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48 Reviews
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February 2, 2011
1 person found this review helpful

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Review from Guidestar
February 2, 2011
1 person found this review helpful

PANDORA rocks hard! They do a lot with a limited budget. Noone takes any salary. PANDORA lobbies in DC and state capitols- successfully. One nei disease center has been set up in NJ. They are working on one in FL. They fundraise in the general population- walk a thons etc- make grants for research. Their brand of advocacy is effective and ME patients are in dire need of it. PLEASE SUPPORT PANDORA ANY WAY YOU CAN! Thank you!

The Great!

I've personally experienced the results of this organization in...

Increase research and clinical activity on ME around the USA.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it bigger! Please help with your financial and other support!

October 31, 2010
1 person found this review helpful

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October 31, 2010
1 person found this review helpful

I have severe ME-CFS & have had the condition for 50 odd years now, it waxes and wanes. For what ever reason the government agencies have, on the whole, been dismissive of this illness since 1970. PANDORA seems willing to stand up to these agencies in a way that our other national group has not. In some instances they can be a little heavy handed but considering how lax the other national org has been, that might be a good thing. They will have to recognize that people must be allowed to choose what their own paths will be; but this problem could be due to the youth of the organization.

The Great!

I've personally experienced the results of this organization in...

A little early to expect results, but they have made great efforts & seem poised to do more. They are deeply committed to the cause & did assist in getting a boy reunited with his family after he had wrongly been removed by DSS.

Ways to make it better...

If I had to make changes to this organization, I would...

Have them see that reasonable people can disagree, and allow people to choose whether or not they want to participate in a given project. No one is right 100% of the time.

October 31, 2010

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October 31, 2010

PANDORA and founder Marly lead a sincere effort to boost hope where many MDS, many government officials and some NGOs have already raised hands up in the air or are in plain denial. Foundations like PANDORA keep the hope alive which often makes dreams become reality. Thank you Sincerely C. Kesta Executive Producer / Director "The Chronic Pain Educational Documentary Series" http://www.head2toe.tv

The Great!

I've personally experienced the results of this organization in...

By talking to Marly and by witnessing the results of her efforts.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide them with more funding

October 31, 2010
1 person found this review helpful

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October 31, 2010
1 person found this review helpful

I am a board member and ex-President for a CFS/ME Association and I am proud to be working with Pandora to help bring awareness and education to CFS/ME/Fibromyalgia patients and the general public. Everyone at Pandora are dedicated, caring and professional individuals who are fighting hard to bring recognition to very misunderstood illnesses. They are always happy to reach out to anyone in need and work with any organization that helps people with Neuroendocrine-Neuroimmune illnesses.

The Great!

I've personally experienced the results of this organization in...

Several advocacy and education efforts and conferences

Ways to make it better...

If I had to make changes to this organization, I would...

give them more funding so they could further their mission....

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

Although many in the organization are fighting illness themselves, they still have the ability to reach out and help so many people...

When was your last experience with this nonprofit?

2010

October 30, 2010
1 person found this review helpful

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October 30, 2010
1 person found this review helpful

P.A.N.D.O.R.A. is an organization that reaches out to help people with neuroendocrine immune disorders. Based in Florida, they are known both nationally and internationally for their amazing work. P.A.N.D.O.R.A. is there to help, to foster research, to share current data, to extend a hand in support. Other organizations addressing similar issues have benefited from the encouragement provided to them by P.A.N.D.O.R.A. As a member of one of those organizations, I am thankful for the assistance we have received, which in turn increases patient outreach.

The Great!

I've personally experienced the results of this organization in...

the support extended to our organization

Ways to make it better...

If I had to make changes to this organization, I would...

not manke any.

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3 hours of volunteer time for this nonprofit will...

Help with filing in the office. Mailing letters to congressmen, participate in the physician grass roots campaign "Doctors need to know"; post our advocacy programs an efforts by sharing them with Facebook, Twitter and other community patient forums; make calls and or e-mail to patients who are homebound and lonely. Volunteer