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17 Reviews
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April 8, 2013

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1 previous review
March 30, 2011

My involvement with the National Resource Center began when I researched organizations that benefited working mothers and a variety of health care topics for newsletters I was writing. The NRC name ke... more

April 8, 2013

Diana Zuckerman and the National Research Center for Women & Families is an incredible resource for evidence-based medical facts on a variety of topics from healthy living to hormone replacement therapy, from work and family issues and survival guides to smoking, drinking, violence and other risky behaviors.

In addition, The Cancer Prevention and Treatment Fund is the new name for all the work the National Research Center for Women & Families does to help adults and children reduce their risk of getting cancer and to make sure that everyone gets the best possible treatment.

The NRC does a fabulous public service as far as vetting information and providing evidence through which one can make an intelligent decision when it comes to health and family decisions. Their information is reliable and totally unbiased.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

March 30, 2011

My involvement with the National Resource Center began when I researched organizations that benefited working mothers and a variety of health care topics for newsletters I was writing. The NRC name kept appearing. Investigating the NRC further, I was especially impressed by its interest and involvement in work/family balance issues and on providing assistance to women in their multi-faceted lives, which often prove extremely stressful due to needing to balance multiple responsibilities. The amount of support and tools the NRC offers is incredible! Having been a single working mom myself, I was very impressed and found the information NRC provides personally very useful.

The Great!

I've personally experienced the results of this organization in...

As a result of my findings and the impression I developed about the organization, I invited the president of the NRC to speak to a group of professional and college women in Chicago and became a supporter of the organization, benefiting from its newsletters and website information.

Ways to make it better...

If I had to make changes to this organization, I would...

somehow provide them with more visibility so they can better reach a wider audience. For a small group, they have been doing great things!

March 28, 2012

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1 previous review
March 28, 2011

I have been very impressed with the way the center uses scientific findings to inform policy and advocacy. Women depend on the Center's website for credible information about health issues affecting t... more

March 28, 2012

The National Research Center for Women & Families is an invaluable resource for unbiased, science-based information to help women make better health decisions for themselves and their families.

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2000

March 28, 2011
1 person found this review helpful

I have been very impressed with the way the center uses scientific findings to inform policy and advocacy. Women depend on the Center's website for credible information about health issues affecting them and their children. The CEO has a voice that is heard in government agencies, the media, on the Hill!

Their dialogues and presentations are inspiring others to do good and do more.

The Great!

I've personally experienced the results of this organization in...

Whenever the organization is quoted in the media, they give informed opinions on topics that are relevant to all women.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish it had a larger funding base to expand its efforts

April 1, 2011

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April 1, 2011

In 1968, at the age of 22, I received silicone implants after a bilateral mastectomy. For years I tried to tell doctors that I was ill from the implants, it seemed that no one would listen, nor really cared to listen.

Then National Research Center for Women worked hard to let us women have
a voice and tell our stories before the FDA. Their efforts gave implanted women the opportunity to present our stories to the FDA.

And, The National Research Center for Women did this more than once.. and are still letting trying

Not only for the implanted to be heard, but so the young women who are considering getting implants will know the truth about implants, silicone and saline.

There is much information on NRC website on many subject of interest to women and is unbiased information.

The Great!

I've personally experienced the results of this organization in...

I spoke before the FDA twice on the silicone implant issue. NRC helped me by building my confidence. They helped me prepare for my speech, I wrote the words, wrote what I was feeling and told about my experience, they listen while I practiced. It helped me so when I spoke before the FDA I could say the word " breast " without feeling embarrassed and "cancer" without crying. Hard to talk about your body before strangers and relive the experience. My story and photo are on NRC's Website.

Ways to make it better...

If I had to make changes to this organization, I would...

Make none.

March 30, 2011

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March 30, 2011

I've spent over twenty years of my life suffering. I had silicone/saline breast implants. I know of thousands of others that are searching for unbiased /truthful information & feeling that we are not being heard or helped by the people who are suposed to be protecting the public. I first came across NRC when I was searching for information about my second set of implants that were ruptured. There was no trauma that caused the implants to rupture. I just awoke & it was deflated. I found NRC site very helpful! I really like the fact that the site shows you what studies have been done, what the research shows, who did the studies & most of all that the TRUTH is being told. Such a valuable site!
I phoned NRC a few different times. After explaining my situation Dr. Diana Zuckerman got on the phone. She was very helpful & so informative each time. She helped make a dying womens wish come true. Someone very dear to me passed on & had silicone breast implants from the 1970'S. She & her husband wanted to leave their bodies to science. There are certain restrictions having a body donated. I knew the implants had to be of interest. I was going in circles at the time & reached out to NRC. Thanks to the information & help I recieved I was able to get her donated to UCSF. Her husband passed a few weeks later. He too was donated. Our family will be forever grateful for NRC. I guess the implants were good for something. I'm really grateful for NRC & all they do to help women & their families!

The Great!

I've personally experienced the results of this organization in...

my personal life. The knowlege I gained from National Research Center is remarkable. The personal care given in my time of need was appreciated.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

thru a site seach for breast implants.

What, if any, change in your life has this group encouraged?

I want to help more people. By Dr. Zuckerman taking time & just talking to me made me see that by taking just a little extra time for someone can make a life changing impact. As it did not only in my life but many many loved ones lives.

When was your last experience with this nonprofit?

