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Jodi O. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Jodi O.

April 5, 2013

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1 previous review
September 27, 2012

I have been apart of the Power of Pain Foundation since its inception in Nov. 2006. I have seen this charity grow over the past 6 years and help thousands of people get the resources and information t... more

April 5, 2013

In 1990 I was diagnosed with Reflex Sympathetic Dystrophy (RSD). In 2006 I became friends with Barby Ingle, who also has RSD. Later that year, her family founded the Power Of Pain Foundation a 501-C-3 charity to help those in Chronic Pain due to a Neuropathy condition. The POPF offers education, awareness, and help. Barby has personally helped me understand RSD more in the last 6 1/2 years, then I did in the 16 years before meeting her. The POPF has a gift of reaching people, and showing them that there is hope and help. The POPF offers classes and events not only in AZ, but all over the US. In 2010 I became an executive board member and since the beginning with a start of 4 board members, they now have 14 ambassadors, 8 executive board members, 13 board of directors, and over 80 event volunteers in several states, that can also teach classes, and host events. The POPF teaches classes to caregivers, patients and providers many of them lack education on chronic pain. The POPF Chairman, Barby Ingle has written 4 successful books on Chronic Pain, and published several articles. She has even done some television, trying to educate the public. I want to say Thank You Barby Ingle and the Power of Pain Foundation, We love you for all you do to advocate for everyone with pain.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

September 27, 2012

I have been apart of the Power of Pain Foundation since its inception in Nov. 2006. I have seen this charity grow over the past 6 years and help thousands of people get the resources and information they need in their own journey. I am honored to be an executive board member and look forward to helping in what ever ways I am able over the many years to come.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Barby I. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Barby I.

April 5, 2013

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2 previous reviews - show all
August 12, 2012

It has been a great pleasure working with the Power of Pain Foundation on so many projects and events to help the pain community. One of the things I love best is that the POPF works with so many pati... more

April 5, 2013

I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. I am so excited to now be the Chairman of the Power of Pain Foundation and look forward to being apart of it for many more to come. We have a reach of thousands of patients with all sorts of chronic pain conditions that we help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

August 12, 2012
1 person found this review helpful

It has been a great pleasure working with the Power of Pain Foundation on so many projects and events to help the pain community. One of the things I love best is that the POPF works with so many patients with different types of Neuropathy conditions. Their resources are top notch and their mentoring program is great as well. People can get involved at many different levels with the POPF and I am glad to be a volunteer and donor for POPF!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 5, 2011

I have been working as a volunteer for the Power of Pain Foundation since 2007. I am involved with the awareness program, motivational and mentoring program and social outings programs. I have seen first hand how the POPF helps patients with financial and emotional supports, provides resources to the pain community and stays on top of cutting health information in the pain community. The patients, caregivers and healthcare providers involved in the POPF are great assets. The POPF has a unique approach to working with the pain community by giving views from all three perspectives. We work on improving quality of chronic illness care, direct supports, and public and professional awareness of the issues and challenges of living with chronic pain on a daily basis.

The Great!

I've personally experienced the results of this organization in...

As a patient mentor I have personally experienced the good that comes from when a bad situation leads patients and their support systems into taking action and gaining the tools to become their own best advocate. I have been able to see how the patient grants help our grantees and their gratitude when someone shows them that there is help, hope and people do care. I help people turn their pain to power!

Ways to make it better...

If I had to make changes to this organization, I would...

Increase awareness events and funding for patient grants. This can only be done thorugh donations and grant writing. I wish the POPF could help more people, because I know how much it has to offer the pain community on a grand scale.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Their events are very organized and professional. I would change their budget to a larger one so that more people could recieve the benefits of the POPF.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

I have meet so many wonderful patients, caregivers and healthcare professionals from around the country. I have learned how to create action oriented change to better the pain community. I have learned how much personal interaction can help pain patients.

How did this volunteer experience make you feel?

I am so happy to be able to volunteer for the POPF because it makes me feel that I am doing something. I have power to become my own best advocate and I can now teach others that they too can do this!

When was your last experience with this nonprofit?

