Breath of Hope Inc.

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Phone: 888-264-2340

PO Box 6627
Charlottesville
Virginia 22906
United States
Website

TOP-RATED 2010

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Target demographics: Families, anyone who may have a family in the future, grandparents, aunts, uncles - anyone who could have a relative with CDH.

Direct beneficiaries per year: Thousands have benefited from the programs and initiatives of Breath of Hope.

Someone who had 3 hours of volunteer time could: Edit our newsletter, create graphics, help families who have been affected by CDH, distribute our materials to hospitals or health care who may distribute it to families who could benefit. Help review or edit our materials.

Geographic areas served: United States

Mission:

Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.

Results:

Since 2008, we have either directly donated, help direct or encouraged, supported or assisted others to donate over $150,000 to Medical Research to benefit congenital diaphragmatic hernia research. Since 2008, we have had 34 States issue Proclamations or Resolutions and the US Senate to issue a Resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. We have distributed our medically reviewed materials, our expectant parent packages to hundreds of families and hospitals throughout the US and outside the US.

26 Reviews
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Carrie A.

07/07/11

Breath of Hope has continued to support CDH awareness even into my son's 2nd year of life. My son Carter was diagnosed at 23 weeks gestation, we spent 7 months in the NICU at Cincinnati Children's Hospital. To celebrate Carter's second birthday and the miracle of his life, we did a small ... more »

Anonymous CDH Mother

07/06/11

I have been a member of B.O.H .for 2 years now and I have contributed to this organization. While they did not help me personally in any form except a list serve, I nevertheless thought this a good charity and I trusted that Elizabeth Doyle Propst was a good leader. Last week a law journal ... more »

njdoyle

03/31/11

Awesome group of people who offer support, advice and prayers. A group that you can share your child's story and experiences or updates of your child because they have experienced it or they have a family member who is a CDH hero... more »

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