Pediatric Brain Tumor Foundation Of The United States Inc

Rating: 3.5 stars   4 reviews

Address:

302 Ridgefield Court Asheville NC 28806 USA

Mission:

The pediatric brain tumor foundation is a 501(c)(3) nonprofit charitable organization that seeks to find the cause of and cure for childhood brain tumors by supporting medical research, increase public awareness about the severity and prevalence of childhood brain tumors, aid in the early detection and treatment of childhood brain tumors, support a national database on all primary brain tumors, and provide educational and emotional support for children and families affected by this life-threatening disease.

Programs:

In 2014, the pediatric brain tumor foundation:- paid $1. 8 in research and related grants - served 6,190 family support program clients- awarded 100 college scholarships - held one radio-thon that reached more than 130,000 listeners - participated in patient advocacy efforts at the federal level with the alliance for childhood cancer - held 37 ride for kids program events around the country, attended by over 9,000 ride participants and volunteers. - had 328,746 page views to our websites, www. Curethekids. Org and www. Rideforkids. Org - mailed 66,677 national newsletters and annual reports - sent 858,377 informational emails about our activities, programs and events. - provided funding to the central brain tumor registry of the united states, the brain tumor epidemiology consortium, and the scientific journal neuro-oncology- provided direct financial aid to families through our georgia chapter office - 175 families with $204k through 21 hospitals in 9 states. During the second year of our 2013-16 strategic plan, we made critical investments of financial and human capital to achieve six key objectives, including growing existing fundraising programs and creating new revenue sources to fund more research. We also intentionally invested in creating a network of local chapters to reach and serve more families affected by childhood brain tumors. To diversify revenue, we launched a new signature fundraising event, the starry night 8. 5k walk/run; established new corporate partnerships; created an annual and major giving program to increase non-event revenue; and introduced low-cost, efficient online fundraising pages for community members and endurance athletes. The ride for kids program worked with motorcycle industry experts to increase new and return participation; cross-promoted with the starry night program and added components to increase non-motorcycle participation. Our research investment strategy included establishing a framework for prioritizing funding; creating a research advisory network to provide highly informed perspectives on the biomedical research enterprise; and broadening the scope of our research funding and expertise. We began to expand our family support program offerings, including hosting our first educational conference for survivors and parents. On the organizational side, we recruited new board members from the legal, financial services, insurance marketing and hospitality industries; increased board involvement in fundraising and established chapter offices in georgia and illinois. In 2014 we created an integrated marketing and communications plan; established stronger brand identity by developing branded websites, fundraising events and educational literature; and expanded communications resources to support new programs and initiatives such as chapters and online fundraising. We increased our use of social media to communicate mission-driven stories and we developed new and updated educational resources for families.

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More Info

(828) 665-6891
www.pbtfus.org

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Reviews for Pediatric Brain Tumor Foundation Of The United States Inc

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Role: General Member of the Public
Rating: 1 stars  

I personally believe the Traynor families salaries are too high to be charitable and too tightly controlled. Their are much better charities out there for research! Donate directly to the researchers at Dana Farber, St. Judes, Johns Hopkins etc! Brain Tumor Parent

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Some

When was your last experience with this nonprofit?

2012

 
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