Login with FacebookPACIFIC NORTHWEST FRIENDS OF FSH RESEARCH
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12 reviews total. Average rating:
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I was a Donor & I attended their annual fundraiser and make donations on a regular basis.
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This is a wonderful organization! Their annual Silent Auction fundraiser raises hundreds of thousands of dollars to support FSH Muscular Dystrophy research. This organization has single handedly supported FSH Research at the University of Washington through it's efforts. Additionally, they have developed a wonderful video piece to increase public awareness about FSH Muscular Dystrophy.
The Great!
- I've seen the results of this organization in... Their support of FSH Research and their increasing awareness of FSH Muscular Dystrophy. As a person with FSH, this organization gives me hope that someday there will be a treatment and/or cure.
Ways to make it better!
- If I had to make changes to this organization, I would… Encourage them to have more events during the year.
I was a Volunteer & Helped with silent auction
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This organization has been very effective in its work furthering research into FSH. Because of the determination and motivation of its founders, Pacific Northwest Friends of FSH Research has been highy successful in raising more awareness about this form of muscular dystrophy, as well as raising significant funds for research.
The Great!
- I've seen the results of this organization in... Seeing how effectively the organization is run.
Ways to make it better!
- If I had to make changes to this organization, I would… They're doing a great job - more volunteers are always welcome, as is additional funding!
I was a Volunteer & I helped procure items for the Annual Gala Dinner/Auction, and recruited student volunteers to assist with the auction
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For the past 5 years, I have been a volunteer for the Pacific Northwest Friends of FSH Research organization. I have watched the Colella family work tirelessly throughout the year, promoting the organization's message, organizing the annual Dinner Auction, and collaborating with medical investigators to pursue treatments and ultimately, a cure, for this horrific disease. They have addressed all aspects of what a non-profit organization needs to do to organize, grow, and prosper. They are, in my opinion, the gold standard for other non-profits who hope to accomplish miracles.
The Great!
- I've seen the results of this organization in... the successful annual auction, earning large sums despite the economic downturn of the last 2 years.
Ways to make it better!
- If I had to make changes to this organization, I would… I wouldn't change a thing.
I was a Professional with expertise in this field & Consulted and helped with auction from the start.
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Terry is a former neighbor and oontacted me to help them at the beginning of their fundraising efforts. I helped get them focused on what makes a successful auction. They took my ideas and the ideas from many others and created a very successsful event. They are hugely dedicated and as anyone in fundraising knows...a small group does the majority of the work. Please reward them with this bonus as very few people would put the kind of committment in that they have to make a difference for any cause.
The Great!
- I've seen the results of this organization in... Attending the events, helping with the events and knowing the research that has happened due to their efforts...one family making a HUGE difference!!
Ways to make it better!
- If I had to make changes to this organization, I would… Get them more help! They work so hard and commit endless hours!
I was a Volunteer & Helped with auction procurement and set up. Manage the facebook page.
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This charity was started to raise money for research about a form of muscular dystrophy that affects my brother. There was little research being conducted prior to Friends of FSH, and now so much is being done. I continue to support their efforts, and hope that all the research that is now being done can continue until we have a cure.
The Great!
- I've seen the results of this organization in... The hope it has brought to so many people afflicted by FSH muscular dystrophy like my brother.
Ways to make it better!
- If I had to make changes to this organization, I would… Nothing! It's great!