No Stomach For Cancer saved my life - literally! After I had genetic testing that revealed I carried a rare gene that gave me an 80-90% chance of developing stomach cancer that couldn't be detected through screening, my genetic counselor referred me to NSFC and told me not to look at anything else on the internet. Through NSFC I found the surgeon who removed my stomach as a precautionary measure, but after surgery we learned that I'd had four spots of cancer that hadn't been detected prior to surgery. Having lost both my father (who was diagnosed as stage 1) and my grandfather very shortly after their diagnoses, I know that this cancer would have killed me if I hadn't pursued genetic testing and learned what I could do to avoid cancer and who specialized in working with this incredibly rare gene. The people at NSFC are all incredibly supportive and helpful, and their website is a treasure trove of useful information. Thanks to them, I'm now 15 months post surgery and have a long, healthy life to look forward to with my family!
The information that I obtained from the No Stomach for Cancer Website and from it's founder has been invaluable to me. After losing two close family members to stomach cancer and having two members with lobular breast cancer, I came upon this foundation and realized that there was a genetic component to all 4 of these cancer cases. I, subsequently, was tested for CDH1 gene mutation. After finding out that I had the mutation, I had a total gastrectomy. The personal stories on the NSFC website helped me navigate my recovery.
I donated to No Stomach for Cancer, Inc and participated in the November 2, 2013 walk for my husband who passed away from stomach cancer.
I wonder where all the money goes? What research is it donated to? The only mention I could find was a 2012 tax report saying 20,000 went to the University of Otago, New Zealand. At that site I could not find what was being researched for gastric cancer.
It is a good site for connecting to others going through gastric cancer, survivors and caregivers. Plus it offers a wealth of information. But, I would like more availability of information on where the money is going.
I found this organization when my brother was diagnosed with diffuse stomach cancer. I found their website to be a wealth of information and their community very supportive and empathetic. I posted several comments on their facebook page and the Chelcum family responded to all posts. I also communicate via email with the founder, Karen Chelcum and she and No Stomach for Cancer have become wonderful supporters during this difficult time. I lost my brother in March. My family hosted a fundraising event in May and we donated most of the proceeds to this organization. I support and look forward to No Stomach for Cancer's continued growth.
No Stomach for Cancer is a great way to network with other families and patients who share the same experience, decision-making, and struggles that my family does. I have learned from others and have made new acquaintances with people who truly understand what I'm going through.
I'm so thankful for that.