PMG Awareness Organization, Inc.
Rating: 4.88 stars 69 reviews
Location: P.O. Box 37301 Jacksonville FL 32236 USA
Results: Reached thousands of people globally through our website and social networking venues Developed an informational pamphlet to be distributed to families and health care providers in all areas of medicine and therapies in English and are currently translating it to all major languages Designed the “Contact a Family” program; an international list of parents and grandparents willing to help other families cope with the diagnosis and issues related to PMG Recruited an incredibly talented and diverse Board of Directors and Executive Advisory Board Collaborated with key nonprofit educators and partners Obtained our Incorporation as a nonprofit organization based in Jacksonville, Florida Applied for our IRS 501(c)(3) application for a charitable organization
Target demographics: All those affected by Polymicrogyria (PMG) as well as the public and medical professionals in general.
Direct beneficiaries per year: Held our first biennial family convention, received an official proclamation for Polymicrogyria Week every March, provided support via Facebook group, email, and telephones, networked and formed alliances with many organizations including American Epilepsy Society, American Brain Coalition, NIH, NINDS, and more.
Geographic areas served: The U.S. and internationally
Programs: Biennial PMG Awareness Family Convention, Advocacy, Awareness Outreach, Support for Families, Research
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1 person found this review helpful
Great source of information for families who have
children recently diagnosed with PMG. I don't know
what my family would have done without them.
I personally have not be affected by this, but I do know a family that has. When they found out they did not know where to turn or what help was out there. With help from organizations like this one; they are able to get answers to their questions. Also, they can get support from others whose child or family member has PMG. I am happy to help this organization out with what I can. Keep up the good work.