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Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: The New Jersey Chronic Fatigue Syndrome Association, Inc. (NJCFSA) The mission is to support patients, disseminate reliable information, and promote research. It sponsors a wide range of activities including: support groups, Journal, physician/patient conferences, Helpline, healthcare professional and attorney referrals, website (www.njcfsa.org), lending library, medical education efforts, research grants, high school and medical school scholarships,Child/teen Emergency Fund and exhibiting at conferences (such as, NJ Education Association, NJ State Nurses Association, and the American Academy of Pediatrics/NJ.)

Programs: HS graduate Schloarship Medical Student Scholarship Annual Physician/Patient Conference Helpline Support Groups

Community Stories

10 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

They take on the challenge of making people aware of very devastating illnesses and advocating on their behalf.

Previous Stories

General Member of the Public

Rating: 5

The NJCFSA (http://www.njcfsa.org/) is a wonderful organization helping patients and families deal with ME/CFS - a very disabling illness. Just check their site to see the tremendous work they do.

frenchtulip

General Member of the Public

Rating: 5

The NJCFSA provides tremendous support to patients with ME/CFS and their families by providing reliable information through support groups, medical conferences, a journal, a lending library, and even a helpline. They support research, advocate for ME/CFS patients, and provide a scholarship annually to a student with ME/CFS. They also provide a scholarship annually to a medical student interested in the illness. The leaders are extremely professional and compassionate! The organization has a fine reputation internationally for helping those affected by ME/CFS and their families!

Previous Stories

General Member of the Public

Rating: 5

The NJCFSA offers compassionate support to patients suffering with chronic fatigue syndrome (ME/CFS) and their families. It makes available reliable information about ME/CFS through a variety of venues, including support groups, a journal, a lending library, medical conferences, and a helpline. The organization promotes research into ME/CFS, advocates for patients, and gives scholarships annually to a high school student with ME/CFS and a medical student interested in ME/CFS. The organization has outstanding leadership and is recognized internationally for the help it provides to the ME/CFS community. This is an excellent nonprofit making a huge difference in the lives of those with this debilitating disease and their loved ones!

Anne80

General Member of the Public

Rating: 5

The NJCFSA helps inform the public and the professional world about a devastating disease that is often trivialized. "Chronic Fatigue Syndrome" sounds benign ("yeah, I get tired, too") yet the reality is that a majority of sufferers are housebound and the sickest are unable to move. The majority of medical professionals know little or nothing of this illness and much of what they think they know is actually inaccurate. By providing solidly researched yet accessible information to professionals, they break down walls of stigma. By providing that information to the public, they empower very sick patients with practical knowledge. The benefit of the NJCFSA goes far beyond the residents of New Jersey, positively impacting people across the globe.

1 leelaplay

General Member of the Public

Rating: 5

NJCFSA is one of the outstanding ME/CFS groups. On top of the outstanding services they provide to their area, they also reach the international community, for eg a wallet card on ME/CFS to use at ER. This helped me work with my anaesthesiologists to come up with an ME protocol that worked for me. Previous surgeries had left me no longer able to care for myself for months.

General Member of the Public

Rating: 5

While there are many organizations that form a tapestry in the CFIDS community, the NJCFSA stands out in there commitment to disseminate information throughout the CFIDS community here in lovely New Jersey. They were there when I needed to find a physician for my young daughter when she developed CFIDS. They were there when I needed critical information through their conferences and now I like to return the favor by letting them know how appreciative I am for their dedicated work.

1 Eric18

General Member of the Public

Rating: 5

The NJCFSA have been working hard to serve an underserved patient population for many years. They have innovative ideas such as their scholarship for medical students. I think they have good connections to politicians, which is very valuable.

Previous Stories
1

Donor

Rating: 5

Even though I live in Europe, I know about the NJCFSA because of the excellent work they're doing.

1 Helen A.

General Member of the Public

Rating: 5

I live in Canada, but have found the information provided by New Jersey Chronic Fatigue Syndrome Association on their website very useful. I discovered this link after downloading some information for my physician from their site. I am appreciative to them for their help, and would like to thank them. I suspect they have no idea exactly how far reaching their effect is.

1

General Member of the Public

Rating: 5

The NJCFSA is 501 (c)(3) charity offering compassionate support to patients suffering with chronic fatigue syndrome (ME/CFS) and their families. It makes available reliable information about ME/CFS through a variety of venues, including support groups, a journal, a lending library, medical conferences, and a helpline. The organization promotes research into ME/CFS, advocates for patients, and gives scholarships annually to a high school student with ME/CFS and a medical student interested in ME/CFS. The organization has outstanding leadership and is recognized internationally for the help it provides to the ME/CFS community. This is an excellent nonprofit making a huge difference in the lives of those with this debilitating disease and their loved ones!

1

General Member of the Public

Rating: 5

My daughter has had CFS for about 20 yrs. It has seriously affected ger life adversely and has severly limited her ability to do normal activities. NJCFSA is a great organization that works very hard to help people with CFS and to raise money to find a cure for CFS, despite many of the people running it having this terrible illness that makes it very hard to do extra work. They also help organizing support groups for people with this illness. This is an excellent group to support!