Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
16 Reviews
Write A Review
March 11, 2010


March 11, 2010

As the former VP of Clinical Operations for a small biotech, I was introduced to the NUCDF in affiliation with my company's UCD research program. Cindy LeMons, as well as several members of the UCD Consortium provided critical input and expert advice to aid in designing feasible studies for this rare and very special patient population. Earlier this year, I stepped down from my executive position in order to devote more time to my personal endeavors including helping non-profits with high impact potential, like the NUCDF. When I attended my first NUCDF Family Conference in June 2008, I not only learned all the ways the NUCDF has supported UCD patients and their families through research, awareness and education, but I had the rare experience of meeting and listening to the testimonies of dozens of UCD patients, their families and the physicians and nurses who treat them. In my 25 yrs of working in clinical research, I had never witnessed such a collaborative and meaningful exchange of data and information with the sole purpose of finding a cure for UCD. That meeting as well as those before and after were made possible by the NUCDF, as well as the testimonies of how the long, loving arms of this special organization has and continues to reach out to the countless children and adults throughout the country who are affected by UCD. I am privileged and honored to be an active donor and volunteer for the NUCDF.

The Great!

I've personally experienced the results of this organization in...

hearing direct feedback from UCD patients and their families who have received, in many cases, life-saving information and support.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The determination and drive to find a cure for UCD and actively provide support to these patients and their families until such time that a cure is found.

The kinds of staff and volunteers that I met were...

the dedicated Executive Director (Cindy LeMons) and some of the board members.

If this organization had 10 million bucks, it could...

enable more targeted UCD research and save more lives by expanding their current reach.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?


Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

contact us to share their energy, time and talents.