No Stomach For Cancer, Inc.
Rating: 4.77 stars 30 30 reviews
PO Box 46070 Madison WI 53744 USA
To support research and unite the caring power of people worldwide affected by stomach cancer. We advance awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC), provide a support network for affected families, and support research efforts for screening, early detection, treatment, and prevention of stomach cancer
patients, survivors, families, and caregivers affected by stomach cancer
Direct beneficiaries per year:
individuals from nearly corner of the globe better understand, treat, and live with stomach cancer
Geographic areas served:
Cooperation with researchers and medical instiutions
Education is one of our two core missions. Our goals include:
• Helping individuals and families to recognize their risks for Gastric Cancers
• Supporting medical professionals to identify families at risk, especially for Hereditary Diffuse Gastric Cancer Syndrome (HDGC), in time for preventive actions
• Sponsoring a National Gastric Cancer Awareness Month, and creating educational programs for people to use in their communities all over the world to promote greater awareness and prevention
• Stimulating and expanding interest in genetic cancers
• Promoting family health history efforts
• Recognizing that HDGC may be under-identified, and therefore encouraging genetic counseling at every early opportunity
• Providing an online support network for those affected by stomach cancer
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Reviews for No Stomach For Cancer, Inc.
2 people found this review helpful
I found No Stomach for Cancer, Inc. after researching information regarding genetic counseling and inherited gastric cancer. I had the CDH1 testing done after my son's physician recommended it. Both my father and brother had gastric cancer and the information from this site has been invaluable. I did test negative for the gene but am continuously inspired by this community and all that they do to strongly support one another. Thank you for your continued research in this area and the important information you are communicating to the world.
So glad to say that this organization is and has help me and my family become more knowledgeable and aware about cancer. My mom was a 1st in our family an ordeal I wish no one. There needs to be more stomach awareness. Please pay attention to your body. My mom had stomach pain was in and out of emergency hospitals only to tell her she had acid refex or GERD. That all started September 2013. After all that her ordeal was confirmed April 10th 2014 stomach cancer stage 3 curable but with insurance referrals and waiting for appts it metas to her liver putting her at stage 4. Chemo could no longer help. If she continued she would just have all symptoms and for what no quality of life. She didnt want that. Some would say that when they pass they lots the fight. I see it as she move on to a better journey of eternal greatness. Tell we meet again mommy i love you forever and alway.
No stomach for cancer was and has been wonderful at helping spread the word and knowledge of current statistics about stomach cancer! Their Facebook page has tremendously helped me! We just approached our one year anniversary of losing my mother in law to this horrible cancer! Through the FB page I am able to relate to other people who have gone through the same or are going through the same grief we have endured but more importantly they are trying to help fight this cancer by raising awareness and hopefully to allow more research! I'm thankful for being able to stay updated through their website and FB. It is my go to place when I need to do more than grieve!
Great organization helping get the attention out there about stomach cancer.
When my mom was diagnosed with stomach cancer and I wanted to see if there was a way to arrange one last vacation for her in spite of her feeding tube, I scoured the internet for any possible resource, not knowing where to even begin. I found No Stomach for Cancer, emailed them, not expecting much, and was contacted the next day. Someone called, talked to me for a long time both asking questions so they could make some contacts for me and just talking and asking about my situation. She invited me to join the Facebook support group and sent me t-shirts and bracelets and told me to contact her if I needed anything else. So comforting and helpful when I was feeling very upset, confused, and uneducated. I'm so glad they do what they do, and I'm so touched they were willing to go well beyond that to try to help me.
They are wonderful people! Someone to talk to, count on, and share with. A Help to people like me who have no one to turn to, to talk to about my husbands cancer. I can learn and share stories and know I'm not alone. And Yes, I donated to them instead of the ALS for the ice bucket challenge. They deserve a lot of recongnition!
I am a current cancer patient. Gastric cancer research is very badly underfunded, and this cancer does not get the recognition it needs. More often than not, this goes undiagnosed and untreated leading to poor prognosis. This has been thought as a disease that afflicts only older generations, but that is completely false. Many young, otherwise healthy, people are being devastated by this terrible disease, and any organization that shines a light on it is to be applauded. Awareness and early diagnosis are key to beating this monster, and NSFC is providing much needed visibility.
After testing positive for CDH1, my geneticist told me about NSFC and it has been a great resource of information and advice. I have not yet decided to have a total gastrectomy but the blogs and posts on what it is like have been a great resource so far!
1 person found this review helpful
I discovered NSFC when my father was diagnosed with gastric cancer and then found out he carried the CDH1 gene. My father was having issues after having his stomach removed and I reached out to NSFC for some advice. Somebody got back to me within 10 minutes. She was extremely helpful and sympathetic. My father passed away a year after his diagnosis. I found out I was positive for the CDH1 gene 2 weeks after my dad died. 5 more family members are carriers of this gene. NSFC was our saving grace!!! It was so helpful to talk to others who have gone through what my family was going through. So far, 5 members in my family have had a prophylactic total gastrectomy. NSFC prepared us so well for surgery and helped us find the best surgeon. They were there for us when we had questions after our surgery. I would strongly encourage anyone going through this to reach out to NSFC. I couldn't have done it without them!!!
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I have been diagnosed with the CDH1 gene which increases my chances of having stomach cancer to about 80%. My father and uncle have both passed away from Stomach cancer and my other uncle and aunt have both had their stomachs removed as a result of cancer. Due to the poor detection of stomach cancer through endoscopy, it is advised that those with the CDH1 gene have a total gastrectomy (removal of the stomach) which eliminates all risk. Based on our strong family history, I have elected to have the surgery. During my research of this gene I came across the NSFC website and have found it invaluable!! It gives factual information as well as personal experiences from others who have had TG and the opportunity to take part in discussion forums. I access this website on a weekly basis and will continue to do. It is very comforting to find such a site when diagnosed with this quite rare but deadly gene and to hear the experiences and receive the support from other members
I've personally experienced the results of this organization in...
enabling me to find out alot of vital information relating to my condition and therfore helping me make an informed decision to embark on my life changing surgery. Reading the personal stories and join into discussion groups has really given me comfort and made me feel as though I am not alone through this. The founder of this site, Karen, has also corresponded with me on several occasions about her experience and knowledge which has been amazing.
If I had to make changes to this organization, I would...
I cant think of any changes I would make - I think it is a wonderful organisation. I guess the only thing that would help is to be able to assist the site with more public awareness of this fantastic organisation and education around stomach cancer.