National Urea Cycle Disorders Foundation

Rating: 4.95 stars   19 reviews

Issues: Health

Location: 75 S Grand Ave Pasadena CA 91105 USA

Mission: Our mission is to save the lives of children and adults suffering from the catastrophic effects of UCDs. We do this through REACH: Research: Stimulating research for new treatments and a cure. Education: Providing information on treatment and management to both medical professionals and affected families. Awareness: Raising awareness so that no child or adult goes undiagnosed. Community: Providing support for all those affected. Hope: Together, we WILL conquer urea cycle disorders.
Results: Recipent of 2010 Child Neurology Foundation Advocacy Award of Merit, recognizing outstanding achievements on behalf of children with developmental and neurological disabilities.
Target demographics: Save the lives of children and adults affected by urea cycle disorders
Direct beneficiaries per year: over 700 patients, their families and medical professionals
Geographic areas served: International
Programs: research, education, support
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EIN 41-1661444
626-578-0833
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Community Reviews

Role: Professional with expertise in this field
Rating: 5 stars  

I first heard about NUCDF 12 years ago when my son was diagnosed with a different rare disorder that also has hyperammonemia. The executive director was very helpful in explaining hyperammonemia to me and sending us in the right direction. A couple years later, I started a non-profit with other families for my son's disorder. NUCDF has mentored our organization and partnered with us on a number of projects. I am thankful for their advice, support, partnership and friendship. I am a more informed parent as well as a better leader because of NUCDF and would recommend them for 2012 Top-Rated Awards.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

 
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