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April 27, 2013

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April 27, 2013

I have worked with FSH for many years now. Having done years of events and fundraising, Terry and Rick reached out to me when they first started this charity years ago. I have been a donor and volunteer for many years. I can tell you that there is not a group of people that work harder to make their event a success and reach out to anyone they can for help. I asked once "how do you keep doing this" knowing year after year of putting events on is brutal work and Terry said "it's our son". They are searching for a cure and helping so many people in the WORLD along the way...not just their son. They are awesome people and doing great things.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

June 8, 2010

This is a wonderful organization! Their annual Silent Auction fundraiser raises hundreds of thousands of dollars to support FSH Muscular Dystrophy research. This organization has single handedly supported FSH Research at the University of Washington through it's efforts. Additionally, they have developed a wonderful video piece to increase public awareness about FSH Muscular Dystrophy.

The Great!

I've personally experienced the results of this organization in...

Their support of FSH Research and their increasing awareness of FSH Muscular Dystrophy. As a person with FSH, this organization gives me hope that someday there will be a treatment and/or cure.

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When was your last experience with this nonprofit?

2010

October 20, 2009

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October 20, 2009

This charity is run by Terry Colella and her vast army of volunteers. Their group has been doing this for 6 years now without taking a penny in salary for the hundreds of hours of volunteer work. I have the disease and this really gives me hope. Every dollar is important for research but also important for the souls of thousands of muscular dystrophy patients. Please help us find a cure. On behalf of all of us that have trouble rolling out of bed every morning because our muscles have faded too much... Thanks for donating!

The Great!

I've personally experienced the results of this organization in...

2005 2006 2007 2008 2009

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What I've enjoyed the most about my experience with this nonprofit is...

100% of the money goes towards research. Mnay other charities have high paid CEO's and Officers. This one is different. All of the cash donated goes towards a cure.

The kinds of staff and volunteers that I met were...

Generous, courteous and friendly.

If this organization had 10 million bucks, it could...

Fund a major research study.

When was your last experience with this nonprofit?

2009

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Help write letters

Talk to friends & tell others about this condition.

Ask their favorite restaurants, shops to donate an item or gift certificate for the annual fund raising auction.

Write a letter to their Senators asking for increased NIH funding for FSH research.

Make a donation to Friends of FSH Research.