Patient Advocate Foundation, Inc.

Rating: 3.94 stars   17 reviews

Issues: Education, Health, Cancer

Location: 421 Butler Farm Road Hampton VA 23666 USA

Mission:

Patient Advocate Foundation was established in 1996 as a national 501(c)3 organization with a mission of “safeguarding patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.” PAF serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through case managers, doctors and health care attorneys.


Programs: Patient Advocate Foundation's Co-Pay Relief, A Patient Assistance Program On 4/1/04, PAF opened Co-Pay Relief, a cash assistance program to provide co-payment assistance for medically and financially qualified insured patients who have prescription drug coverage but cannot pay to access their prescription drug coverage. Support is currently available for patients with Breast, Lung, Brain, Colon, Kidney, Head and Neck, Pancreatic and Prostate Cancers, Autoimmune Disorders, Diabetes, Lymphoma, Sarcoma, Macular Degeneration, Myelodsyplastic Syndrome, Myeloma, Osteoporosis and Chemotherapy Induced Anemia/Chemotherapy Induced Neutropenia. This premier program has been approved by the Office of the Inspector General. A Modification to Advisory Opinion 04-15 was received on 8/29/08, increasing the number of available disease categories from 27 to 43. Hispanic/Latino Outreach Program The Hispanic/Latino Outreach Program was implemented in 2001 with offices in New York and California staffed by bi-lingual case managers. This program seeks to improve access to healthcare for the Hispanic/Latino community. PAF also provides educational materials in Spanish. When the program was implemented in 2001, 1.24% of all PAF patients were Hispanic/Latino. For FY 07/08, 8.62% of all patients served were of Hispanic/Latino descent. National African American Outreach Program PAF's National African American Outreach Program was initiated towards the end of the 2004 fiscal year. This program is designed to reduce health care disparities and assist individuals by disseminating information to those who are generally unable to receive reliable health care. In FY 07/08, 17.07% of the patients served by PAF are African American. Local and National Outreach Initiative During FY 07/08, PAF staff attended over 600 local, regional or national conferences either as a participant or as an exhibitor. This included conferences such as the National Sickle Cell Disease Program Conference, the Association of Oncology Social Workers Conference, The Oncology Nursing Society Annual Meeting, The Association of Community Cancer Centers Conference, The National Comprehensive Cancer Network Annual Conference and American Society of Clinical Oncology. Publications Department The newest publication is within PAF's "A Greater Understanding..." series of brochures entitled "Second Opinions: Know Your Rights and Options." The majority of PAF authored publications are also available in Spanish. All of PAF published educational publications are provided at no cost and can be obtained via internet by downloading from the PAF website, www.patientadvocate.org. Med CareLine Division In November 2006, PAF launched the Colorectal CareLine (CCL), a patient/provider hotline, designed to provide sustained assistance to patients who have been diagnosed with colorectal cancer and are seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs. In November, 2008, the second Med CareLine program was launched, the Lymphedema CareLine to assist breast cancer patients with access to a test the determine if the patient is prone to lymphedema and through early detection, can almost always avoid the disease. PAF/American Cancer Society Partnership In May 2008, PAF entered into a partnership with the American Cancer Society to receive referrals from the ACS Patient Navigator Program. These services are an extension of the services provided by ACS. The Lance Armstrong Foundation In FY 07/08, PAF celebrated it's 4th year of the partnership with the Lance Armstrong Foundation and the LAF LiveStrong SurvivorCare Program. Patients who reach out to LAF and are in need of social service programs and access to healthcare are referred to PAF for assistance. Since inception of the partnership, PAF has assisted 5,876 patient referrals.
2013 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I started my initial contact with the Patient Advocate Foundation in November of 2011 when I found out that I needed to have a surgery for a gastrointestinal issue. I am without insurance and have been for quite some time and the surgery that I needed to have was done by a doctor almost 3 hours away. The surgery was very expensive and in my initial contacts with the hospital and the company who makes the device that I needed to get to have the surgery I failed at getting financial assistance approval.

