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18 Reviews
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October 24, 2012

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2 previous reviews - show all
May 2, 2011

My dad died of Lung Cancer a while ago... But when my friend Nancy was diagnosed, it was just "too much"! It was at this point I learned about The Partnership. They have it all together... With Nancy ... more

October 24, 2012

I am actually a Board Member of the PA Lung Cancer Partnership which is a state chapter of the larger National LCP. We/they are raising money for research to lick lung cancer. Some of the money goes to research goals like find a cure, find a screening, build awareness and give people hope where there has not been much! They also educate advocates like me on how to make a difference!

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

May 2, 2011

My dad died of Lung Cancer a while ago... But when my friend Nancy was diagnosed, it was just "too much"! It was at this point I learned about The Partnership. They have it all together... With Nancy and some other advocate/volunteers, we started our own PA Lung Cancer Partnership here in PA. I am now a board member. We get support for our fund-raising, and we know all the money we raise goes to: Research. Awareness. Change. Everything you would want your money to go to. We feel like we are putting our money where our mouth is!! And National helps us do it! This IS THE organization for Lung Cancer- hitting all the points that will make the most difference!

The Great!

I've personally experienced the results of this organization in...

I've seen 6 or 7 people a year getting money to research Lung Cancer. I've seen the labs they work in. I've gone to "Summits" where we learn how to do things, such as, how to engage the media and talk to politicians to gain their support for publicity and funding.

Ways to make it better...

If I had to make changes to this organization, I would...

Not change one thing, except to make them richer!!

July 27, 2009

The National Lung Cancer Partnership is a group of leading doctors, researchers, patient advocates, and lung cancer survivors who are working together to improve treatments for lung cancer patients. They are dedicated to raising public awareness of the disease and generating funding for lung cancer research.

Ways to make it better...

If I had to make changes to this organization, I would...

Change nothing!

More feedback...

The kinds of staff and volunteers that I met were...

Amazingly knowledgeable and dedicated!

If this organization had 10 million bucks, it could...

Decrease deaths due to lung cancer, and help patients live longer and better, through research, awareness, and advocacy.

Ways to make it better...

NOTHING!

In my opinion, the biggest challenges facing this organization are...

Funding for research and growth of the organization

One thing I'd also say is that...

NLCP's mission: * Raising awareness of the deadly impact of lung cancer on both women/men * Increasing funding for lung cancer research *Encouraging professionals to enter into and be successful in lung cancer research * Educating and empowering patients

When was your last experience with this nonprofit?

2009

July 2, 2011
1 person found this review helpful

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Review from CharityNavigator
July 2, 2011
1 person found this review helpful

This is my 5th year of advocating for the National Lung Cancer Partnership. I randomly participated in their Free to Breathe walk in Philadelphia back in 2007 because I wanted to start giving back to the community. Then the hammer was dropped the next day when i found out that my cousin back home was diagnosed with stage IV lung cancer. I thought this was very ironic, and that somehow I was sent to this organization. I took it as a sign, and decided to work with the Partnership. 5 years later, I am chairing the 2nd Annual Free to Breathe in the Delmarva area of Delaware/Maryland/Virgina.

I have also been lucky enough to have attended my 2nd Lung Cancer Advocacy Summit presented by the Partnership. For those not familiar, it's the one time of the year where advocates, patients, and survivors get together to learn more about the progress being made in the fight against lung cancer. It's also an opportunity to see new faces of those who want to get involved, as well as meet people who have been touched by this terrible disease. I can honestly say that it is a privilege and honor to attend, and to be amongst those who are so passionate in this cause.

I have been most impressed by the National Lung Cancer Partnership in the fact that everyone there TRULY cares about this fight. They want to create CHANGE. And after interacting with them for so long, you can tell that there isn't the bureaucracy in this organization that plagues so many others....which means more money goes towards lung cancer research. This organization is ONE CLASS ACT, and I wouldn't be involved with any one else!!!!!

The Great!

I've personally experienced the results of this organization in...

The assistance I've received as a part of their Free to Breathe program.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes!!!

May 7, 2011

As an advocate and donor, I am impressed with the Partnership's quality and quantity of resources. As an advocate, they ensure you have the knowledge base and activation tools to to become an effective advocate. Their organization is led by Dr. Joan Schiller, a leading oncologist. Not only is she impressive and well-respected within her field, but she's also willing to ask the tough questions of her colleagues in an effort to push for the best research understanding of lung cancer. I am very proud to be a part of this organization, and I have no doubt this organization will create a successful movement to garner much-needed funding for lung cancer research.

The Great!

I've personally experienced the results of this organization in...

The Denver Advocacy Summit

Ways to make it better...

If I had to make changes to this organization, I would...

Expand! They have an incredibly talented and passionate staff.

May 6, 2011

The National Lung Cancer Partnership is made up of researchers, advocates, physicians. It is a partnership in the fight to help find answers through funding research and making communities aware. This organization is totally devoted to lung cancer so all funds raised are directed toward this fight. As an advocate I go in to the community to present programs on lung cancer, it's risks, symptoms, treatments available, etc. I am able to provide materials for participants through the NLCP. Each year this organization awards grants to young investigators to fuel their research in to finding answers. They provide an avenue for advocates, caregivers, etc. to connect and support each other.

The Great!

I've personally experienced the results of this organization in...

the assistance I have gotten in being able to go in to my community and advocate for lung cancer awareness as well as to advocate for research funding through the legislative process. I have had the opportunity to meet incredible people from all walks of life who have been affected by this disease.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make changes. It is a well run organization that keeps it's administrative costs down and never loses sight of why it was founded.

