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20 Reviews
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June 29, 2011
1 person found this review helpful

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June 29, 2011
1 person found this review helpful

I was diagnosed with Celiac Disease in March 2011 and the NFCA has been my sole location for information to help me cope. I've had contact with the people who run GREAT Kitchen's and they have been such a GREAT help in getting more restaurants on board in my area. The website is so easy to navigate and provides just what you are looking for. The events that the NFCA hosts have been wonderful as well as the information they provide to the public about awareness in getting tested regardless of symptoms. To think that I live in the very same town where the founder is from makes this organization that much more special for me. Keep up the GREAT work!

The Great!

I've personally experienced the results of this organization in...

I recently had a gluten attack due to a chain restaurant promoting that they have a gluten free menu however they are not GREAT Kitchen certified. I had then been contacted by the NFCA to help make this chain better for us with celiac.

Ways to make it better...

If I had to make changes to this organization, I would...

Not change anything other than helping to advocate with them.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

I was given brochures from my doctor when I was diagnosed.

What, if any, change in your life has this group encouraged?

Eating out

When was your last experience with this nonprofit?

2011

June 29, 2011

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June 29, 2011

My daughter was diagnosed almost 2 years ago with celiac. At the beginning of our journey we had such a mixed bag of emotions... life without her basic core of foods, interpreting labels, at least it is a chronic disease that is controlled by food and not some pharmacological drug that could have long term side effects, and on and on.

Then the reality of cross contamination began for us. Time and again she would become ill from cross contaminated foods or by products that claimed to be gluten free but did not meet our needs. FDA involvement is so much more than a want, it is a desperate need.

This is where NFCA comes in. Our faith and trust in NFCA is 100%. If they back a product you know it is safe. They attend our support group meetings and education seminars. They open communication channels with restaurants so they understand the impact of cross contamination. Their push to get the FDA to establish regulations is nonstop.

My daughter's future gets better and better because of the dedication and continuous work of NFCA.

Supporting NFCA means ensuring the health and wellbeing of celiacs and gluten intolerants throughout the U.S..

The Great!

I've personally experienced the results of this organization in...

Every aspect of our daily lives.

Ways to make it better...

If I had to make changes to this organization, I would...

Find methods for volunteers to do more grassroots type of campaigns in their neighborhoods.

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3 hours of volunteer time for this nonprofit will...

Distribute educational brochures, assist at awareness events, contribute to NFCA's monthly e-newsletter