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August 4, 2009

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August 4, 2009

Planet Cancer is the BOMB!! I would never have made it through all the tough times (and there still are some) after being diagnosed with Thyroid Cancer without PC! The website is wonderful. The people I've met are wonderful. The retreats are WONDERFUL!! If you're a young adult, and find youself fighting cancer, please find PLANET CANCER

The Great!

I've personally experienced the results of this organization in...

the website. My own sanity. The firends I've met.

Ways to make it better...

If I had to make changes to this organization, I would...

be psyched.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people I've met.

The kinds of staff and volunteers that I met were...

AWESOME.

Ways to make it better...

Can't think of any!

When was your last experience with this nonprofit?

2009

July 31, 2009

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July 31, 2009

This review is on behalf of my late husband, Mike Moore. Diagnosed in 1995 at the age of 24 with Hodgkin's Lymphoma while in the Army, Mike definitely felt isolated because of his circumstances but also because he took a different approach to cancer than others he encountered. He laughed in it's face, didn't let it consume or define him, and wasn't one to sit in a support group with people his parents' age or older. In February 2007 Mike and I were fortunate enough to attend the inaugural Planet Cancer Couples Retreat. Mike was hesitant to attend a gathering where the focus was cancer (I mean, the majority of his prior decade was spent in a hospital so I didn't blame him) but once we were there, he knew THIS was different than anything else he'd ever experienced. He instantly bonded with his fellow diagnosed, even though we didn't really talk about cancer the whole first day. There was a shorthand and deep understand they shared it and was wonderful to see him connect when, for so long, I know he felt “apart” from his peers as they continued on in their careers, growing their families, and moving through the “normal” milestones of young adulthood. Unfortunately Mike’s cancer was persistent and, after almost twelve years of constant treatment (multiple PSCTs, gallons of chemo, radiation, clinical trials…you name it), his body succumbed to a disease his spirit never gave in to. I know that if Mike were still around to experience the wonderful things Planet Cancer continues to do—from the creation of the social network MyPlanet to the advocacy initiatives bringing attention to YA oncology, the upcoming book, and especially new Top 10 lists (always his fav)—he’d be writing this review himself. My hope is that, with the spotlight Planet Cancer shines on YA issues, the perils & pitfalls unique to young adult cancer will be more readily recognized and addressed resulting in more widespread peer & facility support, an increase in successful treatment, and ultimately an improvement in the stagnant survival rates of young adults with cancer.

Photos

The Great!

I've personally experienced the results of this organization in...

the faces & lives of it's participants and members.

Ways to make it better...

If I had to make changes to this organization, I would...

turn it back over to Heidi.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the space they create to laugh amongst and even because of difficult situations.

The kinds of staff and volunteers that I met were...

compassionate, deeply committed, personally invested, funny, tireless, innovative, witty, and now my friends.

If this organization had 10 million bucks, it could...

ensure that no young adult felt isolated after a diagnosis with cancer in addition to furthering the vital expansion of YA oncology programs & research.

Ways to make it better...

the survival rates for young adults were improved. Mike would still be involved with the organization if he were alive.

In my opinion, the biggest challenges facing this organization are...

recognition by the larger medical & oncological community that YA Oncology issues need attention.

One thing I'd also say is that...

I've talked enough. Go check them out and experience for yourself.

When was your last experience with this nonprofit?

2009

July 14, 2009

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July 14, 2009

I was recently diagnosed with a brain tumor and this social network for young people afflicted by various cancers helped me connect with other people that had the same or similar diagnosis as me. This service is invaluable in allowing young people with an uncommon and stigmatized shared experience to come together and offer support and hope to each other. This service was a fantastic help to me as a recently diagnosed person whom had so many unanswered questions and felt so isolated and alone. This very simple idea helps so many people around the world by connecting us. Planet Cancer unites young survivors in solidarity as opposed to being isolated in fear.

The Great!

I've personally experienced the results of this organization in...

my decreased anxiety and fear through connecting with other young people whom shared my experience.

Ways to make it better...

If I had to make changes to this organization, I would...

try and spread the word

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the ability to connect with others for support, information and commiseration.

The kinds of staff and volunteers that I met were...

other survivors

If this organization had 10 million bucks, it could...

effectively announce it's existence and thus announce to the world the ever increasing amount of young people who are battling cancer.

Ways to make it better...

there were more people using the service

In my opinion, the biggest challenges facing this organization are...

lack of publicity

One thing I'd also say is that...

PC demonstrates how many young people are fighting cancer and can help increase awareness to the public that Cancer is no longer a disease of infants and elderly but is devestating many vibrant people in the prime of their lives.

When was your last experience with this nonprofit?

2009

July 14, 2009

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July 14, 2009

I was diagnosed with ovarian cancer at the age of 36. This meant that I was at least 20 years younger than anyone else I met who was going through treatment. Planet Cancer helped me to connect with people dealing with the same things that I was. I cannot say enough good things about this organization!

The Great!

I've personally experienced the results of this organization in...

the community that they have built.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the retreats I have been able to attend.

The kinds of staff and volunteers that I met were...

FABULOUS! AWESOME! WONDERFUL!

If this organization had 10 million bucks, it could...

Help even more young adults facing cancer, allowing them to survive well and give back to society.

When was your last experience with this nonprofit?

2009

July 7, 2009

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July 7, 2009

I was diagnosed with Hodgkins lymphoma when i was 28 years old. i noticed that i was the youngest person in the chemo suite 9 days out of 10. I couldnt relate to the older generation of people and they couldnt me. i have since been through two seperate other cancer diagnosis and only up until this year did i find planet cancer. it helps to have a place where your peers can respond to your questions and where the conversation is pertinent to your life as a young adult cancer survivor.

The Great!

I've personally experienced the results of this organization in...

the number of young adult cancer survivors that are members of Planet Cancer and from hearing their stories and how Planet Cancer helps them cope.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

learning that there are others out there who struggle with the same subjects that i do as a young adult cancer survivor.

If this organization had 10 million bucks, it could...

reach out to many more young adult cancer survivors and offer support both financially and emotionally

Ways to make it better...

I would have heard about it sooner!

When was your last experience with this nonprofit?

2009

July 7, 2009

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July 7, 2009

I am so grateful that Planet Cancer exists. This group has provided a HUGE support system for me. That in it self is priceless. The emotional side is often pushed to the side, but I believe that it plays a big role in surviving cancer. I felt so alone,isolated,and young.The minute I logged on to this sight I was immediately surrounded with love and understanding. "yes finally someone out there gets me" The best part of it is that it is free for me to log on everyday and get the support that I need. Even when I fly to my treatment center by myself, all I have to do is log in and boom I am no longer all alone. They have also brought a large amount of knowledge and fight for better treatment to the young adult cancer community I think I would be lost with out this organization..

More feedback...

If this organization had 10 million bucks, it could...

help the young adult cancer community strive for better survival rates, by raising awareness, helping young adults find and or stay insured, providing funds for cancer patients to travel for treatment. The possibilities for this organization are endless.

When was your last experience with this nonprofit?

2009

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