Oxalosis and Hyperoxaluria Foundation
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June 25, 2010
The OHF is a great organisation. It provides funds for much needed research into diagnosis and treatment of primary hyperoxaluria as well as information and support for affected patients and families.
The Great!
I've personally experienced the results of this organization in...
their support of scientific meetings and family workshops
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How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2010
June 16, 2010
Dedicated members who put out great effort to help find a cure for this disease. The Foundation is oriented to helping educate and support patients and their families. Money is raised to support research to cure and treat hyperoxaluria.
The Great!
I've personally experienced the results of this organization in...
supporting research to better understand and treat hyperoxaluria.
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How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
June 14, 2010
The OHF is the ONLY foundation in the world dedicated to finding a cure for Oxalosis and Hyperoxaluria. The OHF is working to help save lives and fulfill the promise to end PH forever by empowering people, ensuring quality care for all and energizing science to find the cure. The OHF provides patient, public and professional education and has funded millions of dollars in research.
The Great!
I've personally experienced the results of this organization in...
I've personally experienced and watched this foundation grow over the past 8 years. I work with families and those affected by this silent, life-threatening disease around the globe and am amazed how far we have come.
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What I've enjoyed the most about my experience with this nonprofit is...
working with the families and seeing research grow.
The kinds of staff and volunteers that I met were...
dedicated and hard working.
If this organization had 10 million bucks, it could...
get to a cure alot faster and potentially save even more lives.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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