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June 18, 2010

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June 18, 2010

I became intrigued about OCRF when I saw an advertisement for their all-womens triathlon series. I was in chemotherapy at the time and the ad provided the incentive I needed to get through my chemo and get back into shape. A year later I competed in the entire series. However, during that year, I researched OCRF and learned about the mission and the work they are doing. I was incredibly impressed. So much effort, time and energy goes to finding a method of early detection. Equally amazing is how few people work for OCRF. This very small group of dedicated employees is responsible for some of the largest medical fundraising in the country. What OCRF is doing is saving lives, sometimes at a grass roots level, sometimes on a bigger scale. Sure the cure for cancer would be nice but this feels more immediate, more important and more closely obtainable. If ovarian cancer is detected early, it is 94% curable. OCRF is working towards that goal.

The Great!

I've personally experienced the results of this organization in...

The ultimate result would be a method of early detection. We are not there yet. However, I have been to fundraisers and events sponsored by OCRF and I see the power of what they are doing. The energy is palpable. The contributors are dedicated.

Ways to make it better...

If I had to make changes to this organization, I would...

I would suggest a larger staff. But of course, that costs money. Everyone is doing the work of two people. I would also like to see the board members get involved with some of the smaller events. It would be nice to put a face with the names.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

how tirelessly everyone works. The entire staff is supportive of my efforts and it is small enough that everyone actually knows my name. My grass roots efforts are as celebrated as the bigger events. It makes me feel like I am really making a difference.

The kinds of staff and volunteers that I met were...

warm, kind, friendly, exhausted from each doing the work of 2 people and ready to help me with any issue I have.

If this organization had 10 million bucks, it could...

accomplish the mission of finding a method of early detection for ovarian cancer. Then the organization could go out of business. That is my dream!

Ways to make it better...

I would like to meet some of the board members and some of the scientists. Since they live around the country it is hard. But I would like to have the opportunity to thank these folks and spend time with them.

In my opinion, the biggest challenges facing this organization are...

the economy and the misconception that if you can't make a big donation, it isn't worth it. $10 donations are equally wonderful but people don't understand that. Times are tough; donations are down.

One thing I'd also say is that...

This mighty machine that is called OCRF is a lifeline for ovarian cancer. A method of early detection WILL be found and it will be due to the fundraising and allocation from the efforts of OCRF.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

I searched for an organization that was geared towards getting the word out about ovarian cancer and at the same time funding research to cure this horrible disease. I came across OCRF and from their affiliations and fund raising events I imagined them to be a large cumbersome organization. When I called to inquire about having a fund raiser and funneling the funds to a particular person via their charity I was delighted to discover the charity is run by 5 people. So the overhead is small and the ability to donate more money is tantamount to their success in my book. I wish their events were on the weekends more often. My job is a demanding one and I can not attend all the week day events. But the fact that this charity has them and so many famous companies and people are coming on board shows me that this is a dynamic driven unit. I have spoken to a few of the staff members and they are all so kind and patient. I lost a beloved friend and family member to this disease and its so frustrating to know that its not a popular cancer. Breast cancer support seems to be all the rage. I want the same for ovarian and I believe OCRF is the organization that accomplish that. Because of Kelly Ripa and Electrolux I have sent out hundreds of cakes which then allowed the people I sent them to to start sending their own and becoming aware of this disease on a more personal level. Once someone gets involved in something, even something as small as sending a cake, it makes them feel good and stays in their minds. Now more people are aware of this disease. And that's the first step to finding a cure. That OCRF managed to get Oprah Winfrey to walk in their even on Mother's Day was a real boast. My only issue with that was it was Mother's Day, and this is a woman's disease, I think it should have been on Father's Day. I didn't attend because I wanted to see my friend who was also a mother for that day. She passed away a week later. The timing could have been better on the walk. But other than that, this is the charity I promote and support. I wish I could do more to help. I certainly let everyone know about them and forward all their email notifications to my address book. This is the one that is going to fund the research that finds the cure that ends this horrible disease..because they work every day and every way to that end.

Photos

The Great!

I've personally experienced the results of this organization in...

My ability to share the word about this disease through the many events and fund raisers they have. I desperately want this disease eradicated in my lifetime and through OCRF I think it will happen.

Ways to make it better...

If I had to make changes to this organization, I would...

Have more weekend events, & have them look into allowing fund raising for specific patients that they manage. NTAF does that with traumatic brain & spinal cord injuries and we could have used that type of service when my friend flew to Texas for treatment

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their small size and personal touch.

The kinds of staff and volunteers that I met were...

dedicated and compassionate

If this organization had 10 million bucks, it could...

Fund more research.

Ways to make it better...

More events that take place on weekends.

In my opinion, the biggest challenges facing this organization are...

That they will get too big too fast and lose sight of their goal. Which is to cure ovarian cancer.

One thing I'd also say is that...

Please God, let this cancer be cured. I've lost five women that I loved to it and I am sick and tired of watching wonderful women be eaten alive by this disease. Its got to stop. It simply can not go on taking with no cure in sight.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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