Pacific Northwest Friends of FSH Research
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October 20, 2009
This charity is run by Terry Colella and her vast army of volunteers. Their group has been doing this for 6 years now without taking a penny in salary for the hundreds of hours of volunteer work. I have the disease and this really gives me hope. Every dollar is important for research but also important for the souls of thousands of muscular dystrophy patients. Please help us find a cure. On behalf of all of us that have trouble rolling out of bed every morning because our muscles have faded too much... Thanks for donating!
The Great!
I've personally experienced the results of this organization in...
2005 2006 2007 2008 2009
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What I've enjoyed the most about my experience with this nonprofit is...
100% of the money goes towards research. Mnay other charities have high paid CEO's and Officers. This one is different. All of the cash donated goes towards a cure.
The kinds of staff and volunteers that I met were...
Generous, courteous and friendly.
If this organization had 10 million bucks, it could...
Fund a major research study.
When was your last experience with this nonprofit?
2009
October 5, 2009
This organization is entirely staffed by volunteers and was started by an incredible family in the Seattle area with the disease in their family. Fundraising occurs throughout the year through business partnerships and various individual contributions but the highlight is an annual charity auction attended by hundreds of supporters and sponsors. Facioscapulohumeral Dystrophy (FSHD) is a particularly insidious disease which results in the gradual loss of muscle throughout the victim’s life. There is no cure. This organization’s focus is on research and has a strong partnership with the University of Washington’s muscular dystrophy research center. FSHD receives a disproportionate share of national funds available for muscular dystrophy research and this organization does it’s best to try to fill some of that void. As a family with this disease, we are thankful and grateful for the contributions of this worthwhile charity. We pray that our son will benefit from a cure during his lifetime.
The Great!
I've personally experienced the results of this organization in...
A whole lot of volunteers putting in a whole lot of hours for, hopefully, a whole lot of research.
Ways to make it better...
If I had to make changes to this organization, I would...
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What I've enjoyed the most about my experience with this nonprofit is...
The hope of a cure.
The kinds of staff and volunteers that I met were...
Incredible volunteers who contribute an large amount of their time for a cure.
If this organization had 10 million bucks, it could...
Work more effectively with researchers and organizations to find a cure.
Ways to make it better...
Need more contributors.
When was your last experience with this nonprofit?
2009
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