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46 Reviews
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September 22, 2014

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September 22, 2014

The Ovarian Cancer National Alliance changed my understanding of life as a survivor of ovarian cancer. First, as a client, I learned about my disease through their education programs. Then I learned about empowerment, testifying on behalf of other women with the disease. Through their outreach efforts, we engaged the underserved and under-informed. We became the voice of patients to healthcare providers and policy makers, and made substantive change. This is a charity that affects every aspect of ovarian cancer - patients, clinicians, researchers, donors, caregivers, lawmakers and the public. Serving on their board is the most honorable role of my life.
September 21, 2014

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September 21, 2014

When diagnosed with late-stage ovarian cancer in 1999 I knew very little about ovarian cancer, other than it was often lethal. Working with the Ovarian Cancer National Alliance (OCNA) we were able to achieve Medicare coverage of PET scans and I found an entire "village" of women who are not only surviving but thriving! This organization hosts and monitors the Inspire website for patients and caregivers who are interested in others' experiences and a national conference for survivors featuring top ovarian cancer researchers.

OCNA's "Survivors Teaching Students - Saving Women's Lives(R) program where survivors share their experience from symptoms, diagnosis, treatment and their present status with medical students is lifesaving for their future patients. As one student commented, "we will never forget your faces and stories, you are heroines to us."

OCNA has a powerful grassroots impact via Partner Members across our great Nation. I trust OCNA by donating, as a survivor, my time and energies toward disease awareness on the local and at the national level as a volunteer research patient advocate representing patients and OCNA.
September 21, 2014

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September 21, 2014

I found my voice as a survivor advocate when I attended my first Ovarian Cancer National Alliance conference and lobby day in 2006. The information presented by leaders in ovarian cancer research gave me so much hope and I was overwhelmed with joy to see so many survivors, family members, friends and Partner Members from all over the country. I had just completed treatment for first recurrence and was empowered to learn more and take action. The passion, energy and dedication of the board and staff to connect survivors with helpful information and opportunities to give and back, and work with medical and professional organizations on current issues is inspiring. The Alliance has been a powerful force behind many meaningful improvements for women with ovarian cancer and their families.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

September 20, 2014

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2 previous reviews - show all
October 25, 2012

As a survivor I have had a great deal of interaction with OCNA over the last 15 years and can only say that it is by far one of the most outstanding nonprofits I have encountered. A wealth of informa... more

September 20, 2014

It has now been 17 years since my diagnosis with advanced ovarian cancer. Fortunately for me, that was also the year that the Ovarian Cancer National Alliance was founded. Through every twist and turn of this journey, the Alliance has been with me. I count on the Alliance for accurate and up-to-date information about the disease. The organization has afforded me a place to use my voice for all women diagnosed with ovarian cancer. Each year as I attend their National Conference, I see the far reaching effects of the Alliance, turning survivors into thrivers. In the past two years I have watched in awe as the Alliance has worked to bring groups together to advance our cause and research. I am proud to be associated with this organization which represents our community so well.
October 25, 2012

As a survivor I have had a great deal of interaction with OCNA over the last 15 years and can only say that it is by far one of the most outstanding nonprofits I have encountered. A wealth of information about the disease, resources for the patient and family, concern and assistance with the challenges many of us face not only physically and financially but also emotionally. OCNA is passionate about awareness of ovarian cancer for all women, physicians and future health professionals and has an amazing staff and cadre of volunteers to accomplish this mission. The staff's enthusiasm is infectious and motivating. If you don't believe it, try saying no to attending the annual march to Capitol Hill! The staff is small in number but extremely commited to their jobs. If they do not have an answer to your question, they will work hard to get the right information to you. I know how hard the board works to make sure donations are used in a manner that will have the most impact for survivors and all women at risk of developing ovarian cancer. Proud to give my dollars to this major force on the TEAL TEAM.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

July 31, 2009

As a 12-year survivor of ovarian cancer I have watched as the various national organizations have been established, evolved, and reached out to our patient population. THe Ovarian Cancer National Alliance (OCNA) has been the driving force in trying to unite the national organizations, provide support to state organizations, get involved in legislative action so necessary for increasing funding for research and awareness, and most importantly giving us a voice as we battle this disease. Most recently I attended the OCNA 2009 National Conference and witnessed first hand how dedicated the entire OCNA staff is to our cause. They have developed a strong national agenda and work each and evry day toward achieving its goals. They certainly have provided me with an avenue to express my passion for advocacy and awareness of ovarian cancer and reach thousands of women with vital information.

