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June 6, 2010

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June 6, 2010

This organization has been very effective in its work furthering research into FSH. Because of the determination and motivation of its founders, Pacific Northwest Friends of FSH Research has been highy successful in raising more awareness about this form of muscular dystrophy, as well as raising significant funds for research.

The Great!

I've personally experienced the results of this organization in...

Seeing how effectively the organization is run.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 4, 2010

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June 4, 2010

For the past 5 years, I have been a volunteer for the Pacific Northwest Friends of FSH Research organization. I have watched the Colella family work tirelessly throughout the year, promoting the organization's message, organizing the annual Dinner Auction, and collaborating with medical investigators to pursue treatments and ultimately, a cure, for this horrific disease. They have addressed all aspects of what a non-profit organization needs to do to organize, grow, and prosper. They are, in my opinion, the gold standard for other non-profits who hope to accomplish miracles.

The Great!

I've personally experienced the results of this organization in...

the successful annual auction, earning large sums despite the economic downturn of the last 2 years.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 2, 2010

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June 2, 2010

This charity was started to raise money for research about a form of muscular dystrophy that affects my brother. There was little research being conducted prior to Friends of FSH, and now so much is being done. I continue to support their efforts, and hope that all the research that is now being done can continue until we have a cure.

The Great!

I've personally experienced the results of this organization in...

The hope it has brought to so many people afflicted by FSH muscular dystrophy like my brother.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 2, 2010

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June 2, 2010

The Pacific Northwest Friends of FSH Research is a relatively small but huge in impact non-profit begun by the family of a son with this type of muscular dystrophy. The Colellas found very little in terms of resources, help, research and knowledge about this disease which is more common than you might think. Out of their frustration with the existing situation some 6 plus years ago, they formed the FSH organization and operated out of their own home. Their dedication to this cause has had a tremendous impact on the amount of attention this disease is now receiving and on the amount of research dollars available to look for a cure and/or treatment for the condition. The operation of the organization is bare-bones with very little overhead and lots of energetic volunteers. It is amazing what this non-profit has achieved in a relatively short amount of time.

The Great!

I've personally experienced the results of this organization in...

my understanding of FSH type of muscular dystrophy.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 2, 2010

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June 2, 2010

As a member of the family I want to add my praise and appreciation to Terry and Rick for their efforts in establishing this wonderful organization which is successfully raising funds to support the researchers at Univ of Washington and elsewhere to find a cure for this debilitating disease. Volunteers are needed to help them carry on this effort not just next year but until a cure is found. Researchers' findings will need to be put into action and into the market place available to all who have the need. Our dream would be that it would take place in Brian's lifetime.Thanks to all who are among the many supporters.

The Great!

I've personally experienced the results of this organization in...

As a participant in fund raising

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

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Talk to friends & tell others about this condition.

Ask their favorite restaurants, shops to donate an item or gift certificate for the annual fund raising auction.

Write a letter to their Senators asking for increased NIH funding for FSH research.

Make a donation to Friends of FSH Research.