NEPHCURE FOUNDATION
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June 10, 2011
I was introduced to the Nephcure foundation when a close friend of mine son was diagnosed with F.S.G.S a very rare kidney disease…the family did not know who to turn to…
86 cents out of every dollar they raise goes to research and education. They are helping to fund 30 research projects around the world. They are also helping to fund a database and registry for F.S.G.S (Focal Segmental Glomerusclerosis) and Nephrotic Syndrome patients. Also there board members and volunteers work day and night trying to come up with events and networking ideas to get this disease the attention it deserves….Since it is a rare disease (though becoming an epidemic)…most children go undiagnosed until its too late simple because there symptoms goes unnoticed, also because of HIPA laws…it is very hard for families to find help…
This non for profit is a miracle for anyone whose life is touched with this horrific disease…there passion in finding a cure and helping people now in the present find stability in their lives…is a true miracle…
www.nephcure.org
The Great!
I've personally experienced the results of this organization in...
In fund raising, and helping to educate community about Chronic kidney dieases
Ways to make it better...
If I had to make changes to this organization, I would...
Make it bigger
June 10, 2011
I discovered the Nephcure Foundation through a friend of mine who's son struggles with fsgs, a rare kidney disease. I was amazed at the strides that the Nephcure foundation has made, and believe that with more awareness, they will find the cure to this disease, and prevent the suffering of so many children and their families.
The Nephcure Foundation, www.nephcure.org is an inspirational group, and is deserving of our support. I'd ask people to spread the word and make sure The Nephcure Foundation gets the attention it needs.
The Great!
I've personally experienced the results of this organization in...
seeing how it's help is needed to fight kidney disease, especially in young children.
Ways to make it better...
If I had to make changes to this organization, I would...
Try to get more public awareness.
June 10, 2011
I first got involved with the Nephcure Foundation when I heard about my boss and his son's struggles with the rare kidney disease, fsgs. No child should ever have to suffer through such a debilitating disease. Please support the Nephcure Foundation and their fight to find a cure.
The Great!
I've personally experienced the results of this organization in...
Great strides have been made in research on this rare kidney disease.
Ways to make it better...
If I had to make changes to this organization, I would...
More publicity to get the word out regarding the organization.
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