National Foundation for Celiac Awareness

Rating: 4.8 stars   20 reviews

Issues:

Location: PO Box 544 Ambler PA 19002 USA

Mission: NFCA aims to increase detection and diagnosis of celiac disease and improve quality of life for individuals and families following the gluten-free lifestyle.
Results: NFCA has increased the availability and accessibility of gluten-free options in grocery stores, trains restaurants in proper gluten-free food preparation and launched a free continuing medical education program (www.CeliacCMECentral.com) to teach primary care physicians how to detect, diagnosis and treat celiac disease - the first of its kind.
Geographic areas served: Nationwide
Programs: Celiac CME - www.CeliacCMECentral.com), GREAT programs (gluten-free training) - www.CeliacLearning.com, GREAT Business Association (manufacturing group supporting best practices) - GREAT@celiaccentral.org.
2011 Top-Rated Nonprofit
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EIN 90-0108854
215-325-1306
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Community Reviews

Role: Professional with expertise in this field
Rating: 2 stars  

1 person found this review helpful

NCFA has been a player in the Celiac community for years, and yet there's a lot of questions in terms of where the money raised goes for years.
I used to donate to NCFA, now I don't. I'm not comfortable any longer with the organization.
So please, answer the questions. How much is raised? How much goes to admin? Where does the $ from the events go? the amounts raised from the gala and amts spent on webinars and handouts just don't add up.
and for goodness sake, why start another GF cert program when there are already 2 in place?
I would love to feel comfortable supporting NCFA, but I can't until I have further info.

I've personally experienced the results of this organization in...

I've donated...that's about it

If I had to make changes to this organization, I would...

suggest TRANSPARENCY with money. That way, if it's being used well, there are no questions, and if it's not, people are aware so they can make their decisions appropriately.

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Rating: 5 stars  

NFCA provides the best online source for the latest information about celiac disease and living gluten free. Their work to provide information and to educate caregivers, restaurants, schools, and those who are beginning the gluten-free journey or those who suspect they may have gluten issues is outstanding. They are spreading awareness with webinars, social media and downloadable brochures and fact sheets that make it so easy to spread the word and educate which makes the world a whole lot safer for those living with celiac disease.

I've personally experienced the results of this organization in...

I use them as the resource for news and support for my gluten-free advocacy roles in my community and on my blog.

If I had to make changes to this organization, I would...

No changes, they are doing a fantastic job.

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Rating: 5 stars  

I am a physical therapist who also has celiac disease. I first learned of the NFCA when I became interested in their GREAT education program for allied health professionals. After seeing the quality of material that they were producing, I happily referred others to them for top notch information on celiac disease, gluten intolerance, and how to live well with these issues. Since then, I have worked directly with the NFCA's incredible staff on creating and presenting educational materials for the public. The NFCA and its staff consistently produce quality information that is easily accesible for the lay person and medical professional, in addition to producing events to increase awareness of celiac disease and the importance of feeding us safely to the restaurant and food service industry. The NFCA are leaders, and always the first resource I point anyone to who is interested in learning more about celiac disease and gluten intolerance.

I've personally experienced the results of this organization in...

The amazing feedback from individuals who have received information from them.

If I had to make changes to this organization, I would...

Give them more money to do their great work!

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Role: Professional with expertise in this field
Rating: 5 stars  

Wow, where do I begin? I was first in contact with the NFCA when they partnered with Rudi's Gluten-Free Bakery for their Spread the Bread Campaign earlier this year. I had the pleasure of speaking with the President, Alice Bast, and was amazed at all they do to increase awareness of Celiac Disease and Gluten-Intolerance. I love their GREAT program, which helps train restaurants who serve gluten-free meals in areas such as cross-contamination. There is also the education they provide to doctors for FREE about Celiac Disease with Celiac CME Central. They do SO much for our community and I cannot stress enough that everyone should be promoting their services as often as we can. Not to mention their website is extremely user friendly. With their Symptoms Checklist, if you know of anyone who may suspect that they have Celiac Disease or Gluten Intolerance, this is a great first step. The NFCA is such an excellent resource!

I've personally experienced the results of this organization in...

I had the pleasure of working at a local University that started their own gluten-free area in their Dining Hall based on receiving training from the NFCA's GREAT program. So excited to witness the rollout!

If I had to make changes to this organization, I would...

No changes are necessary, they are perfect in what they do already.

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Rating: 5 stars  

The NFCA has been the "go-to" resource for me since being diagnosed with celiac disease. The easy to navigate website offers all celiacs, whether newly diagnosed or diagnosed for years, a wealth of information.
I am constantly referring BeFreeForMe.com members to the NFCA printable guides and webinar series, as well as suggest they check out the NFCA list of bloggers and list of websites offering additional resources.
The NFCA is a must for Celiacs.

I've personally experienced the results of this organization in...

The guides and webinar series are my favorite!

If I had to make changes to this organization, I would...

None! =)

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Role: Professional with expertise in this field
Rating: 5 stars  

There is BOX pizza and then there is REAL PIZZA from a Pizzeria. You cannot compare one to the other for flavor and texture. Same holds true for the NFCA…they are the VOICE of us all who are afflicted with either Celiac Disease or Gluten Intolerance. So where each of us is the one quiet voice, they are the loud booming megaphone that gets it done!

Their tireless work ethic when it comes to getting the word out about Celiac Disease and Gluten Intolerance has made our lives easier to live. Because of them we have better research, more products on store shelves and more restaurants aware that safe cooking is critical.

They are my favorite organization to work with

I've personally experienced the results of this organization in...

Conference calls The "Appetite For Awareness" event Articles Day to Day information

If I had to make changes to this organization, I would...

NONE

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

They are selfless

When was your last experience with this nonprofit?

2011

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