After an online search for patient services I stumbled upon PAF and was able to get a case manager within a week. The case managers communication was always consistent and when communication was needed with an outside person she was always on conference with me, it made it much easier to deal with.

It took almost a year with phone calls between us and the hospital, my doctor and the company who makes the device, but I was finally able to have the surgery. Prior to the surgery, my case manager was able to assist me with finding transportation and housing. I owe everything to PAF for sticking with me through this long process that seemed like would never get resolved and for following up with me to make sure everything was good to go.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 4 stars  

My name is Patricia Adkins and I am 27 year old cancer survivor! Last year (2012) I became a client with PAF after I was diagnosed with a rare cancer. My case manager , Tanya Walker was and still is fabulous!!! Tanya and I share a special bond in that we are both nurses. I knew that the person on the other end of the phone truly understood what I was going through. Tanya helped me navigate through the ever changing insurance world, checking on claims to see what their status was, and she explained what would happen next, as far as what I would have to pay once everything settled out and how long it may take for claims to actually finish filing. A year later I can say without a doubt I couldn't have done it without her. It was so comforting to know that I had someone else in my corner paying attention to all the "yucky" stuff so I could focus on recovery! Thanks Tanya! you rock!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 5 stars  

I am a patient volunteer with the Patient Advocate Foundation and do guest speaking on occasion. If it were not for PAF, I would not be able to do so. I have been in the battle against cancer since 1999 and in 2006 came up against my most challenging battle. I am currently fighting Stage IV Colon Cancer and found myself getting deeper and deeper in debt with patient copays until I came in contact with the Patient Advocate Foundation.
Their patient assistance program has been very helpful in my battle against cancer, as it gives me one less thing to worry about. If I had to keep worrying about the terrible debt of copays, I would have given up my fight 4 years ago. Thanks to the Patient Advocate Foundation, I can continue my battle, and still receive assistance with my copays.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Review from CharityNavigator
Rating: 1 stars  

My wife is a cancer patient incurring monthly medical costs, excluding the physicians's charge, in the amount of $8,000. or more on average. We live on Social Security benefits and have no pension income. We have very minimal 401 K income.
All during 2012, we were of the belief that Co-Pay Relief would provide assistance toward some of the medical expenses based upon contact with them by mail, telephone, and personal contact at the doctor's office with their representative. At one point we were assured that there was $5,000. "in her account".
She has now (3/12/2013) received a letter stating that, "your award has been rescinded and your account has been closed at this time". The reason given was that "there had not been any activity on your account in 120-Days despite our attempts to encourage expenditure submissions". The truth of the matter is that the monthly payment we make, via check, is given directly to Co-Pay Reliefs' employee at the doctor's office.
We are told that on August 8, 2013, we could re-apply in that same letter.

I begin to question the legitimacy of this charity!

These are the most evasive and duplicitous people with whom I ever dealt.

Robert Niersbach

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 1 stars  

I applied for copay assistance from this organization by following all of the instructions that were provided. I tried numerous times to get a hold of them, but their phone lines were either closed or nobody answered. I sent a few emails that were never acknowledged, then I receive a notice explaining that the fund I applied for was full. This seems like some sort of scheme as the average person can't get through the process and they wont return my calls or emails. Looks like I am not the only one having this problem.

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

Unlikely

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 1 stars  

I have had a similar experience to the previous review. I submitted an application, sent in required documents, then waited to hear back. No one contacted me for a month, so I called in. The lines are always busy, and any emails I send asking about my application status are not returned. This agency really needs to polish up its communication with patients.

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2012

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Rating: 1 stars  

I have been trying to contact the representative I was assigned to for several weeks. When I call he is never available. I asked to be assigned to another person and was treated rudely.

I've personally experienced the results of this organization in...

Unable to make contact despite many attempts.

If I had to make changes to this organization, I would...

Return phone calls in a prompt manner.

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Review from CharityNavigator