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October 17, 2014

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October 17, 2014

Fantastic resource! We found this organization while frantically searching the internet the day our daughter was diagnosed with Nephrotic Syndrome over four years ago. It has been a source of hope for us over the years. The Nephcure Foundation is funding vital research projects that are needed to help find a cause and cure for Nephrotic Syndrome. My parents have friends whose son was also affected by this disease and my daughter is being treated exactly how their son was treated 40 years ago, more research is needed for more treatment options!! Thank you Nephcure Foundation for your fundraising and research efforts, as well as your support of patients and families. We will continue to support Nephcure and we are proud to be associated with this organization. Thank you Nephcure Foundation!
September 7, 2013

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1 previous review
June 10, 2011

Ponder the words of Sir Winston Churchill:"Never have so many owed so much to so few." These word adequately describe the unwavering and selfless actions of all those involved with the Nephcure Found... more

September 7, 2013

"Never have so many owed so much to so few"- Winston Churchill. As a supporter of the Nephcure Foundation this quote come to mind when I think about the support available to those afflicted with this devastating disease. The undying support available coupled with the progress made to understand this disease, gives hope to those afflicted and will create a path to the cure.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

June 10, 2011

Ponder the words of Sir Winston Churchill:"Never have so many owed so much to so few." These word adequately describe the unwavering and selfless actions of all those involved with the Nephcure Foundation. More than just raising money and awareness, this Foundation is determined to couple those who are afflicted with this life changing disease with those Health Care professionals who can help. I feel honored to be around such people.

The Great!

I've personally experienced the results of this organization in...

Texas Holde'em Fundraisers and have dealt personally with their Board members

Ways to make it better...

If I had to make changes to this organization, I would...

The old adage "if it ain't broke,don't fix it" is more apropos than thinking that this charitable organization needs to be changed.

September 7, 2013

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September 7, 2013

I have been involved with Nephcure for about 7 or 8 years ever since my closest friend in the world, Michael Levine's son Matthew was diagnosed with FSGS/Nephrotic Syndrome. I have seen how this charity has been growing in recognition and effectiveness every year. The charity has improved its fundraising and events and organization dramatically. The money raised GOES TO THE FINDING OF A CURE, not to frivolous costs. Nephcure is changing lives by giving children a future, who once had none. With all the dedication that the volunteers and friends and family members put into Nephcure, it is truly a model for other charitable organizations. I cannot say enough about how great Nephcure is and how much it is giving hope to those who once had none.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

June 10, 2011

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June 10, 2011

I have had four kidney transplants. After each one the Nephcure foundation was there to assist me and support me. The people at Nephcure are truly motivated to finding a cure. They are also the most dedicated and caring people that I have ever met. Without Nephcure there would be limited research in to these diseases (fsgs and nephrotic syndrome). Nephcure gives me hope that one day I will live a "normal" life. This keeps me going.

The Great!

I've personally experienced the results of this organization in...

Support and information on treatments for FSGS

Ways to make it better...

If I had to make changes to this organization, I would...

None

June 9, 2011

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June 9, 2011

My 12 year daughter has battled an incurable kidney disease called FSGS since was 2; we recently lost our battle and her kidneys to this kidney destroying illness! There is simply no excuse WHY our children have to go through this devastating horrific illness.........Nephcure is the ONLY organization that is fighting every second of every day to find a cure! This group of dedicated unrelenting people, will not stop until we wipe this illness from the face of the earth. Anyone that is part of this organization is truly a special person. To put a wife (kidney donor) and 12 year old daughter in side by side operating rooms to undergo a 4-5 hour major surgery is simply unacceptable!!!

The Great!

I've personally experienced the results of this organization in...

I have been personally a part of this organization shortly after my daughter was diagnosed over 9 years ago

Ways to make it better...

If I had to make changes to this organization, I would...

Make sure that all the dedicated people that work there are given a round of applause every day when they finish another day searching for a cure!

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