Ntm Info & Research Inc
Rating: 5 stars 2 2 reviews
1550 Madruga Ave Ste 230 Suite 230 Coral Gables FL 33146 USA
NTMir's mission is to save and improve lives by promoting support, research, education, early detection, and improved treatment programs for those with pulmonary NTM disease.
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Reviews for Ntm Info & Research Inc
2 people found this review helpful
As a newly diagnosed patient with NTM, I have found the NTMir website to be very helpful. In fact, it is the only practical information for quality of life issues on the internet! I also attended the inaugural Washington, DC, support group lunch, and I found it to be extremely affirming. We are in this together, and it was so great to be able to ask questions and see the nods in understanding! Thank you for your work to shine a light on NTM and how it changes lives.
I've personally experienced the results of this organization in...
Seeking helpful and practical information about how to live with NTM. Especially helpful when connecting with other patients living with my particular "brands" of mycobacteria.
If I had to make changes to this organization, I would...
Highlight even more practical advice for people newly diagnosed with NTM. I can't seem to get enough information to feel comfortable with the major medical treatment I am about to begin. Launch an electronic "mentoring" program, pairing newly diagnosed patients with others who have blazed the trail for the specific treatment regimens.