2011

March 29, 2011
1 person found this review helpful

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March 29, 2011
1 person found this review helpful

I have been a donor and volunteer for the National Research Center for Women & Families ("NRC") since its inception. NRC fills an important gap between scientific research and the public's understanding of that research and how it affects their personal lives. NRC's newsletter and other publications are concise yet informative, easy to read, and really interesting. I also think it's really important to have an impartial voice in public policy and a watchdog over the FDA as it considers issues such as breast implants, cosmetics, food coloring, etc. NRC's president has many years of experience investigating Federal agencies as a Congressional staffer, so she is very knowledgeable about their inner workings; and now as president of NRC, she frequently testifies at agency and Congressional hearings. Competing lobbyists have a strong influence on public policy and it's often difficult to know whether to believe what they say. The NRC does not accept advertising, so its views on various issues of public policy are an important counterbalance to the powerful lobbying organizations.


The Great!

I've personally experienced the results of this organization in...

I have read every copy of NRC's newsletter since its founding and in each issue I find information that I can use in my personal life, for example, when I was having problems with side effects of a prescription drug. NRC's coverage of cancer issues is excellent, which is of interest to me because my sister has had a recurrence of breast cancer after 15 years cancer-free. I also appreciate that the NRC is an impartial watchdog for federal agencies like the FDA and EPA.”

Ways to make it better...

If I had to make changes to this organization, I would...

As with many nonprofits, the NRC is understaffed and stretched thin to cover all the issues that need to be addressed by an impartial organization, particularly since many public policy decisions are made based on distorted information coming from competing lobbying organizations.

March 29, 2011

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March 29, 2011

I first used National Research Center for Women and Children when I was having a great problem with ruptured silicone implants (one capsule had even collapsed). The NRC has a website with information that other sites did not have, and I was frantic, because of all the health [problems I was experiencing.. The site gave me a very good explanation of what had happened..

The Great!

I've personally experienced the results of this organization in...

I have received very useful information about the risks and benefits of different medical products, and I've also told my story on their web site. NRC's website is a most important source of unbiased information - not "paid propaganda".

Ways to make it better...

If I had to make changes to this organization, I would...

I see no need for improvement; Dr. Zuckerman testifies before the FDA fairly frequently; often is a guest on both local and national TV, and is often quote in national newspapers. The work of the organization is exemplary.

March 29, 2011

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March 29, 2011

I was told by a friend that the National Research Center for Women & Families might be able to help me with a needs assessment I was doing for my nonprofit organization. The goal of my needs assessment was to find out what the unmet needs were of adult survivors of child abuse and neglect. They provided free technical assistance for my national survey. Their expertise and willingness to provide helpful insights and suggestions will be invaluable as I prepare a more local version of my needs assessment.

The Great!

I've personally experienced the results of this organization in...

When I asked for advice regarding the needs assessment we were conducting, they helped me figure out how best to analyze the data and what changes might be helpful for the future use of the survey instrument.

Ways to make it better...

If I had to make changes to this organization, I would...

At this time, I don't have any recommendations for any changes.

March 28, 2011

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March 28, 2011

I had the opportunity to volunteer with the National Research Center for Women & Families this past Fall, which was a wonderful, and certainly eye-opening, experience. I am currently in the process of applying to medical school, and I found my internship to give me a valuable perspective on health and patient safety. Throughout my time at NRC, I saw how the small team there works passionately and tirelessly in their efforts to advocate on behalf of patient safety, be it through testifying, writing op-eds, publishing research, etc. I had the opportunity to write health articles for the website, which revealed to me the strong emphasis NRC places on providing the public with research-based and objective information. The organization works with pivotal issues that often fall under the radar of many organizations. I was fortunate to help prepare for a conference on ductal carcinoma in-situ (DCIS), which revealed to me the thorough process through which NRC develops patient informational guides (taking into account a vast array of considerations, including cultural and socioeconomic factors). As both a patient, and someone who aspires to be a physician, I was certainly inspired by my experience at NRC, and I look forward to seeing the work they do in the future.

The Great!

I've personally experienced the results of this organization in...

Learning more about health topics through ready their research-based health articles.

Ways to make it better...

If I had to make changes to this organization, I would...

recommend using a database that more systemically groups different types of contacts (so that the organization could quickly outreach to targeted contact lists for different purposes, such as promoting upcoming events via email, fundraising or sending health information via mailings).

March 28, 2011

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March 28, 2011

I had the privilege of serving as a policy & research volunteer in the summer of 2010. While at the NRC, I had the opportunity to work with a wonderful staff and many outside coalitions who were very much dedicated to bettering the health of women and families. They did this by (1) conducting research to provide accessible, easy-to-understand, accurate information on a variety of health issues, (2) advocating for fair, unbiased health-related policies to serve the best interests of women, and (3) collaborating with other organizations and agencies to ensure the health and safety of women, children, and families in policies and practices.
It is a great organization with a great mission and great, dedicated staff!

The Great!

I've personally experienced the results of this organization in...

benefiting from the policies that they have promoted and in gaining knowledge across a variety of health issues that affect both me and those around me.

Ways to make it better...

If I had to make changes to this organization, I would...

secure more funding for the organization to extend it's size and scope of influence.

March 28, 2011

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March 28, 2011

In the summer of 2009, I was fortunate enough to be accepted as an intern at the National Research Center for Women and Families. At NRC I had the opportunity to conduct research on women's health policy, health research, and health communications. It was such an exciting opportunity to be surrounded by a team of professionals dedicated to the advancement and empowerment of women's health policy. Seeing first-hand what it really meant to prepare sign-on letters, observe testimony, and assist in the preparation of grant proposals is an experience I will take with me throughout my career.

The Great!

I've personally experienced the results of this organization in...

Assisting on social networking sites.

Ways to make it better...

If I had to make changes to this organization, I would...

delegate more specific tasks to interns.

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