2011

JsWilkes - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

JsWilkes

November 9, 2012
1 person found this review helpful

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November 9, 2012
1 person found this review helpful

In the spring of 2009, I was diagnosed with RSD. At that time, I had very little knowledge of this painful neuropathy and for the most part, was lost and unsure about how I was going to function with this debilitating form of chronic pain. Later that year, I was introduced to Barby Ingle and her husband Ken, and that's when I encountered a turning point in my life. Barby is the Executive Director of the Power of Pain Foundation and it was through her and this organization that I found hope, guidance, and a surety that I would be able to move forward with my life. I have personally witnessed the powerful and positive impact that this foundation has had in the lives of many people. The Power of Pain Foundation has an unwavering and stalwart dedication to educate and help those of us that are suffering from several different forms of chronic pain. I am extremely honored to be given a chance to become more associated with the Power of Pain Foundation as a board member and give of myself just as Barby and others have given of themselves for me. I will be forever grateful to the Power of Pain Foundation and its members for how this organization has helped me find power over my pain.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Chris84 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Chris84

October 29, 2012
1 person found this review helpful

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October 29, 2012
1 person found this review helpful

With the Power of Pain Foundation, I have the distinct pleasure of working with some of the most selfless and motivated people that I have ever met. On our collective quest, we seek to affect change in the lives of a great number of people who have been stricken with one of many highly misunderstood, yet EXTREMELY painful neuropathic diseases or illnesses. I marvel at the strength and dedication of the POPF staff who keep this charity thriving and growing , while many of them either suffer from chronic pain illnessess, or support a loved one who does. This foundation continues to open new doors to raise awareness, provide patient and familial support, and preserve hope. I am very proud to be affiliated with Power of Pain and am looking forward to all of plans around the corner.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

JasonJohnson - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

JasonJohnson

October 28, 2012
1 person found this review helpful

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October 28, 2012
1 person found this review helpful

I have seen the Power of Pain Foundation help people at a personal level now for over 2 years. I have seen many charities promote awareness of a good cause, but none have the motivation I see when I look at POPF. This foundation seems to grow year after year and and help more and more people as their knowledge increases so does the desire to help more people. I refer anyone I know or come across that has indescribable pain to visit powerofpain.org for resources and knowledge

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Suzanne24 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Suzanne24

August 12, 2012
1 person found this review helpful

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August 12, 2012
1 person found this review helpful

I have received more support from popf than from my own family. I have donated a little bit, and will continue to because I get first hand answers and support from Barby

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Trudy T. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Trudy T.

July 18, 2012
1 person found this review helpful

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July 18, 2012
1 person found this review helpful

My favorite thing about the POPF is their helping people at a personal level. Not pie in the sky where you never know where the money goes, but people-to-people. Since getting RSD/CRPS in 2005, I have worked with many organizations that promote awareness. None come close to what the Power of Pain does as far as support, information and their program for raising awareness at the community level is unparallelled.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Wendy30 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Wendy30

July 16, 2012
1 person found this review helpful

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July 16, 2012
1 person found this review helpful

i have had crps/rsd for nearly 5 years,and with it being a rare syndrone i had to try and find out as much information and help as possible ,and ive had help with explaning treatments and medication ,ans speaking to other sufferers from around the world really helps to understand and accept it which is very hard to do ,if ive had any concerns the popf has helped to set me straight x

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Okay

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Karen83 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Karen83

July 16, 2012
1 person found this review helpful

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July 16, 2012
1 person found this review helpful

I have RSD and this site has helped me and my family understand this little known disease. It has made me feel that I'm not alone and has helped me learn to deal with this disease

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Twinkle W. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Twinkle W.

July 16, 2012
4 people found this review helpful

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July 16, 2012
4 people found this review helpful

I would recommend the Power of Pain Foundation to anyone with Chronic Pain, a Neuropathy condition or someone needing to learn about them especially Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome/Causalgia. I became a volunteer working for this amazing Foundation early this year so that I can help continue their work in California. I had the opportunity to meet Barby Ingle and her husband Ken at the 6th Annual Neuropathy Action Awareness Day hosted by the Neuropathy Action Foundation (NAF) last month. Barby is as kind in person as she has ever been online. She works so hard even when she's going through her own medical treatments when instead she should be resting or taking days off. She lives with the same pain we do and I admire her. The POPF has pain related information and educational packets to be given away free at all their awareness events. The Board of Directors are wonderful. The Power of Pain Foundation not only helps the patients but caregivers, too. They answer everyone's questions and assist in any way they can. I'm proud to belong to such a great team.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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