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Nonprofit Overview

Causes: Health, Neurology & Neuroscience Research

Mission: NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.

Results: We are able to fund vital research and clinical trials. Also, approximately 12-14 kids get to attend Camp New Friends for one week in the summer.

Target demographics: All races and ages and both genders.

Geographic areas served: Families affected by neurofibromatosis living in Illinois, Wisconsin, Indiana, Iowa, Kentucky and Eastern Missouri

Programs: Annual Family Symposium, Ask the Doctor Sessions, Local Chapters, and Camp New Friends

Community Stories

6 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

NF Midwest has been a true blessing. My husband and my son have Neurofibromatosis .
We didn't know who to talk to, doctors and support.
My husband has NF 1, he is a Veteran . And goes to VA hospital. Our son has NF 1. He has had to have surgeries to remove fibros . We have run into many obsticals.
As NF family we need to talk to people who have gone threw what we where, emotionally. Physical and financially .
Without Support of NF Midwest
I don't know where we be now.

General Member of the Public

Rating: 5

I love NF Midwest. Ever since I discovered them they have helped us so much. I have learned so much from the ladies here and they are more then willing to help everybody.

General Member of the Public

Rating: 5

This is an amazing charity, it helps people with Neurofibromatosis (NF) connect with each other and raise money to research NF to help find a cure.

General Member of the Public

Rating: 5

This organization has been instrumental in spreading awareness and raising funds for those in the Midwest that suffer from Neurofibromatosis. They truly care about finding a cure. They are supportive not only to those that have NF, but their families as well. It is where my family first turned to when I was little to get the information they so greatly needed.

General Member of the Public

Rating: 5

We felt alone in the world when our son was diagnosed with NF1. NF Midwest reached out to us. With the help of this organization we have learned so much and made a lot of new friends

Robin163

General Member of the Public

Rating: 5

im in kentucky , when they said my son tested positive for nf1 i was lost and didnt know where to turn , had very little info on what to do next or who to even talk to on how to help my child . they sent me an info kit that was very well organized and called me without asking to guide me and just give me pointers etc , thank you so much