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June 17, 2011

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June 17, 2011

No Stomach for Cancer is an amazing resource for people who are unfortunately affected by this horrible disease. They provide so much information regarding stomach cancer as well as help to unite people from all over the world to share their stories. My husband recently lost his 7 year battle with gastric cancer and this organization provided some comfort to me by being able to read the stories of others who have battled this disease. This cancer is so over looked in the real world, in fact there were no organizations and very little information available when my husband was first diagnosed in 2004. My hope is that No Stomach for Cancer will get the attention it deserves and in turn bring more funding to help fight this very serious cancer.

The Great!

I've personally experienced the results of this organization in...

Bring more attention to Gastric cancer as well as help explain total gastrectomy. Also they provide support to people suffering from this disease.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Some

How did you learn about this organization?

Searching the internet

When was your last experience with this nonprofit?

2011

June 15, 2011

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June 15, 2011

I found this organization when my brother was diagnosed with diffuse stomach cancer. I found their website to be a wealth of information and their community very supportive and empathetic. I posted several comments on their facebook page and the Chelcum family responded to all posts. I also communicate via email with the founder, Karen Chelcum and she and No Stomach for Cancer have become wonderful supporters during this difficult time. I lost my brother in March. My family hosted a fundraising event in May and we donated most of the proceeds to this organization. I support and look forward to No Stomach for Cancer's continued growth.

The Great!

I've personally experienced the results of this organization in...

Stomach cancer is under-funded and under-researched, so finding No Stomach for Cancer has been an invaluable source of information and support. My brother's diffuse stomach cancer wasn't found to be linked to the gene mutation currently known to be associated with it. No Stomach for Cancer is working with the genetists that found this gene mutation and will soon uncover more genes that may be associated with it. This information will be beneficlal to my family and others.

Ways to make it better...

If I had to make changes to this organization, I would...

They are working hard on uncovering more information on a disease that is under-funded and under-researched. I wouldn't recommend changes but rather encouragement and support so they can continue their work.

June 15, 2011
1 person found this review helpful

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June 15, 2011
1 person found this review helpful

The summer of 2009 My youngest son complained of general abdominal discomfort but nothing that could be diagnosis. This went on thru the fall and early winter it just got worse with no one able to diagnosis what was wrong...Then Christmas Eve 2009 I got the worse news I think any mother ever can deal with. Ray was finally diagnosised with gastric cancer then we had to wait till monday to learn what type and what stage it was. That was 4 days away and it felt like a life time. Monday we were told it was signet cell adenocarcinoma of the stomach...any signet cell cancer is the worse to try to treat but we did. It was a long grueling time chemo was the only option because it had already advanced 9STAGE 4) and he had ascites. (fluid build up in abdominal cavity) He fought and lost his battle that August 10, 2010 thru this time it was suggested we have genetic testing done just to see...They drew the blood in February and said they would let us know, My dad had also died of gastic cancer about 10 years earlier. What a surprise in Feb. of 2011 when my daghter in law called to say she finally got Rays genetic test back and it was positive. It took my a few weeks to process this information but then I gathered myself and went to see the genetic testing doctor at our local hospital. So far three of my four adult childeren have recieved their tests and have been negative. I on the other hand am the carrier and came back positive. I have decided that I did not watch my father and son die horrible deaths from this awful disease for nothing ..I am having a gastrectomy next week to show my son Rays beautiful daughters they have nothing to fear if they do prove to be positive as adults and need gastrectomies (they are only 3 and 4 and can not be tested until they are in their late teens unless they get symptomatic) I pray they will find better screening in the next 10 years because without it having a gastrectomy is the logical alternative to prevent gastric cancer. I wISH I could do something to let all doctors be more aware of this killer of our young people. I am a nurse and my work brings across many people with gastric cancer and I wonder how many of them could be EChardin positive.

The Great!

I've personally experienced the results of this organization in...

It has been a helpful to have this organization to encourage us and a wealth of information that helped lead me to my decision.

Ways to make it better...

If I had to make changes to this organization, I would...

I WISH IT HAD A WIDER VIEWERSHIP SO MORE PEOPLE WOULD BE AWARE OF THIS LINK TO GASTRIC CANCER

June 15, 2011
1 person found this review helpful

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June 15, 2011
1 person found this review helpful

No Stomach for Cancer is a great way to network with other families and patients who share the same experience, decision-making, and struggles that my family does. I have learned from others and have made new acquaintances with people who truly understand what I'm going through.
I'm so
thankful for that.

The Great!

I've personally experienced the results of this organization in...

Meeting other people like me.

Ways to make it better...

If I had to make changes to this organization, I would...

Increase the funding and structure so that the organization could continue to grow and fund research through grants

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