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June 17, 2010

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June 17, 2010

Well, where do I begin. Almost 2 years ago I had to run to the emergency room (where I worked too) because I was in excutiating pain from my waist to my breast. It came out of nowhere and blindsided me. After an abundance of tests they found a mass on my left ovary and they found it was spilling fluid outside of my uterus, which they werent sure why, but must have been causing the massive pain. I was sent to Stanford Medical Center and from there they took me to surgery. Apparently the cyst on my left ovary had grown past the size of my uterus and began to spill fluid into my abdominal cavity. I had just had my last son only 2 years before and had a c-section. This had grown rapidly and with a vengince. If it hadnt been for the pain, who knows how long it would have gone on without being detected. I had a chemo port that was put in at the time of surgery, incase I was to have chemo. I was in the hospital for a week, and on the day that I was going home the doctors took out my chemo port because the pathology tests had come out good and only warranted watching. I cant tell you how scary this was for me and my whole family. I was already facing alot of issues at home and this was just one more obsticle. All I can remember worrying about the whole time was what about my kids. I was so upset at the emergency room they had to sedate me. My poor parents stayed with me the whole time and I could see the concern in their eyes, even though they wouldnt let on. I could see my dad try to fight the fear in his eyes. They are my rock. My older son looked after my two smaller sons till I got home and I will never forget the look in my 2 year old eyes as he saw me come through the door. His eyes lite up like a christmas tree, like he saw Santa. I was his gift. My boys were so brave and even though they were scared, they kept each other going. I didnt even know there was a foundation for ocrf until this happened to me. I was watching Regis and Kelly and she did a commercial for Electrolux and they were spreading the word and trying to collect moneys for ocrf. I also learned that there was a color and I never knew that either. I felt rather uninformed. So now I try when I can to let others know that it does exist and it needs to have more recognition. On the electrolux web site they had a email a virtual t-shirt to people to spread the word. So sence I was still recooperating, I sat at the computer and emailed one to everyone I had emails for. I try to keep myself informed and my dad keeps up on all the latest news too... in oct 2010 it will be my 2 year birthday, for being alive. It could have been much worse and I have to be thankful that research is going on so that others, like me, can go on living. OCRF is crutual for everyone... it needs to be recognized as a great cause. Way to go, if it werent for the doctors knowing more about it then they used to, then who knows where I would be today... Im just glad that my children wont have to worry where their mom is, because I am right here. (thank god).

The Great!

I've personally experienced the results of this organization in...

my own life. If it wasnt for you being there, who knows where I would be. Research is sooo important and others need to hear about it more, just like you hear about breast ca.

Ways to make it better...

If I had to make changes to this organization, I would...

Just that it be more world known. Not everyone knows there is a foundation or color or anything. It needs more publicity.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

learning more than I knew to start with.

The kinds of staff and volunteers that I met were...

I have only met on the internet.

If this organization had 10 million bucks, it could...

Do more research to help fight. It might also help out others in need when they are sick and not able to care/support their families.

Ways to make it better...

dont know yet

In my opinion, the biggest challenges facing this organization are...

Publicity, Publicity, Publicity. education to the public.... its the best way.

One thing I'd also say is that...

I love you, and I thank you for being there, even when I didnt know you.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009

June 17, 2010

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June 17, 2010

My mom was recently diagnosed with ovarian cancer and my grandmother and great aunt both died from it. OCRF has helped me with preventative information, my mom with treatment options, treatment support, and clinical trial information. Not enough is know about ovarian cancer and many women are not aware of its symtoms. So much more research needs to be done to prevent and cure ovarian cancer in the early stages. Thank goodness for organizations like OCRF

The Great!

I've personally experienced the results of this organization in...

I have attended their online educational seminars at no charge to learn about advances in ovarian cancer treatment and used their online sources for information.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

Nine years ago I became aware of OCRF after my best freind's mother past away from ovarian cancer. I had considered her my second mom, as she and my mother were also best freinds. This May we lost my mother to overian cancer, so OCRF now has more meaning to me, my freind and our sisters. The research that they are doing is so very important. No one should have to go thur the pain and the lose of this. And then wonder if you are going to be next...

The Great!

I've personally experienced the results of this organization in...

Just getting information and ideas. also the San Deigo Tri..my freind participates

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009

June 17, 2010

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June 17, 2010

My mother was diagnosed with ovarian cancer in march. After 5 months of chemo, she was given a clean bill of health thanks to God, friends, family, and the support of OCRF. In an endless sea of cancers in today's world, ovarian cancer is a silent killer and is unfortunately the least commonly known. OCRF is doing a wonderful thing by changing this fact through campaigning to push women to get routine examinations and always stay aware of their health. So here are a few things I have learned over the past year: Listen to some sappy songs that remind you of your loved one, let the tears flow like rain because they will, but after the tears have gone, listen to nothing but positive upbeat tunes. Sorrow should be written in the sand and blessings carved in stone! At first, wince at all the tubes and needles and pale skin, because it is definately scary, they will not look the same, but after that, learn to look at them straight on, because fear is only what we want it to be. The tubes are helping more than they look like they are harming. Be hesitant to touch your loved one at first sight, you will worry that you might hug them too hard or disturb them, but after that, give them the most meaningful kiss and hold their hand, no pain can surpass the pain they have felt being away from you. Last but not least, beat around the bush about the situation, pretending that its not happening, but after that, laugh about it with them and keep them in the best spirits, for to dwell on a bad situation is to believe that it wont get better, but it definately will. Life goes on no matter how far you fall, and with the support of friends and family, you get back up and walk on. With God on your side, everything is possible. Pray hard, love strong, and live beautifully.

