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June 29, 2010

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June 29, 2010

For ovarian cancer survivors OCNA is a godsend - advocating for us in Washington, D.C., gathering us together for an inspiring, informative, and encouraging annual conference, and helping its partner members to educate women and advocate for better awareness of ovarian cancer and its symptoms. OCNA is an excellent example of a nonprofit - great organization, great results, and great people!!

The Great!

I've personally experienced the results of this organization in...

how it has helped the Colorado Ovarian Cancer Alliance fight Medicare to get Avastin coverage for women with ovarian cancer in Colorado.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

October 25, 2012

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1 previous review
July 31, 2009

As a 12-year survivor of ovarian cancer I have watched as the various national organizations have been established, evolved, and reached out to our patient population. THe Ovarian Cancer National All... more

October 25, 2012

As a survivor I have had a great deal of interaction with OCNA over the last 15 years and can only say that it is by far one of the most outstanding nonprofits I have encountered. A wealth of information about the disease, resources for the patient and family, concern and assistance with the challenges many of us face not only physically and financially but also emotionally. OCNA is passionate about awareness of ovarian cancer for all women, physicians and future health professionals and has an amazing staff and cadre of volunteers to accomplish this mission. The staff's enthusiasm is infectious and motivating. If you don't believe it, try saying no to attending the annual march to Capitol Hill! The staff is small in number but extremely commited to their jobs. If they do not have an answer to your question, they will work hard to get the right information to you. I know how hard the board works to make sure donations are used in a manner that will have the most impact for survivors and all women at risk of developing ovarian cancer. Proud to give my dollars to this major force on the TEAL TEAM.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

July 31, 2009

As a 12-year survivor of ovarian cancer I have watched as the various national organizations have been established, evolved, and reached out to our patient population. THe Ovarian Cancer National Alliance (OCNA) has been the driving force in trying to unite the national organizations, provide support to state organizations, get involved in legislative action so necessary for increasing funding for research and awareness, and most importantly giving us a voice as we battle this disease. Most recently I attended the OCNA 2009 National Conference and witnessed first hand how dedicated the entire OCNA staff is to our cause. They have developed a strong national agenda and work each and evry day toward achieving its goals. They certainly have provided me with an avenue to express my passion for advocacy and awareness of ovarian cancer and reach thousands of women with vital information.

Photos

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What I've enjoyed the most about my experience with this nonprofit is...

their understanding of our need to educate other women about this deadly disease.

The kinds of staff and volunteers that I met were...

professional, dedicated, and empathetic.

When was your last experience with this nonprofit?

2009

July 28, 2009

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July 28, 2009

If you have been touched by ovarian cancer, you must know OCNA. They are the clearinghouse for all information about the disease and new treatments. They are also the umbrella for local chapters that work on getting the word about about awareness and that raise money for research. But the most amazing program is Survivors Teaching Students. Ovarian cancer survivors go into medical school classrooms and describe their experiences so that the doctors, nurses and other medical professionals of the future will keep this disease in mind.

The Great!

I've personally experienced the results of this organization in...

the faces of the medical students we talk to.

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What I've enjoyed the most about my experience with this nonprofit is...

participating in the Survivors Teaching Students program.

The kinds of staff and volunteers that I met were...

FABULOUS, WONDERFUL, ENERGETIC!!!

If this organization had 10 million bucks, it could...

have a greater reach.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

The Ovarian Cancer Naional Alliance has provided us, as a small local Ovarian Gynecologic Cancer Alliance in a small town, a larger National presence and a BIG voice. The legislative branch extends opportunities and include us in their year round monitoring and dogged lobbying on behalf of women's health issues in the government process. The good that they do is unmeasurable. The facilitators have nurtued us when we were just learning and beginning by providing awareness material and expertise. The Board and Officers continue to listen to our ideas, our concerns, our focus as it changes and incorporates the essence of all these good things into their annual business plan. We appreciate their ear as well as their voice. The organizers and planners of the National Conferance feed our need for knowledge and allow us time for kinship and comaraderie. We approach the "Hill" on Lobby day as an inspired Tide of Teal, determined to be heard and make a diference. Every conferance is differnt and each one has a particular character. It remains a good thing and an inspiration for the next year.

The Great!

I've personally experienced the results of this organization in...

Laws passed which positively impacted women's health issues, money allocated for research, grownth in national awareness, suport for research and educational projects, engaging volunteers to become productive agents of change.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The focus on interaction and their apreciation of opinions and suggestions.

The kinds of staff and volunteers that I met were...

Very good at what they do, friendly.

If this organization had 10 million bucks, it could...

Serve better food and find a cure and/or a diagnostic tool Ovarian cancer - not particuarly in this order.

Ways to make it better...

I was younger, that being said - maybe a more relaxed pace, more opportunity for small sessions to include many "new things" to choose from, shorten long plenery sessions! Whew, this year they were tough on the back and circulation. Fountian of youth!

In my opinion, the biggest challenges facing this organization are...

Legislators, drug companies and Health care providers - no one seems to be listen until they get sick or it's their Mother...

One thing I'd also say is that...

I am glad to be a part of this process!

When was your last experience with this nonprofit?

2009

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