NJCFSA is a great organization that works very hard to help people with CFS and to raise money to find a cure for CFS, despite many of the people running it having this terrible illness that makes it very hard to do extra work. They also help organizing support groups for people with this illness. This is an excellent group to support!
This is a great organization. They hold anual workshops which bring patients and experts together to socialize and learn about new treatments. They have an annual scholarship fund which helps a college student and also helps spread knowledge of chronic fatigue syndrome. It is run all by volunteers and they make a huge difference in peoples lives with the chronic illness ME/CFS. I look foreward every year in the fall to go to the conference.
Received wonderful support and information from this organization. This organization is always truly willing to go out of its way to try to help people and families of someone with CFS. I am so thankful that when I was first diagnosed with CFS that I was able to find this organization and receive invaluable support and info on doctors, how to apply for disability benefits, etc. This organization brings in people from the outside such as Social Security administrators, health professionals, social workers, etc. so that you can obtain information and support. This orgainization is invaluable for someone with CFS!!!
Through NJCFSA, I was able to find a local support group for my husband, who has CFS, and me. The people, resources, and overall support have made a significant impact for my husband, me, and our marriage.
NJCFSA is very helpful in learning about the illness. The Annual Conference is a great way to learn about treatments; research findings; and share your thoughts and feelings with others. You are not alone. I attended 2010's Annual Conference. The Vermont CFSA's Film was shown. It was about people who have Chronic Fatigue and how they have been dealing with the illness. I purchased the DVD of the film because it was so meaningful to me. It was a long day for me, but it was well worth the trip. I miss my local Support Group very much. Betty was a great support group leader. Thank you Betty.