NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC. (NJCFSA)
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December 10, 2012
While there are many organizations that form a tapestry in the CFIDS community, the NJCFSA stands out in there commitment to disseminate information throughout the CFIDS community here in lovely New Jersey. They were there when I needed to find a physician for my young daughter when she developed CFIDS. They were there when I needed critical information through their conferences and now I like to return the favor by letting them know how appreciative I am for their dedicated work.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
November 4, 2012
1 person found this review helpful
The NJCFSA have been working hard to serve an underserved patient population for many years. They have innovative ideas such as their scholarship for medical students. I think they have good connections to politicians, which is very valuable.
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Will you volunteer or donate to this organization?
Unsure
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
May 2, 2012
1 person found this review helpful
Even though I live in Europe, I know about the NJCFSA because of the excellent work they're doing.
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Was your donation impactful?
Likely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Likely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 26, 2012
1 person found this review helpful
I live in Canada, but have found the information provided by New Jersey Chronic Fatigue Syndrome Association on their website very useful. I discovered this link after downloading some information for my physician from their site. I am appreciative to them for their help, and would like to thank them. I suspect they have no idea exactly how far reaching their effect is.
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Will you volunteer or donate to this organization?
Unsure
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
October 24, 2012
The New Jersey Chronic Fatigue Syndrome Association is a very worthwhile organization that offers information to patients, as well as advocating for acknowledgement and treatment of this often ignored illness. When our daughter was diagnosed, they provided our family with information for the school system, as well as recommendations for competent physicians. Their conferences are always excellent, with wonderful speakers....indeed, we met our daughter's current physician at one of these conferences. This has made a tremendous difference in our daughter's quality of life.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
August 18, 2011
1 person found this review helpful
NJCFSA gave me information when we needed it most, which was when we needed to deal with the school system concerning our daughter's inability to attend school. More important was the hope I gained when I met all the people dedicated to getting CFS recognized and treated. Lastly, the group presents an extremely informative conference on the latest research on CFS on a yearly basis. As a result of one of the conferences, I was able to find the physician who is currently treating my daughter.
The Great!
I've personally experienced the results of this organization in...
my ability to comprehend the research and treatment of CFS. I've also benefitted from the conferences the group organizes yearly. The quality and knowledge of the speakers is impressive--- always cutting-edge.
Ways to make it better...
If I had to make changes to this organization, I would...
hope that they could find more volunteers as well as funds to continue to run the organization.
1 person found this review helpful
October 17, 2012
1 person found this review helpful
The NJCFSA is 501 (c)(3) charity offering compassionate support to patients suffering with chronic fatigue syndrome (ME/CFS) and their families. It makes available reliable information about ME/CFS through a variety of venues, including support groups, a journal, a lending library, medical conferences, and a helpline. The organization promotes research into ME/CFS, advocates for patients, and gives scholarships annually to a high school student with ME/CFS and a medical student interested in ME/CFS. The organization has outstanding leadership and is recognized internationally for the help it provides to the ME/CFS community. This is an excellent nonprofit making a huge difference in the lives of those with this debilitating disease and their loved ones!
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 13, 2012
1 person found this review helpful
My daughter has had CFS for about 20 yrs. It has seriously affected ger life adversely and has severly limited her ability to do normal activities. NJCFSA is a great organization that works very hard to help people with CFS and to raise money to find a cure for CFS, despite many of the people running it having this terrible illness that makes it very hard to do extra work. They also help organizing support groups for people with this illness. This is an excellent group to support!
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Will you volunteer or donate to this organization?
Unsure
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 12, 2012
1 person found this review helpful
NJCFSA is a great organization that works very hard to help people with CFS and to raise money to find a cure for CFS, despite many of the people running it having this terrible illness that makes it very hard to do extra work. They also help organizing support groups for people with this illness. This is an excellent group to support!
More feedback...
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 8, 2012
1 person found this review helpful
This is a great organization. They hold anual workshops which bring patients and experts together to socialize and learn about new treatments. They have an annual scholarship fund which helps a college student and also helps spread knowledge of chronic fatigue syndrome. It is run all by volunteers and they make a huge difference in peoples lives with the chronic illness ME/CFS. I look foreward every year in the fall to go to the conference.
The Great!
I've personally experienced the results of this organization in...
being able to feel a sense of community with people who understand living with CFS.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2011
How did you find this group?
internet
1 person found this review helpful
October 3, 2012
1 person found this review helpful
The NJCFSA is an organization dedicated to helping those suffering from the debilitating effects of Chronic Fatigue Syndrome (CFS), or Myalgic Encephalomyelitis (ME). They run support groups; publish an informational Journal; have a lending library for books, audios and videos on CFS and chronic diseases; disseminate information to doctors, health care providers, and patients; put on an annual health conference of medical experts in the field; support ME/CFS research; provide college and medical school scholarships; exhibit at health fairs; run a toll-free HelpLine; participate in advocacy and awareness projects; plus many, many other activities – ALL of which is done solely by volunteers, including a completely volunteer Board of Directors! How they accomplish so much is mind-boggling!! Go to www.njcfsa.org for more information!
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 3, 2012
1 person found this review helpful
Received wonderful support and information from this organization. This organization is always truly willing to go out of its way to try to help people and families of someone with CFS. I am so thankful that when I was first diagnosed with CFS that I was able to find this organization and receive invaluable support and info on doctors, how to apply for disability benefits, etc. This organization brings in people from the outside such as Social Security administrators, health professionals, social workers, etc. so that you can obtain information and support. This orgainization is invaluable for someone with CFS!!!
The Great!
I've personally experienced the results of this organization in...
Attending meetings, receiving information, attending presentations.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
How did you find this group?
Internet
What, if any, change in your life has this group encouraged?
Asking for support and help when needed.
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