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What I've enjoyed the most about my experience with this nonprofit is...

their understanding of our need to educate other women about this deadly disease.

The kinds of staff and volunteers that I met were...

professional, dedicated, and empathetic.

When was your last experience with this nonprofit?

2009

September 18, 2014

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1 previous review
July 30, 2009

Seven years ago,the Ovarian Cancer National Alliance made it possible for me to transcend the label of "cancer patient" and become an advocate; it changed my life. I just attended my 8th annual OCNA c... more

September 18, 2014

After my diagnosis of ovarian cancer in 2002, I truly thought my life was over. It was then that I attended my first Ovarian Cancer National Alliance Conference in Washington DC. It changed my life! I was introduced to amazing survivors, top notch doctors and researchers, and an incredibly dedicated and competent staff. That was the beginning of my learning how to become an advocate for ovarian cancer. I currently serve as President of the OCNA Board of Directors, and I could not be prouder of our fine organization. The staff and the board work tirelessly to serve the best interests of the ovarian cancer community.

Diane Rader O'Connor
July 30, 2009

Seven years ago,the Ovarian Cancer National Alliance made it possible for me to transcend the label of "cancer patient" and become an advocate; it changed my life. I just attended my 8th annual OCNA conference---they keep getting better and better. OCNA is a leader in education, awareness, and advocacy in the area of ovarian cancer. I am proud to be a board member and the president of my local Ovarian Cancer Alliance of OR/SW Wa.

The Great!

I've personally experienced the results of this organization in...

the education of women and health care professionals as well as legislation regarding ovarian cancer

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When was your last experience with this nonprofit?

2009

July 12, 2012

Ocna's customer service is horrible. If you call, there's rarely anyone to answer other than interns, who don't know enough to answer the questions. It also takes a long time to receive a gift acknowledgement. Ocna obviously funds the salaries of the higher level staff, and seems to hire all interns as staff....so I wonder how my donations are being used.

More feedback...

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

No

How likely are you to donate to this group again?

No

When was your last experience with this nonprofit?

2012

July 3, 2012

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July 3, 2012

I wish they would state the percentage of our donation funds goes directly to the cause. I hate giving to charities because of adminstrators and advertisors take too much money.

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Was your donation impactful?

Unsure

How likely is it that you would recommend that a friend donate to this group?

Unsure

How likely are you to donate to this group again?

Unsure

When was your last experience with this nonprofit?

1997

January 11, 2012

I did the Washinton circles with these people and they are really good at getting the word out. They got us funded again this year with a lot of hard work and pressure on the political arm. Great job, guys. Keep on keeping on.

More feedback...

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Likely

When was your last experience with this nonprofit?

2011

July 7, 2010

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July 7, 2010

This is an amazing organization that truly touches the lives of so many women. What I love most about this organization is the dedication of the staff and board members. They do work around the clock are are fully committed to the cause. All of the events I have attended have been incredibly well run and carry a spirit of hope and great optimism.

The Great!

I've personally experienced the results of this organization in...

The dedication of the junior committee---young people that do not have a connection to the disease. They are focused and determined on our work because of the support and leadership provided by Ovarian Cancer National Alliance.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 29, 2010

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June 29, 2010

For ovarian cancer survivors OCNA is a godsend - advocating for us in Washington, D.C., gathering us together for an inspiring, informative, and encouraging annual conference, and helping its partner members to educate women and advocate for better awareness of ovarian cancer and its symptoms. OCNA is an excellent example of a nonprofit - great organization, great results, and great people!!

The Great!

I've personally experienced the results of this organization in...

how it has helped the Colorado Ovarian Cancer Alliance fight Medicare to get Avastin coverage for women with ovarian cancer in Colorado.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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