OVARIAN CANCER NATIONAL ALLIANCE
I did the Washinton circles with these people and they are really good at getting the word out. They got us funded again this year with a lot of hard work and pressure on the political arm. Great job, guys. Keep on keeping on.
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Would you volunteer for this group again?
Likely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Likely
When was your last experience with this nonprofit?
2011
This is an amazing organization that truly touches the lives of so many women. What I love most about this organization is the dedication of the staff and board members. They do work around the clock are are fully committed to the cause. All of the events I have attended have been incredibly well run and carry a spirit of hope and great optimism.
The Great!
I've personally experienced the results of this organization in...
The dedication of the junior committee---young people that do not have a connection to the disease. They are focused and determined on our work because of the support and leadership provided by Ovarian Cancer National Alliance.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
For ovarian cancer survivors OCNA is a godsend - advocating for us in Washington, D.C., gathering us together for an inspiring, informative, and encouraging annual conference, and helping its partner members to educate women and advocate for better awareness of ovarian cancer and its symptoms. OCNA is an excellent example of a nonprofit - great organization, great results, and great people!!
The Great!
I've personally experienced the results of this organization in...
how it has helped the Colorado Ovarian Cancer Alliance fight Medicare to get Avastin coverage for women with ovarian cancer in Colorado.
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How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
The Ovarian Cancer National Alliance is a fantastic organization with strong and passionate advocates who support those who are touched by,as well as spread awareness of, this terrible disease - ovarian cancer. I feel truly honored to work with them every year during the annual Conference, and every year I am more impressed by their dedication.
The Great!
I've personally experienced the results of this organization in...
by being involved in their annual Conference planning.
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How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2010
I continue to volunteer at OCNA events in Washington DC as well as help the OCNA's Government Affairs team by passing on Congressional intelligence to help them as they follow issues in Congress which will benefit Ovarian cancer survivors and fight this awful disease. Having my wife and brother-in-law lose their mother over 10 years ago to Ovarian cancer and this has ignited a fire in me to help such a great organization doing such great things (the OCNA) anyway I can.
The Great!
I've personally experienced the results of this organization in...
the joy and scene of togetherness which the OCNA provides at all of their events and outreach programs are priceless
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How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2009
The organization is an excellent group of advocates for those affected by ovarian cancer and their families and friends. They support a proactive, non victim role for women in championing their own health.
The Great!
I've personally experienced the results of this organization in...
at their conference. The women there who had experienced ovarian cancer clearly leaned on the organization for support.
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How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2010
This is a great organization that has a lot of heart. I've enjoyed volunteering at their events because they do a great job of fundraising while publicizing their efforts to educate people about ovarian cancer.
The Great!
I've personally experienced the results of this organization in...
I have gone to volunteer at their fundraising event for two years now. The high attendance is a testament to the organization.
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How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2010
OCNA does mission critical work with passion and compassion. They are leanly staffed and resourced, yet operate in a strategic and impactful manner.
The Great!
I've personally experienced the results of this organization in...
dedication of staff; positive impacts on lives of patients, families, doctors, policymakers, and caregivers.
Ways to make it better...
If I had to make changes to this organization, I would...
Provide a resource infusion; professional development opportunities for staff
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What I've enjoyed the most about my experience with this nonprofit is...
absolute dedication of the small staff; creative and entrpreneurial
The kinds of staff and volunteers that I met were...
inspiring, dedicated, expert, sensitive, knowledgeable, passionate
If this organization had 10 million bucks, it could...
save that many more lives!
Ways to make it better...
they had more resources and means
In my opinion, the biggest challenges facing this organization are...
budgetary
One thing I'd also say is that...
deserving of attention and acclaim from top to bottom.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
I'm a survivor of ovarian cancer and, after evaluating other cancer charities and serving on other boards, decided this group will make a difference. OCNA has earned respect on Capitol Hill, among scientists and survivors. Excellent leadership and very beneficial programs.
The Great!
I've personally experienced the results of this organization in...
helping survivors access life-saving clinical trials, new therapeutics, alternative and complimentary treatments, leaders in research and changing the legislative agenda to further research.
Ways to make it better...
If I had to make changes to this organization, I would...
expand its reach to encompass the entire gynecologic cancer survivor community
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What I've enjoyed the most about my experience with this nonprofit is...
the spirit of survivorship. As an ovarian cancer survivor, I need hope. OCNA gives us that.
The kinds of staff and volunteers that I met were...
passionate about saving women's lives.
If this organization had 10 million bucks, it could...
help thousands of women, educate millions who are at risk, elevate the priority of treating and diagnosing ovarian cancer.
Ways to make it better...
more people supported the cause and participated in the movement to conquer ovarian cancer.
In my opinion, the biggest challenges facing this organization are...
financial. It's hard to get donations in the current economy. The group functions largely on volunteerism and keeping the programs running is costly.
One thing I'd also say is that...
ovarian cancer claims most of the women affected by the disease w/in 5 yrs. That's why we don't have a large survivor community to raise funds and awareness. We need help from the general public.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
The Ovarian Cancer National Alliance has united individuals, groups and healthcare professionals in the fight against ovarian cancer. They are working on behalf of patients and families to ensure our voices are heard in Washington and government funding for ovarian cancer is maintained and increased. The Ovarian Cancer National Alliance is the "go to" resource for ovarian cancer and I am proud to be a part of it!
The Great!
I've personally experienced the results of this organization in...
This organization has helped me create a grassroots organization in my area. The Ovarian Cancer National Alliance is a huge resource for my own group.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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