May 3, 2011

In the short time I have known of this organization, I have been impressed with it's commitment to raising the awareness of lung cancer as well as raising funds for research. They have developed a terrific management team and are fiscally conscious. They, as much as their supporters, want to see funds raised being spent to fund lung cancer research.

The Great!

I've personally experienced the results of this organization in...

The resources available to the newly diagnosed were very valuable when my husband was diagnosed. I've also spoken with scientists who have received grants and are consequently able to do important research.

Ways to make it better...

If I had to make changes to this organization, I would...

give them more funding to continue and grow the important work they are doing.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Through my husband's oncologist.

What, if any, change in your life has this group encouraged?

I have become a lung cancer advocate to help raise awareness and funding for this disease. I also have a much larger network of resources to help me navigate my husband's fight.

When was your last experience with this nonprofit?

2011

May 3, 2011

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May 3, 2011

I recently attended the 4th annual Lung Cancer Advocacy Summit with this organization. I was amazed that so many people from such different walks of lives have personally been effected by lung cancer and are ready to make a difference in the outlook of this disease. The statistics are frightening, but the hope through research and advocacy is what makes this organization so wonderful to work with. My step-dad is fighting this disease now. And I am ready to work with this foundation that puts the patient first.

The Great!

I've personally experienced the results of this organization in...

The people that sit on this board all have a personal connection to lung cancer. They truly care about raising awareness and changing the outlook of this disease for future generations. Several staff members and board members spoke with me personally about my family member's diagnoses. They offered educational information as well as compassion for our family.

Ways to make it better...

If I had to make changes to this organization, I would...

Spread the word in bigger ways. Most people do not know that lung cancer is the biggest cancer killer nationwide.

May 2, 2011

I have been a member of the Partnership for over 4 years. I have been to at least 2 Summits and helped to develop the first one in NC. I am an advocate and activist and also a nurse navigator at UNC in Thoracic Oncology. Through working with the Partnership, I have gained knowledge of how to be an advocate.
On a personal leve, the Partnership has inspired me to do more. I am now involved in speaking to large or small groups about lung cancer and educating them in the most up to date manner. Trying to get rid of the stigma and educate providers in the most accurate information.

The Great!

I've personally experienced the results of this organization in...

I have been inpsired by meeting more and more people who have the same goal as me. To increase education and awareness and also to lessen the stigma of lung cancer in the public. If you have lungs, you are at risk!!

Ways to make it better...

If I had to make changes to this organization, I would...

make is more known to all persons and providers!!

May 2, 2011

I was recently selected by this organization to attend their 4th Lung Cancer Advocate Summit as a lung cancer survivor and has lived with this disease for almost 7 year. The Summit was attended by a group of leading doctors, researchers, patient advocates, and lung cancer survivors. This group is dedicated to raising public awareness of the disease and generating funding for lung cancer research. Attending the Summit for the first time really opened my eyes and energized me to want to get more involved in raising public awareness in the need for more research funding for finding the best treatment for this deadly disease which claimed lives each year more than the breast, prostate, and colon cancer combined. Yet, the funding for lung cancer research ranked at the bottom of the other more visible cancers. I found this organization has the best potential to achieve the goals they set out to accomplish--Research grants for dedicated scientists for lung cancer research, advocate for public awareness, and provide support for lung cancer survivors with needed resources, and the basic knowledge to seek the best treatment available for lung cancer.

The Great!

I've personally experienced the results of this organization in...

I was selected as one of the 50 participants to their 4th Lung Cancer Advocate Summit in Denver, CO. on April 28 - May 1, 2011

Ways to make it better...

If I had to make changes to this organization, I would...

make broader approach to attract donors to this worthy cause.

May 2, 2011

I am a 42 year old woman living with Stage IV lung cancer. I turned to the National Lung Partnership because I was angry and looking for a place to help change the face of this neglected disease. The Partnership funds research directly, provides patient support materials, and trains advocates to expand the army of fighters trying to get the word out. They are staffed with great talent and professionalism.

The Great!

I've personally experienced the results of this organization in...

Through their training, they change people's lives and turn them into real activists. They stay connected to their advocates and use our expertise to further their mission and toward accomplishing our shared goal.

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

March 23, 2011

I lost my mom to Stage IV Lung Cancer in July 2005 after a fourteen month battle. She died just one month before I had my daughter, her first grandchild. I searched everywhere for an organization to become a part of that solely focused on lung cancer research and raising public awareness of the disease. The National Lung Cancer Partnership is the only lung cancer advocacy organization founded by physicians and researchers that are working with survivors and advocates to fight this terrible disease. They also have the Free to Breathe event series that I have become a part of locally. I co-organize the Athens, GA FTB 5K. 100% of the net proceeds from each event go to supporting and funding NLCP's research, education and awareness programs. I have met wonderful staff, physicians, survivors, and advocates since joining NLCP. I can't think of a better organization to dedicate my advocacy work with and to watch grow in their efforts.
I have also done research grant reviews the last two years as a patient advocate and have learned so much from the wonderful work that is being done by researchers across the country to fight this disease.

The Great!

I've personally experienced the results of this organization in...

watching it double and triple in size with their Free to Breathe event series. My Athens event has tripled just in the last year. When my mom was diagnosed, I was devastated at the lack of information that was out there and now I am a part of seeing that change - WOW, what more can I say besides thank you to the Partnership for what they are doing and for all of the researchers, physicians, survivors, and advocates for the tremendous work that is being done across this great nation of ours.

Ways to make it better...

If I had to make changes to this organization, I would...

Absolutely nothing - I only wish lung cancer would get more recognition as being the number one cancer killer, and that people were more aware of it's devastation.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Nothing.

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