1 person found this review helpful
PMG Awareness Organization, Inc.
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Featured Review
September 24, 2012
1 person found this review helpful
This group provides sooo very much to its members: it soothes us in time of crisis; it gives us hope when we see what some of these children have achieved; it gives us extra prayers; and it helps to educate not only those of us with pmg kids, but the public as well. Kudos!
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
October 20, 2012
A very resourceful site, all my email questions/comments were answered quickly and appropriately. I am so thankful to have a "virtual gathering place" with other PMG families!
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
2 people found this review helpful
October 1, 2012
2 people found this review helpful
I was warmly welcomed into this amazing organization. My son has polymicrogyria, and when I learned of this, I went to the internet to seek the support of other parents of children with PMG, and I found next to nothing. PMG Awareness is a place where we all understand the challenges and the joys of raising a child with PMG. Plus, the organization is doing a wonderful job tapping into the RESOURCES and funding available to us as parents. GOOD JOB PMG Awareness, and thank you for all that you do!
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 25, 2012
1 person found this review helpful
What a wonderful organization. As far as I know it's the only one for PMG. I love being a part of their group, it's like extended family. You always have someone to turn to who is or has gone through the same experiences. I love that a family started this organization after a family member was diagnosed, you know the passion is there.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 24, 2012
1 person found this review helpful
This is the first organization to target PMG specifically. Its intention is to promote awareness of PMG as well as all that it could entail. It offers support to families newly diagnosed as well as families who are currently diagnosed. It brings a lot of people together to learn more about PMG and help families and friends affected by PMG cope with the diagnosis.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 23, 2012
1 person found this review helpful
Great organization that is bringing awareness to a rare form of brain malformation. The children and families it serves finally have a resource that helps them navigate the special journey they are on.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 23, 2012
1 person found this review helpful
This group is a great support to me and my family as we struggle through this life with our special needs child. Thank you!
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Will you volunteer or donate to this organization?
Unsure
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 23, 2012
1 person found this review helpful
I have been amazed by the dedication and selflessness of the people associated with PMG Awareness. They daily strive to educate others about PMG and it's causes , symptoms and needs. They daily seek out families needing help who have a child with PMG...they also support other nonprofits in spreading the word nd getting people involved in the hopes of finding a cure, raising awareness such as Epilepsy foundation, etc. I am impressed with their comraderie, family mentality and their sincere endeavors. They deserve to be spotlighted so that others can be as touched and aided by their group!
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 23, 2012
1 person found this review helpful
I would have been lost without this group. They have helped my family navigate my son's PMG diagnosis. They are always there for me and my son. I know I have somewhere to turn when I have a concern. Their support and dedication is invaluable to the children with PMG. THEY NEED THIS GROUP TO ADVOCATE FOR THEM AND THEIR FAMILIES.
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
1 person found this review helpful
September 23, 2012
1 person found this review helpful
I absolutely love this group! It means the world to find others who are going through the same thing you are. You are definately not alone. I enjoy reading about the these wonderful children, and the parents are amazing as well.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
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Thank you so much Nadine, for taking the time to share your thoughts with us. It means so much to us!