New Jersey Chronic Fatigue Syndrome Association INC. (Njcfsa)

Rating: 4.96 stars   27 reviews

Issues: Health

Location: PO Box 477 Florham Park NJ 07932 USA

Mission: The New Jersey Chronic Fatigue Syndrome Association, Inc. (NJCFSA) The mission is to support patients, disseminate reliable information, and promote research. It sponsors a wide range of activities including: support groups, Journal, physician/patient conferences, Helpline, healthcare professional and attorney referrals, website (www.njcfsa.org), lending library, medical education efforts, research grants, high school and medical school scholarships,Child/teen Emergency Fund and exhibiting at conferences (such as, NJ Education Association, NJ State Nurses Association, and the American Academy of Pediatrics/NJ.)
Programs: HS graduate Schloarship Medical Student Scholarship Annual Physician/Patient Conference Helpline Support Groups
2012 Top-Rated Nonprofit
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EIN 22-3367433
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

They take on the challenge of making people aware of very devastating illnesses and advocating on their behalf.

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1 previous review
Rating: 5 stars  

The NJCFSA (http://www.njcfsa.org/) is a wonderful organization helping patients and families deal with ME/CFS - a very disabling illness. Just check their site to see the tremendous work they do.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

Pat LaRosa and the NJCFSA are one of the best organizations around. They bring education to schools and school nurses to educate them about pediatric ME/CFS. Our organization, PANDORA Org, has worked closely with NJCFSA on a 2 year project asking FDA for a stakeholder meeting for drug development. We were successful in landing the first Patient Focused meeting in spring of 2013. We continue to push for FDA treatments for ME/CFS.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

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