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June 18, 2010

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June 18, 2010

I'm a survivor of ovarian cancer and, after evaluating other cancer charities and serving on other boards, decided this group will make a difference. OCNA has earned respect on Capitol Hill, among scientists and survivors. Excellent leadership and very beneficial programs.

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The Great!

I've personally experienced the results of this organization in...

helping survivors access life-saving clinical trials, new therapeutics, alternative and complimentary treatments, leaders in research and changing the legislative agenda to further research.

Ways to make it better...

If I had to make changes to this organization, I would...

expand its reach to encompass the entire gynecologic cancer survivor community

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the spirit of survivorship. As an ovarian cancer survivor, I need hope. OCNA gives us that.

The kinds of staff and volunteers that I met were...

passionate about saving women's lives.

If this organization had 10 million bucks, it could...

help thousands of women, educate millions who are at risk, elevate the priority of treating and diagnosing ovarian cancer.

Ways to make it better...

more people supported the cause and participated in the movement to conquer ovarian cancer.

In my opinion, the biggest challenges facing this organization are...

financial. It's hard to get donations in the current economy. The group functions largely on volunteerism and keeping the programs running is costly.

One thing I'd also say is that...

ovarian cancer claims most of the women affected by the disease w/in 5 yrs. That's why we don't have a large survivor community to raise funds and awareness. We need help from the general public.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 18, 2010

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June 18, 2010

The Ovarian Cancer National Alliance has united individuals, groups and healthcare professionals in the fight against ovarian cancer. They are working on behalf of patients and families to ensure our voices are heard in Washington and government funding for ovarian cancer is maintained and increased. The Ovarian Cancer National Alliance is the "go to" resource for ovarian cancer and I am proud to be a part of it!

The Great!

I've personally experienced the results of this organization in...

This organization has helped me create a grassroots organization in my area. The Ovarian Cancer National Alliance is a huge resource for my own group.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 31, 2009

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July 31, 2009

I have been involved with the Ovarian Cancer National Alliance since 2002. I am currently a board member. It has been an honor to work with this group as they have grown to bring awareness about ovarian cancer to the general public, worked with the medical community, other national health organizations and Congress to change the face of this deadly disease.

The Great!

I've personally experienced the results of this organization in...

how they are raising awareness about ovarian cancer through their signature program education the medical community where survivors present the program Survivor's Teaching Students Saving Women's Lives and their very active advocacy program.

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What I've enjoyed the most about my experience with this nonprofit is...

The Ovarian Cancer National Alliance has a very dedicated board who does not just sit on the side lines. Each board member has unique skills that has enabled OCNA grow to the stature they are at today.

The kinds of staff and volunteers that I met were...

young energetic, very dedicated to the mission of the Ovarian Cancer National Alliance.

If this organization had 10 million bucks, it could...

Better organize the survivors who are not aware of the work this organization does. Better advocated for funding for medical research to improve outcome for ovarian cancer patients

When was your last experience with this nonprofit?

2009

July 30, 2009

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July 30, 2009

Seven years ago,the Ovarian Cancer National Alliance made it possible for me to transcend the label of "cancer patient" and become an advocate; it changed my life. I just attended my 8th annual OCNA conference---they keep getting better and better. OCNA is a leader in education, awareness, and advocacy in the area of ovarian cancer. I am proud to be a board member and the president of my local Ovarian Cancer Alliance of OR/SW Wa.

The Great!

I've personally experienced the results of this organization in...

the education of women and health care professionals as well as legislation regarding ovarian cancer

More feedback...

When was your last experience with this nonprofit?

2009

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