INSPIRATION AND HOPE TO ANYONE AFFECTED BY A HIGH GRADE OR PAEDIATRIC BRAIN TUMOUR IN THE UK.
BT Buddies is doing this by:
* Providing comprehensive information on adult high grade brain tumours.
* Providing comprehensive information on paediatric brain tumours of all grades.
* Promoting awareness and providing information about brain tumours to the general public.
* Providing a ‘Local Area Support’ service via our websites. Anyone visiting our websites will be able to request a list of support services available in their area. We will then research that particular area and put together information on local cancer support centres, counselling services, hospices, social services details and any other appropriate support services available in the area.
* Producing and making available a ‘Treatment Record File' to all who need one. The file will allow patients, their families and carers to keep a record of everything relating to their treatment including their treatment plan, test results, questions for doctors and more.
* Providing a ‘kit’ for children with a brain tumour to enable them to stay in touch with their classmates whilst they are absent from school. The kit will also include a Teachers Pack with information on many aspects of teaching a child with a brain tumour and supporting their classmates.
* Fundraising to enable us to provide all the services detailed above.