OHANA HERITAGE FOUNDATION INC
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O'Hana Heritage Foundation/A Rosie Place is a beautiful, family friendly, safe and loving facility that will offer wonderful care to your medically fragile child. As a volunteer, I have seen the care and dedication of the staff. They will ensure your child is well taken care of so you can have peace of mind. I highly recommend A Rosie Place.
The Great!
I've personally experienced the results of this organization in...
The joy of parents finding out about this wonderful place.
Ways to make it better...
If I had to make changes to this organization, I would...
Just that I wish everyone in the surrounding states knew it was available.
My 2 daughters who are medically fragile and physically handicapped have been able to spend a night in this lovely home with trained nurses and caring staff. It is a safe environment and a place where they can go to have fun. They require constant care and it is difficult to spend more than a few hours away from them. The O'hana Heritage Foundation's "A Rosie Place" is one place that the girls can go and we can a little freedom to enjoy a night out or relax a bit. They have a very dedicated staff and have put in much time and effort to do something new for families with medically fragile kids.
The Great!
I've personally experienced the results of this organization in...
I was able to have my 2 daughters spend a night at "A Rosie Place".
Ways to make it better...
If I had to make changes to this organization, I would...
Hopefully, in time, funding and staff will increase to serve more children.
O'Hana Heritage Foundation is an absolutely wonderful organization. They truly care about and understand the trials and tribulations families go through when caring for medically fragile children on a daily basis. I am the parent of a medically fragile child and what O'Hana Heritage Foundation has done for me and my family is priceless. They gave us a much needed break and a weekend my husband and I could spend together with our other two children.
Caring for a medically fragile child usually requires skilled nursing care. However, most of us are not nurses, we are just moms and dads learning nursing skills so we are able to take care of our children in our homes 24/7.
The Great!
I've personally experienced the results of this organization in...
I have seen other families use the services of O'Hana Heritage Foundation in similar ways and greatly benefit from their break as well.
Ways to make it better...
If I had to make changes to this organization, I would...
I wouldn't make any changes.
A Rosie Place is a facility whose time has come. I had been looking for a place to take my daughter Mary Mae, who is 16 years old, and completely dependant on me for everything. I am a single parent, I work and I care for both of my girls (twins) myself. I do not get much down time. Relaxing time where i can regenerate and regroup is nearly unheard of. So when a Rosie Place opened up I was one on the first ones in line to sign up my daughter. The staff is very well trained and professional. The doctor and nurse on staff that day were Mary's former caregivers! Can you beat that!?
The facility is state of the art and beautiful also. There were seperate rooms for each quest, a large play area and even a "quite" area with books and computers for enjoyment.
The Great!
I've personally experienced the results of this organization in...
Because of being able to have a safe, caring, professional place to take Mary Mae, I was able to get some much needed 'down' time and do some things that are not possible when I am with her.
Ways to make it better...
If I had to make changes to this organization, I would...
If I had to make changes, it would be to have a bit more outside area accessable. Walking paths for strolers or wheelchairs would be great. Soothing for everyone.
As the grandfather,guardian, and sole caregiver of a medically-dependent child, I have made many sacrifices to provide a level of care to my granddaughter that will help her to achieve her full potential. One of the most difficult sacrifices that I chose to make was that I would no longer have much free time to spend with my teenage daughter, helping her learn and grow into a happy and responsible adult. I am seldom able to leave the house for an extended period of time, other than working hours. A Rosie Place allowed me to be able to spend a weekend away from the 24/7 caregiving responsibilities that consume so much of my waking hours, and spend that weekend taking a mini-vacation that has helped me to strengthen my bond with my daughter.
Because of my granddaughters special needs, it is very difficult for me to find qualified caregivers for her. She requires a highly-skilled medical professional to care for her. I do not entrust her care to many people, and I am very selective in the places that I allow her to go. A Rosie Place, however, won me over almost immediately with their warm and welcomig atmosphere, skilled and knowledgeable staff, and the overall feeling of peace and home that pervades the facility. It is obvious to anyone who walks through the front door that A Rosie Placehas been, and contunues to be, a labor of love.
The Great!
I've personally experienced the results of this organization in...
My personal life, and most specifically my relationship with my youngest daughter, have benefited greatly from the opportunity to "get away for a weekend" that was made possible by A Rosie Place.
Ways to make it better...
If I had to make changes to this organization, I would...
If I had to make changes to this organization, I would: 1) Get the message out to more people that this organization exists, because there are many caregivers who could greatly benefit for the opportunity to take a little time for themselves 2) Make the facility 24/7, with up to 7 days of care for any particular child. Our culture is constantly critical of the paradigm shift away from "family values", but caregivers of medically dependent children do not have much time to focus on the whole family.
More feedback...
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
Information was forwarded to me by a therapist
What, if any, change in your life has this group encouraged?
It has allowed me to reconnect and reaffirm my bond with my daughter.
When was your last experience with this nonprofit?
2011
O'Hana Hertitage's A Rosie Place in South Bend, IN provides family centered inidvidualistic care for medically fragile children in a beautiful 5 bedroom handicap accessible home - this is allowing 2 very important factors to take place: 1.) the child receives impeccable care in the same manner he/she would at home as the caregiver (usually parents) are interviewed in depth as to each aspect of their child's care and then a care plan is devised to make sure the child recieves the exact nursing adn therapy care that he/she would at home (same times, same equipment, etc.)- this makes the child feel so comfortable! 2.) the parent/caregiver who is usually spending 24 hours a day 7 days a week providing care - is given a break so that can refresh with their spouse or other children (or even by themselves. This so very important to their own health! Many winners - the medically fragile child and their family!
The Great!
I've personally experienced the results of this organization in...
I am at the home frequently for meetings and family events. I am a nurse and my co workers deliver care @ O'Hana's A Rosie Place; I hear them talk about the amazing times they see the children (patietns) have and how satisfying it is to them personlly to work in such a clean, well organized, and caring enviornment. The staff go above and beyond with every action they take!
Ways to make it better...
If I had to make changes to this organization, I would...
Find a good source of income or fundraising.
my sons last day was at ohana heritage. we have gone to many events their we loved meeting other parent with children that had speicial needs. the staff are wonderful and the home is so bueatiful and so needed for these kids. i will miss them so much. my son passed almost two months ago. but his last day was at an event at there we were not aware that that would be is last day of life but he could not of had a better day thank you to all the people their for all they do
The Great!
I've personally experienced the results of this organization in...
yes
Ways to make it better...
If I had to make changes to this organization, I would...
their is nothing that i would change everything is wonderful their
I love Rosies Place. It is such a great place to connect with other families who also have children that are special needs. Rosie Place has the nicest volunteers and workers there. Everyone is very compassionate and caring. I'm very thankful that this area has Rosies Place because this is just what we needed in this area. We think of Rosie Place as our second home.
The Great!
I've personally experienced the results of this organization in...
all aspects. Rosie's Place has helped out with forming support groups, get togethers, and help meet other parents with speical need children.
Ways to make it better...
If I had to make changes to this organization, I would...
get more parents involved. Every parent with a special need child should be involved because Rosie's Place will be able to us (families) more, and the support groups will get bigger. It will be a great thing for the community.
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