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Nonprofit Overview

Causes: Health, Health Care, Medical Research, Specifically Named Diseases

Mission: Our mission is to save the lives of children and adults suffering from the catastrophic effects of UCDs. We do this through REACH: Research: Stimulating research for new treatments and a cure. Education: Providing information on treatment and management to both medical professionals and affected families. Awareness: Raising awareness so that no child or adult goes undiagnosed. Community: Providing support for all those affected. Hope: Together, we WILL conquer urea cycle disorders.

Results: Recipent of 2010 Child Neurology Foundation Advocacy Award of Merit, recognizing outstanding achievements on behalf of children with developmental and neurological disabilities.

Target demographics: Save the lives of children and adults affected by urea cycle disorders

Direct beneficiaries per year: over 700 patients, their families and medical professionals

Geographic areas served: International

Programs: research, education, support

Community Stories

1 Story from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

I first heard about NUCDF 12 years ago when my son was diagnosed with a different rare disorder that also has hyperammonemia. The executive director was very helpful in explaining hyperammonemia to me and sending us in the right direction. A couple years later, I started a non-profit with other families for my son's disorder. NUCDF has mentored our organization and partnered with us on a number of projects. I am thankful for their advice, support, partnership and friendship. I am a more informed parent as well as a better leader because of NUCDF and would recommend them for 2012 Top-Rated Awards.