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July 28, 2009

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July 28, 2009

While researching to understand ovarian cancer after being diagnosed in early 2007, I discovered "Survivors Teaching Students: Saving Women's Lives," the ovarian cancer educatiion program for medical students under the sponsorship of OCNA. As I am a living example of two things that have become my passion: early detection of ovarian cancer and timely referral of patients into the care of a gynecologic oncologist, I will share my story whenever the opportunity presents itself: as a guest speaker, facilitator, or writer for community outreach efforts. OCNA continues to support my education and commitment with attending their annual conferences the last two years in Washington, DC.; participating in Lobbying Congress on the last day of the conference. As well, they nominated me to participate this year as a Consumer Reviewer of the Department of Defense Congressionlly Directed Medical Scientific Research Panel for FY09 ovarian cancer program.

The Great!

I've personally experienced the results of this organization in...

the eyes of third year medical students who listened and responded to our presentations at the medical school about the symptons and risk factors from personal experiences of ovarian cancer survivors.

Ways to make it better...

If I had to make changes to this organization, I would...

Raise funds to hire more part time and permanent staff members.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their support in any way I need to facilitate and expand our outreach program here in San Diego California.

The kinds of staff and volunteers that I met were...

Top notch, caring and highly motivated personnel.

If this organization had 10 million bucks, it could...

Change the face of ovarian cancer and affect the dollars we need for research to find the early detection screening test to save women's lives.

Ways to make it better...

If the days of the Conference in Washington DC were not so packed and long.

In my opinion, the biggest challenges facing this organization are...

Enough staff to support the indivduals expanding the Survivors Teaching Students Program. Standarizing the partner members under the umbrella of OCNA as each one seems to have their own name which is confusing as to the organization they belong.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

This organization has helped me immensely with information on ovarian cancer and becoming an advocate for the disease. I have attended 4 conferences held in Washington, DC and have gone to Capitol Hill on 2 of these occasions to speak with representatives regarding funding for ovarian cancer research and education. This organization also helped me become a member of the Survivors Teaching Students which enables us to go to medical schools and speak about our experiences with the disease to future doctors, nurses, and others in the health field. They also have an on-line support group that I am involved in daily to assist me and others with information and problems that come up with living with ovarian cancer.

The Great!

I've personally experienced the results of this organization in...

getting bills passed in congress and the senate and having the President sign them

Ways to make it better...

If I had to make changes to this organization, I would...

Have mini conferences during the year in different areas of the country.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Meeting dedicated people to assist us and the group of women that are afflicted with this disease.

The kinds of staff and volunteers that I met were...

very helpful and always there with information for me

If this organization had 10 million bucks, it could...

Have it's own research grants

Ways to make it better...

I had been able to participate in the 2 other capitol hill days that I attended at the conference.

In my opinion, the biggest challenges facing this organization are...

Finances

One thing I'd also say is that...

I have been impressed with the kind of individuals working for this organization

When was your last experience with this nonprofit?

2009

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