NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC. (NJCFSA)

Rating: 4.96 stars   27 reviews

Issues: Health

Location: PO Box 477 Florham Park NJ 07932 USA

Mission: The New Jersey Chronic Fatigue Syndrome Association, Inc. (NJCFSA) The mission is to support patients, disseminate reliable information, and promote research. It sponsors a wide range of activities including: support groups, Journal, physician/patient conferences, Helpline, healthcare professional and attorney referrals, website (www.njcfsa.org), lending library, medical education efforts, research grants, high school and medical school scholarships,Child/teen Emergency Fund and exhibiting at conferences (such as, NJ Education Association, NJ State Nurses Association, and the American Academy of Pediatrics/NJ.)
Programs: HS graduate Schloarship Medical Student Scholarship Annual Physician/Patient Conference Helpline Support Groups
2012 Top-Rated Nonprofit
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EIN 22-3367433
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Community Reviews

Rating: 5 stars  

I have personally attended a couple of seminars that the New Jersey Chronic Fatigue Syndrome Association Inc. (NJCFSA) hosted. They presented experts in the field of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) who gave very informative and interesting aspects of the disease.
These sessions were conducted very professionally and I was glad to have the opportunity to attend and gain insight. Since I live In New York, it was an easy drive for me and very worthwhile.

Thank you NJCFSA for everything that you do for us patients!

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Likely

When was your last experience with this nonprofit?

2009

Was this review helpful? 
Rating: 5 stars  

The New Jersey Chronic Fatigue Syndrome Association is a very worthwhile organization that offers information to patients, as well as advocating for acknowledgement and treatment of this often ignored illness. When our daughter was diagnosed, they provided our family with information for the school system, as well as recommendations for competent physicians. Their conferences are always excellent, with wonderful speakers....indeed, we met our daughter's current physician at one of these conferences. This has made a tremendous difference in our daughter's quality of life.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful? 
1 previous review
Rating: 5 stars  

1 person found this review helpful

NJCFSA gave me information when we needed it most, which was when we needed to deal with the school system concerning our daughter's inability to attend school. More important was the hope I gained when I met all the people dedicated to getting CFS recognized and treated. Lastly, the group presents an extremely informative conference on the latest research on CFS on a yearly basis. As a result of one of the conferences, I was able to find the physician who is currently treating my daughter.

I've personally experienced the results of this organization in...

my ability to comprehend the research and treatment of CFS. I've also benefitted from the conferences the group organizes yearly. The quality and knowledge of the speakers is impressive--- always cutting-edge.

If I had to make changes to this organization, I would...

hope that they could find more volunteers as well as funds to continue to run the organization.

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Rating: 5 stars  

1 person found this review helpful

The NJCFSA is an organization dedicated to helping those suffering from the debilitating effects of Chronic Fatigue Syndrome (CFS), or Myalgic Encephalomyelitis (ME). They run support groups; publish an informational Journal; have a lending library for books, audios and videos on CFS and chronic diseases; disseminate information to doctors, health care providers, and patients; put on an annual health conference of medical experts in the field; support ME/CFS research; provide college and medical school scholarships; exhibit at health fairs; run a toll-free HelpLine; participate in advocacy and awareness projects; plus many, many other activities – ALL of which is done solely by volunteers, including a completely volunteer Board of Directors! How they accomplish so much is mind-boggling!! Go to www.njcfsa.org for more information!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Developed CFS and nobody could help or even understand. NJCFSA had support meetings, literature, phone contacts, doctor referrals and more. It put things in perspective for me and made me feel confident about dealing with this tricky illness. I found good information, friends, hope and even a wife. I am very grateful to NJCFSA being there when I was in need.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This Orginization gave me help when my daughter was first diagnosed with CFS many years ago. At that time there was not an awareness of the illness. This group helped us realize that it was a real illness and helped us get the accomodations she needed to finish High School.

I've personally experienced the results of this organization in...

Seeing children helped in schools from the information we have provided them and their school districts.

If I had to make changes to this organization, I would...

Get more volunteers involved and get more money to continue the programs we are already doing and to expand our services.

Was this review helpful?