The Great!

I've personally experienced the results of this organization in...

seeing my mother's happy reaction to all the ocrf has done, and her being able to relate to other ovarian cancer survivors through its networking.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 17, 2010

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June 17, 2010

OCRF has made progress in finding a test for ovarian cancer. This is monumental! Most ovarian cancer is not found until it is in stage 3 or 4. The symptoms are vague and could come from a number of different things. An accurate test could make it easier to find ovarian cancer EARLY. This would make the survival rate increase dramatically. I will continue to donate to OCRF in memory of my daughter-in-law, Dawn Field, and in the hope that her daughters will never have to go through what she did. Marie Field

The Great!

I've personally experienced the results of this organization in...

I have read of their wonderful work in developing a test for early detection of ovarian cancer.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 16, 2010

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June 16, 2010

My mother died of ovarian cancer in June 2007. The OCRF was our first choice of charity to ask mourners to donate to in her name. My family was frustrated at the relative lack of funding for ovarian cancer research, and were glad to find the OCRF. The OCRF has a solid foundation of corporate sponsors, and is excellent at communicating with their members on the latest advances against this disease.

Photos

The Great!

I've personally experienced the results of this organization in...

I have met the former executive director and several staff members at US Women Triathlon Series races, and can attest first hand to their professionalism and dedication to their cause.

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What I've enjoyed the most about my experience with this nonprofit is...

the clear commitment and dedication of their staff. They've personally reached out to our family, and are great about communicating with their membership.

The kinds of staff and volunteers that I met were...

professional, enthusiastic and dedicated.

If this organization had 10 million bucks, it could...

fund even more researchers to find a cure, and a means of early detection.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

June 16, 2010

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June 16, 2010

My mother died from ovarian cancer and I greatly appreciate all the funding provided by OCRF to facilitate research towards the cure of this insidious disease.

The Great!

I've personally experienced the results of this organization in...

that I have read the research updates and it keeps me informed as to what progress is being made in this area.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 16, 2010

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June 16, 2010

Brilliant Donna Karan and Fabulous Kelly Ripa make Super Saturday a fund raising event that is outrageously successful on all levels -- it raises a ton of money, awareness, and it's all good on all levels for all ages. It's a truly astonishingly well conceived, brilliantly executed event for a cause that needs all the expertise, attention and money it can get.

The Great!

I've personally experienced the results of this organization in...

seeing progress in ovarian cancer research.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

it's good on all levels for all people involved.

The kinds of staff and volunteers that I met were...

smart, sophisticated, helpful, kind, generous.

If this organization had 10 million bucks, it could...

cure ovarian cancer or come pretty close to it.

Ways to make it better...

I'd worn more sunscreen to the last Super Saturday.

In my opinion, the biggest challenges facing this organization are...

that they'll be so successful, ovarian cancer will be a thing of the past. YAY.

One thing I'd also say is that...

Donna Karan and Kelly Ripa are fabulous.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009

June 16, 2010

more

June 16, 2010

The Ovarian Cancer Research Fund is rated tops among charitable organizations, because of the extremely low percentage of every dollar donated going toward administrative overhead. Also, OCRF keeps me informed, through weekly newsletters and invitations to special events, of progress in its funding efforts, in research for better treatments, and ultimately a cure. Based in an academic research community, I believe that OCRF is uniquely positioned to be the most progressive and successful research organization in the quest for a cure for ovarian cancer.

Photos

The Great!

I've personally experienced the results of this organization in...

being regularly informed of its fundraising events and progress in its research efforts.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 16, 2010

more

June 16, 2010

In 2004 I was diagnosed with ovarian cancer. I was 51 at the time, in very good health and had no family history. This diagnosis floored me. But there was no time to ponder it. I had major surgery two days later. The past six and half years have been spent living with an increasingly chronic condition - as opposed to a formerly consistently terminal one. Chronic to terminal is a big improvement. But it is not enough. I want to see the eradication this disease. But if that is a bit unrealistic then I believe it is essential that a greater understanding of the roots of this disease be found. Understanding the roots will help develop a desperately needed reliable screening test as well as contribute to more effective and targeted treatments. I am a enthusiastic supporter of OCRF because I believe that it is clearly dedicated to research that will lead to these two broad goals. During my six and half year journey I have encountered several new treatment protocols that I am confident would not have been available were it not for the knowledge gained from various OCRF granted studies. Thank you OCRF for giving me hope that at every turn there will be an answer that will keep me going.

The Great!

I've personally experienced the results of this organization in...

see above

Ways to make it better...

If I had to make changes to this organization, I would...

more vigorously reach out to Ovarian Cancer patients and enlist their input

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I feel my dollars are going to research that has the potential to make a real impact on people's lives.

The kinds of staff and volunteers that I met were...

kind and generous

If this organization had 10 million bucks, it could...

cure (or at least get much closer to curing) Ovarian Cancer and other related cancers as well

Ways to make it better...

I never had ovarian cancer

In my opinion, the biggest challenges facing this organization are...

lack of funding for a wide range of research projects

One thing I'd also say is that...

GIVE money to OCRF!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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