NATIONAL COALITION FOR CANCER SURVIVORSHIP
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NCCS is a great resource for cancer patients and survivors. Their Cancer Survival Toolbox provides guidance for every situation on the cancer continuum, from diagnosis through treatment and survivorship. I wish I had the Toolbox to help me get through my bouts with cancer. NCCS also advocates for treatment summaries and long term care plans. It took me over thirty years to get these important documents. With the help of NCCS, nobody will have to wait that long for such potentially life-saving information.
The Great!
I've personally experienced the results of this organization in...
learning how to become a better advocate, both for myself and for other cancer survivors.
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How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
I was diagnosed with breast cancer in 2003 and received a copy of the Cancer Survivor's Toolbox from the National Coalition for Cancer Survivorship. This set of CDs gave me practical tips on understanding my disease, talking with my doctor, finding resources, and learning to be an advocate for myself and others. It was both helpful and inspirational, and I have shared copies with support groups and cancer centers in my area. I have become an active volunteer with several cancer-related organizations and I continue to find the online materials of NCCS to be of immense value. I've used and referred others to the advocacy training offered by NCCS, and find their newsletter to be helpful as well. The one thing that specifically has helped me the most is NCCS's definition of a cancer survivor--that one is a survivor from the time of diagnosis and for the balance of life. This definition is now the norm for the cancer community and beyond.
The Great!
I've personally experienced the results of this organization in...
I used the Cancer Survivors Toolbox, I participate in the advocacy efforts of NCCS, I get the monthly newsletter and periodic advocacy action alerts, I use the online resources of this organization and I recommend the online training modules to others.
More feedback...
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
NCCS deserves kudos for all of the work they have done since they began to make the diagnosis of cancer less frightening for patients and their families. Their committment to getting legislation passed to benefit all those touched by this disease is amazing and their dedication and hard work has rightfully been recognized in Washington and across the country.
The Great!
I've personally experienced the results of this organization in...
the way that people respond to policies and topics that NCCS supports and it makes people feel good that there are those out there willing to go "to bat" for them when they aren't capable of doing it themselves
Ways to make it better...
If I had to make changes to this organization, I would...
build on what they've already put into motion over the years and develop a network of educational materials for cancer centers through out the country--and work to make sure that it was as easily available as the standard ones from ACS
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What I've enjoyed the most about my experience with this nonprofit is...
working with dedicated people who put quality care for families (we're all survivors) first and foremost in everything they do
The kinds of staff and volunteers that I met were...
hard workers completely dedicated to the success of their mission and who were willing to go the extra mile and more--whatever it took to get the job done.
If this organization had 10 million bucks, it could...
provide more educational materials and campaign harder--lobbying the government to step up and make cancer the front of the line issue that it needs to be in order to find a cure.
Ways to make it better...
If I could have spent more time traveling to Capitol Hill and been more involved in their advocacy program
In my opinion, the biggest challenges facing this organization are...
1) working with Congress so that they understand the gravity of a cancer diagnosis and that it non partisan and can strike anyone without warning and that it changes lives dramatically forever. 2) that cancer care needs to be part of any reform
One thing I'd also say is that...
I have been privileged to work with NCCS in the past and look forward to our continued efforts in finding a cure for this disease and to help their work in any way I can as a caregiver and someone who has seen the devastating effects of this disease
When was your last experience with this nonprofit?
2010
This is an extremely important and critical organization in giving rise to the voices of cancer patients and survivors alike who cannot speak for themselves or are under-represented. NCCS is active on many fronts in helping fight the battle against cancer from pressing the legislative agenda on Capitol Hill to developing essential tools to helping make the cancer journey easier to serving as a source of hope and a place to celebrate life. It is an organization well worth funding by donations and sponsorships. Its mission is simple and clear: to have an impact on the lives of cancer survivors and not stop until that mission is completed. Without their presence, the cancer community would miss out on a shining star and a beacon of hope to many.
The Great!
I've personally experienced the results of this organization in...
innumerable ways. Their range is so broad, and they cover so many things that they touch a lot of different areas and leave a large imprint because of that.
Ways to make it better...
If I had to make changes to this organization, I would...
build upon their strengths and look for ways to capitalize on their many successes.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
the great staff and the importance of what they do and they are all about.
The kinds of staff and volunteers that I met were...
kind, focused, dedicated and hard-working.
If this organization had 10 million bucks, it could...
do more than anyone could possibly imagine. No survivor would be left without knowledge or want for help. Resources would be readily available at all times. Also, we would be extremely successful on Capitol Hill in getting through to the legislators.
Ways to make it better...
I lived closer to Capitol Hill and to their offices.
In my opinion, the biggest challenges facing this organization are...
building a larger volunteer base, being more effective on the advocacy front and being able to effectively deploy their programs throughout the country.
One thing I'd also say is that...
NCCS may be relatively young, but it has the knowledge and spirit of a seasoned organization. It has a passion and zest for what it does and the people it serves. They are determined to make a positive difference and help win the war on cancer.
When was your last experience with this nonprofit?
2010
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