Pacific Northwest Friends of FSH Research
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June 8, 2010
This is a wonderful organization! Their annual Silent Auction fundraiser raises hundreds of thousands of dollars to support FSH Muscular Dystrophy research. This organization has single handedly supported FSH Research at the University of Washington through it's efforts. Additionally, they have developed a wonderful video piece to increase public awareness about FSH Muscular Dystrophy.
The Great!
I've personally experienced the results of this organization in...
Their support of FSH Research and their increasing awareness of FSH Muscular Dystrophy. As a person with FSH, this organization gives me hope that someday there will be a treatment and/or cure.
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When was your last experience with this nonprofit?
2010
October 20, 2009
This charity is run by Terry Colella and her vast army of volunteers. Their group has been doing this for 6 years now without taking a penny in salary for the hundreds of hours of volunteer work. I have the disease and this really gives me hope. Every dollar is important for research but also important for the souls of thousands of muscular dystrophy patients. Please help us find a cure. On behalf of all of us that have trouble rolling out of bed every morning because our muscles have faded too much... Thanks for donating!
The Great!
I've personally experienced the results of this organization in...
2005 2006 2007 2008 2009
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What I've enjoyed the most about my experience with this nonprofit is...
100% of the money goes towards research. Mnay other charities have high paid CEO's and Officers. This one is different. All of the cash donated goes towards a cure.
The kinds of staff and volunteers that I met were...
Generous, courteous and friendly.
If this organization had 10 million bucks, it could...
Fund a major research study.
When was your last experience with this nonprofit?
2009
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